once on 6mp or imuran, did u go off other meds?

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piper_chris
Regular Member


Date Joined Jun 2008
Total Posts : 73
   Posted 11/1/2008 4:59 PM (GMT -6)   
I know 6mp and imuran are similar so I pose these questions to people taking either one...

Once you had been on the immunosuppressant for awhile did your GI doctor take you off other UC meds like asacol, canasa, rowasa, sulfasalazine, etc?

I've been on 6mp about 5 months. My UC isn't bad (compared to my last flare) but I'm not in remission either. My frequency is down (about twice a day) and no blood lately, these are the good things. But still urgency, loose movements, sometimes yellow liquid involved (maybe bile), often mucus, undigested vegetables come back through (even soft cooked ones), sometimes mild pain (not bad), and always lots of gas. Also I seem to have "fast track" where whatever I eat or dinner or before bed is apparent in the toilet the next morning.

I went to my GI last week and she said first taper completely off the asacol. Then taper completely off the canasa. So all that will be left is the 6mp. She made that all sound like it should be a piece of cake and said to come back for my next appointment in 4 months (which is a longer stretch than usual).

This whole thing makes me a bit nervous. I don't know which meds are keeping my UC somewhat controlled. And going off meds would make more sense to me if I was digesting food better (she says I don't need digestive enzymes) and having firmer movements without mucus or bile.

Did you go off other meds once immunsuppressed? Other comments/opinions?
- female 41, diagnosed ulcerative colitis Feb 2005
- glad to be off prednisone (was on April thru Sept)
- currently 6-MP/mercaptopurine/purinethol 75 mg, gradually tapering off asacol/mesalamine, canasa 1000mg nightly
- VSL#3, fiber supplements, multivitamin, chewable calcium, fish oil, biotin, sometimes iron pills

Post Edited (piper_chris) : 11/1/2008 6:06:04 PM (GMT-6)


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 11/1/2008 8:52 PM (GMT -6)   
All three of the GI's I've seen use one of the 5-ASA's for maintenance even when you're on other drugs. Even now on Remicade, I continue taking a maintenance dose of Colazal.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


piper_chris
Regular Member


Date Joined Jun 2008
Total Posts : 73
   Posted 11/3/2008 4:08 PM (GMT -6)   
Thanks Judy.

Anyone else have experiences or comments about whether you went off some of your other UC meds once you had been taking 6mp/mercaptopurine or imuran/Azathioprine for awhile?
- female 41, diagnosed ulcerative colitis Feb 2005
- glad to be off prednisone (was on April thru Sept)
- currently 6-MP/mercaptopurine/purinethol 75 mg, gradually tapering off asacol/mesalamine, canasa 1000mg nightly
- VSL#3, fiber supplements, multivitamin, chewable calcium, fish oil, biotin, sometimes iron pills


MicheleV
Regular Member


Date Joined Sep 2004
Total Posts : 233
   Posted 11/3/2008 4:12 PM (GMT -6)   
I was on pred when I began Imuran and after tapering off that drug, I am only on Imuran and have never taken anything else since.  Colazol and Asacol didnt work for my pancolitis, so this is it for me.  Good thing, as I have hard enough time taking one medicine! tongue     I have had my longest adult remission ever with just Imuran, so I am convinced this is enough for me. 
 
 
Currently in remission since September 2004!!!  I am on Imuran 150 mg and am LOVING life!


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 11/3/2008 4:13 PM (GMT -6)   
My doctor felt the 5ASA's were making me worse and after I tried Lialda and then sulfasalazine with no success and just worsened, he took me off everything and put me on Imuran. His plan is for me to take it for three months (I'm just finished month one with no improvement) and if it doesn't work he's talking Remicade.

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Sulfasalizine 3000mg/day, Azasan 100mg

 
 

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