Stem Cell Research, Auto-Immune Disorders-Obama

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Meesh
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Date Joined May 2006
Total Posts : 619
   Posted 11/2/2008 5:54 AM (GMT -6)   
Stem cell research shows great promise in treating auto-immune disorders.
Please be sure to get out and vote on Tuesday!!

Meesh
 
 

Meesh, I'm sorry, but I had to edit your post.

10. No posts of an overtly political or religious nature OR posts promoting advocacy of particular personal, medical, legal, religious, political, or non-profit causes.

Post Edited By Moderator (Judilyn) : 11/2/2008 8:07:58 AM (GMT-7)


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 11/2/2008 5:27 PM (GMT -6)   
Sorry, did not know that. But now it makes no sense, so how about you just go and delete it altogether please.

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 11/2/2008 5:29 PM (GMT -6)   
I think we can tell what you said!!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 11/2/2008 5:47 PM (GMT -6)   
Okay! Let's keep it then
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08
10 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08; 8/15/08, 9/26/08; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Tylenol Arthritis Formula or Tramadol as needed for arthritis pain; Rowesa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;
Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


Old Hat
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Date Joined Feb 2007
Total Posts : 5182
   Posted 11/2/2008 8:58 PM (GMT -6)   
Gotcha, Meesh-- I agree and so does 62% of the polled population in the state where I reside. May blue prevail!!!!!!!!!!! / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 (generic) Colazal daily for maintenance of remission)

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 11/2/2008 9:16 PM (GMT -6)   
Yeah, it wasn't edited due to lack of agreement. I left what I did because I thought everyone would get it.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 11/3/2008 10:34 AM (GMT -6)   

I hope this is okay to post--it's from factcheck.org and gives the candidates' views on health insurance: http://www.factcheck.org/elections-2008/health_care_spin.html


Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort, Culturelle, Fish Oil
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 11/3/2008 12:54 PM (GMT -6)   
If I had to buy health insurance I don't think they'd take me! At $5,000 or more a pop for Remi....well, you get the picture. :-) Me gotcha' too.
Carol

Remicade - will have my 25th infusion on November 26 
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 11/3/2008 1:33 PM (GMT -6)   
I know I'm uninsurable. I tried to get long-term care insurance last year and was turned down because of the UC. Thank goodness my insurance from work follows me into retirement!
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 11/3/2008 2:37 PM (GMT -6)   
Funny you should mention LTC Insurance. When I was 44 and my hubby 49 I decided we should get some. He was like, aren't we too young? Isn't it a waste of money for so many years? I insisted though and we got it. His policy is $100 a quarter more than mine (altogether we're just under $1,000 a quarter for a fairly generous inflation-adjusted policy). Yeah, well, who has the last laugh now, I am in like Flynn!

The reason I decided to go ahead so early was my folks got policies and my mother mentioned that it would have been much cheaper, for life, if they had done so earlier. I only have one child and did not want to burden her with my or her dad's care, and as it was, she has had a lot of her own issues and I not sure she'd ever even be in a position to help us out if it came to that.

So at least I have the long term care insurance. And for the time being at least very good health insurance through my husband's work group plan. And I know that NO MATTER WHAT if he loses his job I need to keep the COBRA benefits as long as possible and never have an insurance gap -- that seems to be the key, never having a gap in coverage. As long you never have a gap the pre-existing condition doesn't kick in.

Meesh

mh53mike
Regular Member


Date Joined Aug 2008
Total Posts : 149
   Posted 11/3/2008 5:29 PM (GMT -6)   
At age 26 i got instantly turned down by blue cross blue shield for UC. If you cant get employee benifits its hard to find healthcare with this disease. Its very frustrating and flat out wrong!
26y old male. Diagnosed with UC (lower proctitis) in 2004.
 
Current daily treatment:                             Probiotics & supplements:
2400mg oral asacol                                       Digestive enzymes
75mg azathioprine                                        folic acid & calcuim with V-D
20mg Prilosec                                              VSL#3 probiotic 
Diet:Little/no sugars, fats, carbs, caffine,yeast,breads,alcohol. Stay natural as possible. A not so strict form of the SCD.  
Results:1 Bowel movement in the morning no blood! Remission since 08Sept08
 
 


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 11/3/2008 5:43 PM (GMT -6)   
I think I would have been diagnosed with UC a few years earlier than I was, except I had no health insurance then. I had gone to an urgent care place about blood in my stool, and he referred me to a specialist. I never followed up on it, thankfully. That would have been bad, getting diagnosed without health insurance. Finding employment with good health insurance has been a priority of mine whenever looking for work.

I already voted with an absentee ballot. Doesn't that mean that I should be exempt from having to see any more political ads on TV? It's not like I'm going to get buyer's remorse at this point.

Everyone, get out and vote tomorrow!
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Meds & supplements: Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort, Prednisone, flaxseed oil, L-glutamine.


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 11/3/2008 6:46 PM (GMT -6)   
beartooth said...
I already voted with an absentee ballot. Doesn't that mean that I should be exempt from having to see any more political ads on TV? It's not like I'm going to get buyer's remorse at this point.

Everyone, get out and vote tomorrow!

LOL Tell me about it! I haven't voted yet (I'm going at 7am tomorrow morning) but I am soooo sick of all the campaign ads and hearing people talking politics in the lunchroom at work and just everywhere you go it's all about the election. There are two things I don't talk about unless it's with a close friend or family- religion and politics. It's just pointless to me to debate my opinions with other people. Sometimes it's amusing listening to others though; the odd tangents they go off on and the ridiculous statements they make. I just sit and laugh to myself and try to stay out of it  tongue

ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 11/3/2008 7:31 PM (GMT -6)   
I am voting tomorrow, although I fear I am voting for the lesser of two evils. I am sad to see that this is the best America has to offer its citizens...
I feel like this election has been one big media bowel movement and I will be glad to see it over no matter who wins.

potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 11/3/2008 8:24 PM (GMT -6)   
I have to agree with ucwarrior.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 11/3/2008 8:28 PM (GMT -6)   
Go Blue!

