Christine C- I would like to ask you questions about your surgery

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jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 10/30/2008 9:06 PM (GMT -6)   
Christine C-
My doctor and I are at the point where surgery is a REAL option. He has run out of ideas since we have tried just about everything.  In fact, he recommended me to another GI for a second opinion.
 
I know that there are a lot of surgery posts out there the latest being Paul's ( he is still recovering but giving us great posts). You sounded so upbeat, I wanted to know if I could ask you some questions- maybe outside of this forum??
 
Thanks, Jackie
Jackie, 43

Pancolitis, DX Jan. 07

Lexapro, colazal 3x3, Sythroid, Protonix, Rowasa suspension

10 infusions of Remicade- doesn't work
tried 6MP - taken off because of health concerns

Prednisone and Levaquin added- October 30th


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 10/31/2008 7:06 AM (GMT -6)   
Jackie,

I am not Christine but I did have jpouch surgery when I was 42. Best decision of my life. I have a very full active life and just returned from a 2 week hiking trip in Turkey followed by a week of travel in the Middle East. Surgery is a difficult decsion with a long recovery but for most of us we have never regretted the decision. I recommend you visit www.j-pouch.org for support and information.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Jeremy "Mr. Snuts"
Regular Member


Date Joined Oct 2004
Total Posts : 162
   Posted 10/31/2008 8:47 AM (GMT -6)   
Sue's posts pushed me to do the Jpouch surgery, and it was the best decision I have ever made. So thank you, sue. :)
Diagnosed with Severe Ulcerative Colitis 1/04 -(18 at the time)
11/04 Total Colectomy
2/05 Ostomy Takedown
5/06 Pulmonary Embolii
Current Medications -
Vicodin 800mg when needed(yumyum)
Coumadin
http://www.livejournal.com/users/mistersnuts/


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 10/31/2008 5:35 PM (GMT -6)   
Question- If I have my rectum removed can I still have a j-pouch? Every part of my colon and rectum is diseased.
Jackie, 43

Pancolitis, DX Jan. 07

Lexapro, colazal 3x3, Sythroid, Protonix, Rowasa suspension

10 infusions of Remicade- doesn't work
tried 6MP - taken off because of health concerns

Prednisone and Levaquin added- October 30th


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 10/31/2008 6:08 PM (GMT -6)   

The jpouch surgery involves removing both the colon and rectum.  If the rectum is left the disease would remain.  A tiny portion of the rectal cuff (1-2cm) is left to connect the pouch to the anus.  In my case the rectum was the most diseased portion; my colon was fairly healthy.  But both organs had to go.

 

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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