So...after some good advice on this board

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Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 10/31/2008 9:33 PM (GMT -6)   
I call my doctor and left a message telling him I am having a hard time retaining the Rowesa enema, and could he switch me to the foam.(as was suggested by a few people here)
Nope.
He (actually someone from his office) called me back, and told me to take one suppository every day for 2 weeks, and then try the Rowesa enemas again.
 
I wonder why he is reluctant to give me the foam.  Had it been him I talked to I would have asked, but it was second hand.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 10/31/2008 10:13 PM (GMT -6)   
That is odd, mind you I'm a patient that tells my doc what to give me, not the other way around and I must be persuasive because they always listen to me LOL.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 10/31/2008 10:25 PM (GMT -6)   
I'm the same way!! I guess since I've had it longer than she's been a GI...
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


tjf43
Regular Member


Date Joined Jun 2007
Total Posts : 73
   Posted 11/1/2008 5:46 AM (GMT -6)   

I had a similar situation where the nurse told me over the phone that I didn't need the enemas and he wanted to put me on steroids. I told her that I wanted to speak with the doctor directly. I ended up doing the enemas along with a higher dose of asacol and was able to avoid the steroids.

Sometimes you have to pushy...

 


Female, age 43
Diagnosed with Ulcerative Colitis 2/2007
In remission since 7/2008
6 Asacol Daily
Fish oil, multi-vitamin, B complex, Mag Oxide, Calcium, Vit C, Vit E, Multi-vit


quincy
Elite Member


Date Joined May 2003
Total Posts : 30611
   Posted 11/1/2008 11:59 AM (GMT -6)   
avoiding pred is what most of us should....unless the 5ASA or steroid topicals cannot work for us. Now, that takes commitment to use them and some aren't of that focus to be using them or waiting to feel better (although there seems to be disappointment once the taper starts).

The foam enemas (in US and Canada) are only in steroid form...wish they came in the 5ASA...reallllllly wishing.

Regarding the Rowasa...can you possibly try a half bottle at a time?
Are you using them at night or morning?

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5182
   Posted 11/1/2008 8:12 PM (GMT -6)   
Meesh just posted recently that she has been able to retain the Rowasa after first using Canasa suppositories for a while. Her gastro had RXed a supply of both those meds. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 11/2/2008 2:50 PM (GMT -6)   
That's really too bad. I swear by the cortifoam. Easy to use and rarely a problem to retain. After a minute, I've forgotten all about it. Several very respected and well-known GIs have told me that it is ok to use it on an on-going basis even though it has steroids. The amount of steroids absorbed the body that way is very small. I would speak with your doctor directly, even if that means making an appointment OR I would consult with another doctor.
-------
UC for the last ten years
Current Meds: 6MP since 2006, Cortifoam
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine)
5ASA drugs don't work for me. Canasa seems to make me worse.
Alternative treatments I have had success with: Acupuncture, Hypnotherapy

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