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 11/3/2008 9:01 PM (GMT -6)   
It is good that we are all thinking about our health care issues. Many many posters on this site delay their care or do not get the care they need because of money. They they become a bigger burden on the system, when they allow things to get out of control. Then it's ER visits and surgery...
My daughter will only get health care as an adult if things change in our country. It will not be an easy fix health care no matter who is in the White House.
Did you know that Remicade is not FDA approved for children with UC? The costs at the U of C are near 10k per infusion? No wonder the leading cause of bankruptcies is medical bills( at least until the housing crisis!!). It is hard to think about losing your house or deciding your 15 year old should live in pain...
crazy world.
Vote for change...
Daughter,15 diagnosed 1-08 w/ UC Learning from you all.
Asacol, Prevacid, Flagyl, Prednizone 50mg, major flare, now off!, Hosp. @ U of C, Comers three x this yr. Low residue diet still, and still in a flare.
6MP, Colazol ,horrible acne/moon. No more Pred,but 6mp isn't working. Remicade next up.
Trying probiotics, fish oil, and Mangosteen for kicks.


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 11/3/2008 9:19 PM (GMT -6)   
Anyone that's for a better treatment or even a potential cure for any disease has my vote ; )
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4X2)
Corti Foam p.m.
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 11/3/2008 9:48 PM (GMT -6)   
Be careful what you wish for...if the gov't has their hand in providing programs, such as universal health care, expect them to put that same hand into your pockets to pay for it. (Just look at the taxes paid in these countries that provide universal health care). Don't know why we always think gov't should be, or is the answer to all our problems. And, it isn't all it's cracked up to be. Just look at Canada's system. They can hardly manage 30,00,000 people, and we have 10 times that population. There is no clear answer.

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 11/3/2008 10:43 PM (GMT -6)   
I don't know if Canada allows stem cell research or not but if they do good for them...stem cell research is one thing I'd gladly help to pay for!!!
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4X2)
Corti Foam p.m.
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 11/4/2008 3:44 AM (GMT -6)   
in australia there is health care for everyone and its great.
id rather pay slightly higher taxes for all the benefits i get from health care here. everyone, kids, babies, families.
my very expensive UC meds will never cost more than $30 a pop.
i go to the specialist, pay $75 and medicare gives me $58 back.
and stem cell research should be allowed no matter what. screw everyone who disagrees with the morality of it. they are usually the ones with no problems.

i just heard about some studies about sugars and there are 8 of them that are important in regards to inflammatory diseases and auto immune diseases. the shape of the sugars on the outside of our cells are different and the immune system thinks they are foreign bodies and attacks them. these sugars are missing from the 20th century diet and nutrition.
im checking it out. let me know if any of you are interested and i can forward some info.
i will keep you posted on the outcome.
the doctors studying it did a sugar disease test and could actually see the changes on the cellular level when these sugars were added and the immune system just stopped attacking. very interesting imo.
sorry for going off topic...
steph - 32 - female - gold coast australia - UC since 2000
severe UC in descending colon and sigmoid colon ONLY
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
prednisolone 25mg x1 a day (ick ick and did i say ick?)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
tumeric capsules - if i remember to take the bloody things.
i still eat what i want, when i want, if i feel like eating at all :(
 
 
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 11/4/2008 8:29 AM (GMT -6)   
Well, today I just got information in the mail from my Healthcare provider that I've been selected to partcipate in a study on how genes and the environment affect people's health, because I have an autoimmune disorder. They sent information to several people with different medical issues. I had to fill out a lengthy form first time around, and they made the selections from there. I'm kind of excited to participate; I figure that maybe my great nieces and nephews will benefit from this....who knows. The more research we have the better.

Carol

Remicade - will have my 25th infusion on November 26 
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 11/4/2008 9:57 AM (GMT -6)   
What the "blue" candidate is proposing isn't universal health care in the traditional sense; it's kind of in the middle of universal health care and what we have now.
 
One of my biggest concerns about graduating college/finding a job is that I won't have insurance. It was one of the reasons that I was considering surgery--wouldn't have to worry about Remicade or my pre-existing condition!
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort, Culturelle, Fish Oil
 


love4cats
Regular Member


Date Joined May 2007
Total Posts : 458
   Posted 11/4/2008 12:08 PM (GMT -6)   
The Canadian health system is not all that it is cracked up to be. People are dying because of the long waiting times, doesn't cover medications so even if you are diagnosed, if you don't have private health coverage, you may not be able to afford the meds. Get a GI appointment here in a couple of weeks, pfft, where I live it is a six month waiting list, that is if you have a family doctor to recommend you. I know somebody who waited 5 weeks to get the results of his biopsy, sadly it was also the day he died.

My parents have had experience with both and they feel American health care is better, however, they do have private health insurance.
 
 
Dx:  UC Proctitis 2006 
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence. 
Started Meds:  Apr 9 08 500mg 5ASA (salofalk) to ease flare, tapering, stopped. 
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 
 Added: tumeric and probiotics.
 
 


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 11/4/2008 7:45 PM (GMT -6)   
Love4cats, be careful what you say about the Canadian health care system. It varies from province to province and city to rural areas. I live in Toronto and have always had excellent care. I would never trade our system for a US style system. I have never experienced any of the problems you talk about.
Paul
Diagnosed in 2000 at age 43 with UC. Colon removed October 20/08.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 

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