pb4 - probiotic question

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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 10/31/2008 9:24 AM (GMT -6)   
Hi pb4,
 
Hope all is going well w/you!  I am going to the UK in a couple of weeks and including the time I leave my house until I get to my hotel room will be approx 10-12 hours.
 
I figure my luggage will not be cold for the first 4 hours and am pretty sure my luggage will be cold on the plane. 
 
I take the same probiotics as you do.  I am not sure if they will be ok to take on my trip (if they will lose potency b/c of not being refridgerated) or if I should buy some other kind that is not refridgerated.
 
Do you have any thoughts or suggestions on what you would do?
 
Thank you!
Beth, 33 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07.  Flare May 08 (from aspirin?).
UC dx'd 03/00 Proctosigmoiditis; Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07. Close to remission since 9/08.
Prednisone 10mg 1xday, Lipitor 10mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


ErinD
Regular Member


Date Joined Jul 2008
Total Posts : 94
   Posted 10/31/2008 9:44 AM (GMT -6)   

Hi Beth,

If you dont mind me asking, what Probiotic are you taking?   I have been looking for one to start and i just don't know which is best?  I have a very sensitive stomach so i am nervous of trying anything in fear of it making my UC worse :( 

Thanks!

-Erin


Diagnosed with UC 3/2008
10mg Prednisone
75mg 6-MP
Entocort 9mg daily
800mg Asacol 3X daily


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/31/2008 12:18 PM (GMT -6)   
Hi Beth,

The worst that will happen if they're not kept in the fridge (cold) is they will lose some of their potency so they won't be working at full force of 5 billion live cultures. I don't know what other brand to suggest since I really never travel and when I do, using cold packs works for me...you could double up on them if they're not refridgerated or you could ask someone at a health food store what brand compares to the Primadophilus Reuteri made by natures way {{Erin, that is the brand Beth and I use}} that don't have to be kept cold.

Good luck, and enjoy your trip!!

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


kickboxer
Regular Member


Date Joined Sep 2007
Total Posts : 123
   Posted 10/31/2008 12:42 PM (GMT -6)   
I use VSL#3 and there was some error in the delivery of my order last time where the probiotics were kept at room temperature for 24 hours in a delivery truck. I called and asked for a new shipment but the lady reassured me that they have done testing and the probiotics can survive up to 36hrs out of a refrigerator. It's not recommended, but they will survive. 10-12 hours you should be okay.
VSL#3
Progressive - Calcium and Magnesium supplement
FibreSmart - fibre supplement
New Chapter Organics - Unbound Energy, Multivitamins


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 10/31/2008 1:32 PM (GMT -6)   
I use VSL#3 as well, and the packaging with the capsules says they can be kept at room temp for up to 7 days and still be effective. I tried putting them in my daily pill boxes, and after a couple of days they weren't as useful. So they stay strictly in the fridge now. 10-12 hours should be fine, but as suggested, if you want to be super careful, put 'em in your bag with an ice pack. That'll keep keep the little guys chilled for a while.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Meds & supplements: Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort, Prednisone, flaxseed oil, L-glutamine.


ErinD
Regular Member


Date Joined Jul 2008
Total Posts : 94
   Posted 10/31/2008 2:06 PM (GMT -6)   
PB4 & Beth,
I would like to try the brand you both take, but i can't find a store nearby that sells it..Have either of you ordered them online from a reliable source that will gaurantee they have been kept refrigerated?  So many sites online sell it but they don't say anything about those conditions other than it should be 'kept refrigerated'.
Thanks again for your info!
-Erin
Diagnosed with UC 3/2008
10mg Prednisone
75mg 6-MP
Calcium + Vit D
Entocort 9mg daily
800mg Asacol 3X daily


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/31/2008 2:55 PM (GMT -6)   
You could ask your closest health food store if they would special order it in for you, I've done that in the past, just make sure you make them aware that it must be sent cold-packed and when they receive it to make sure they store it in their fridge...the other option you can look into is finding a place online that will ship it to you cold-packed which they normally would anyways but you have to be sure to be home when they deliver it.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/31/2008 3:25 PM (GMT -6)   
You might find your health food store actually has a small refrigerated section with the better probiotics, both of ours do but you would have to ask to find it. Or it might be locked because they are relatively expensive but in small bottles so would be easy to steal.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/31/2008 3:40 PM (GMT -6)   
The refrigerated one that I use, Primadophilus Reuteri made by natures way is not expensive, in Canada I pay 29.00 for 90 caps and only one/day is required.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


skikraz
Regular Member


Date Joined Oct 2008
Total Posts : 49
   Posted 11/2/2008 8:41 AM (GMT -6)   
Spoke to the pharmascist at Walgreens, he recommended Finest Natural 10billion CFU capsules, anyone know about these?
Diagnosed 2/08 mild UC/Proctitis
canassa 2x day
lialda 2x day


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/2/2008 12:52 PM (GMT -6)   
I don't but do a google search and see what comes up, a good probiotic is essential and until you find one I suggest eating yogurt daily, maybe the Activia brand, I've started eating those daily on top of taking my probiotics and have found advantages from that as well.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 11/2/2008 5:34 PM (GMT -6)   
I think Greek yogurt is best, but I only find it in health food/organic grocers, or health food sections of big grocers. It's not thin like other yogurts, but nice and thick and more like the kind people make themselves.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/2/2008 7:23 PM (GMT -6)   
Wow, Greek yogurt, I don't think I've ever heard of it let alone seen it in any store I shop at.


:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 11/5/2008 11:45 AM (GMT -6)   

thanks pb4 and everyone for your input.  I think I will have a mini fridge in the room so can put them in there when I get to the hotel.  I will take three a day instead of two just in case.

I get mine at Vitamin Shoppe at the store but you can probably order them online too.

Also, I loooove greek yogurt!  I like to put frozen raspberries w/it.


Beth, 33 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07.  Flare May 08 (from aspirin?).
UC dx'd 03/00 Proctosigmoiditis; Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07. Close to remission since 9/08.
Prednisone 10mg 1xday, Lipitor 10mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/5/2008 2:20 PM (GMT -6)   
Great Beth!!! Enjoy your trip!!!

:)


My bum is broken....there's a big crack down the middle of it! LOL :)

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