hospital appointment today.

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Veteran Member

Date Joined Nov 2005
Total Posts : 2045
   Posted 10/30/2008 2:11 PM (GMT -6)   
i had the hospital today and it went well i suppose.He's booking me in next week to get a look at my insides. He said he wont change treatment until he takes a looksee. He reckons that my symptoms sound like theres a logt happenning and that he feels he won't have to go that far up my colon as he seems to feel its all lower down.
   He done a blood test today to see if i'm suitable for imuran or aziophr.....(can't mind name of it).Said it takes three weeks for those results to come through, whats this test for anyone know?? He said if things are bad in there he will start me on a high dosage of pred for a month before he puts me on imuran.He also believes the asacol are the culprit for the nausea.
         he was a great doctor,not looking forward to next week as im so tender but i have to do it.
                                     keep the faith 

Zoton (lansoprazole)/pred/colofac


Veteran Member

Date Joined Mar 2008
Total Posts : 2855
   Posted 10/30/2008 2:38 PM (GMT -6)   
So sorry you are suffering. I hope you can find something that works!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.

Veteran Member

Date Joined Jul 2007
Total Posts : 2148
   Posted 10/30/2008 2:38 PM (GMT -6)   
sorry Marty! but hopefully this will get you on the track to remission!

They need to check to see how you metabolize imuran (aka azathioprine) or 6-mp and then if you go on either of those you will have blood tests every three months to check your liver and blood count.

I hate pred, but I hate flaring worse than pred...........
Beth, 33 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07.  Flare May 08 (from aspirin?).
UC dx'd 03/00 Proctosigmoiditis; Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07. Close to remission since 9/08.
Prednisone 10mg 1xday, Lipitor 10mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!

Elite Member

Date Joined May 2003
Total Posts : 30998
   Posted 10/31/2008 2:36 AM (GMT -6)   
Marty, how awful for you to be going through a change in symptoms....hope the meds get you feeling better and that the imuran allows you to have many less symptoms in the long run.

I guess surgery isn't something you'd consider?

Just throwing it out because I know how bad your UC can have you feeling.

*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Veteran Member

Date Joined Jul 2005
Total Posts : 1614
   Posted 10/31/2008 4:44 AM (GMT -6)   
Hope you feel better and find something that works for you. Good Luck
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Diosmin(for leg and vein support)

Regular Member

Date Joined Jan 2006
Total Posts : 312
   Posted 10/31/2008 5:28 AM (GMT -6)   
I am in a similar situation Marty. I am having my colonoscopy done at 9 am today(i!!!!) to see what the heck is going on. I can't seem to go any lower than 20 mg of pred or else my symptoms get much worse..and thats even being on 6mp. And I ain't feeling so swift on 20 mg of pred either, but its more tolerable at this level. He tossed out the idea of remicade at my last visit because he said we are trying to save my colon as of this point. He wants to avoid surgery unless its absolutely necessary. I am not sure what to be more scared of as of...remicade or surgery!!! I've done extensive research on both and both can be risky. I guess I'll know more either today or monday as to whats next!

The good thing about this board is we can all commiserate together :). Hang in there and you will get through it.. you've made it this far.

UC since age 22, now 27.  Several huge flares since then.  3/4 colon diseased. 
Currently tapering prednisone(10 mg from 80 mg).  Also just starting 6mp again(75 mg) and lialda.   I definately am not liking these drugs.  Maybe surgery one day?

Regular Member

Date Joined Aug 2008
Total Posts : 469
   Posted 10/31/2008 6:32 AM (GMT -6)   
Marty, I am so sorry that you are not feeling well. That is one of the many reasons why I am so thankful for this site in the we all understand how it feels when we are flaring and not feeling well. I will put you in my prayers and hope you feel better soon.

Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
Canasa 2x a day
Multi Enzyme
Mega Probiotic
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin

Veteran Member

Date Joined Nov 2005
Total Posts : 2045
   Posted 10/31/2008 4:18 PM (GMT -6)   
Thanks everyone for the replies.I actually had a better day today, my morning was good which is rare these days.Usually mornings have been really bad.We went to a family halloween party tonight, great fun.
My friend was started on Imuran 3 months ago, she has really bad Crohns and she hasn't looked back.She is doing well on it so i'm hoping that it works for me.I'm hoping that i won't need surgery this time Quincy although i know i'm getting to that stage where it may be safer to take the colon out.I've had this disease 16 years now but i'm always hopeful that the next remission will be a lengthy one.
Vin i hope your colonoscopy goes well, you are in a similar position. i hope that you find the right treatment to get you back to yourself.
love to all my fellow Ucers
                                     keep the faith 

Zoton (lansoprazole)/pred/colofac


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