more bleeding at night

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bokscarracer
Regular Member


Date Joined Sep 2008
Total Posts : 152
   Posted 11/2/2008 6:55 PM (GMT -6)   
i'm currently on the full dosage of colazal and have been using rowasa enemas every night for the past couple months since i've been bleeding. in the morning i'll take a pretty decent poo and usually there will be a little blood to top it off. as i progress throughout the day, the bleeding will get worse. when i take the last poo at night i'll usually have a nice fart come out and then right after that the blood just kind of pours out. i would say a little less than an ounce. i don't know if the progressive pooping throughout the day is just exacerbating the ulcers and that's why they progessively bleed more and more throughout the day or perhaps the colazal isn't doing anything anymore. i guess at this point the rowasa is what is keeping me from bleeding a lot with every poo. i'm supposed to see my gi doc hopefully sometime this month but his schedule is so far booked up. he did prescribe me some cortifoam so i'm going to give that a try. he told me to use the cortifoam one night, rowasa the next, and continue alternating nights. i thought it would be better if i use the rowasa every night and the cortifoam every morning to promote more healing time. i've been going probably 6 to 8 times a day and it varies between a bit muddy diarrhea to formed stools. any suggestions/comments would be much appreciated. i have to say that the continual bleeding is really making me worried. oh yeah, i also just started the vitamin e enemas. i'm now on the third day of that. my poor rectum! sad

emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 11/2/2008 9:58 PM (GMT -6)   
Are those recent instructions to use the cortifoam one night, Rowasa the next? Or do they date back to your last visit? If I were you, I'd call your GI and ask about your idea of Cortifoam in the am and Rowasa at night. It sounds like a reasonable approach given how much bleeding you have in the evening.

Hope you start improving soon --
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg (or more) and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Trying acupuncture
Osteopenia and other assorted ailments


quincy
Elite Member


Date Joined May 2003
Total Posts : 31004
   Posted 11/2/2008 10:59 PM (GMT -6)   
I'm thinking it could initially be the Colazal...is that the first oral 5ASA you were put on? How many are you using daily?

what were your symptoms before diagnosis?

What other supplements are you taking?

Are you ingesting any artificial sweeteners by chance or chewing gum with artificial sweeteners?

I would definitely try the alternating rather than the adding...you just might be getting either too much 5ASA or not the right kind.

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


bokscarracer
Regular Member


Date Joined Sep 2008
Total Posts : 152
   Posted 11/3/2008 11:04 AM (GMT -6)   
quincy -- yes colazal is the first oral 5asa i was put on. i'm taking 3 caps 3 times daily. i was on lialda for a little while but the bleeding came back while i was on that and went away with the colazal (a few months ago). before my diagnosis i was just having a bit of mucus and blood with my poos. never really had diarrhea. other supplements i'm taking: alive multivitamins, ultimate flora critical care probiotics, fish oil, celexa (just started a week ago), lysine (to keep cold sores at bay), milk thistle, and just added turmeric. i also started the vitamin e enemas a few days ago although after the one yesterday i had a bit of diarrhea. i try my best to stay away from artificial sweeteners and think i do a good job although i do have some gum with xylitol from time to time. so you think i should just stick to the doc's orders and do alternate between rowasa and cortifoam each night? thanks for your help! :)

quincy
Elite Member


Date Joined May 2003
Total Posts : 31004
   Posted 11/3/2008 12:08 PM (GMT -6)   
hi...I chew the Spry gum...although not too many throughout the day..and not every day (only when I'm out). Its the best alternative to what's available..sigh.

I think you should try the alternate and if that helps, you can always go to plan B and use the Rowasa nightly and the cortifoam daily....at least you have 2 plans.

I would nix the vitamin e enemas and the fish oil and the tumeric for now...since they can increase the blood flow and thin the blood..it might be too much when mixed with the 5ASA meds...just for now and see if that improves.

Where exacty in the colon is your UC...limited or throughout?

quincy
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


bokscarracer
Regular Member


Date Joined Sep 2008
Total Posts : 152
   Posted 11/3/2008 12:25 PM (GMT -6)   
i just did a vitamin e enema today, doh! last time i had a flex sig (dec 06) the inflammation reached up to my sigmoid and the doc said he was sure it stopped there. i'll probably be getting another flex sig the next time i see him. hopefully this month. those procedures aren't too bad but i just hate looking at the screen, even when they ask me to. i just try to be in a different place. thanks for all of your time and input!

Scarlet504
Regular Member


Date Joined Oct 2008
Total Posts : 192
   Posted 11/3/2008 2:40 PM (GMT -6)   

Hmh, like I said before, my colitis and the bleeding got worse once I started on Celexa again. I didn't have the strength to keep taking Celexa and wait it out if the bleeding will get better. I am not saying that Celexa is definitely causing your problem, but I had the same problems (more bleeding, worsening of symptoms although it was already improving) when I started on a SSRI again. It might be coincidence, it might be not. UC symptoms could get worse at the beginning of a SSRI treatment until your body gets used to the Celexa. Like I said, I am not saying that is the cause for your problem, but might be something to think about, too.

Would a short course of Prednisone be something you might consider? I am taking Pred since a little bit over three weeks and it makes a whole lot of difference to me. I am using Pred for the first time in my life and I am lucky - I have hardly any side effects besides nervousness, sweating a lot, lower back aches, sometimes I can't fall asleep that easily, but I haven't gained any weight, don't have crazy hunger/apetite, no acne - just woke up today with a slight moon face, but since I wasn't born with a slim face anyway and always had a round face independent of my body weight, you can hardly tell tongue and I don't really mind.


Pancolitis since 3/1997
Worst flare of my life since 8/2008, finally showing improvement!!
 
Meds (as in 11/2008)
12 x Asacol a day
40 30 25 20 mg Prednisone
Align
Flintstones Complete Vitamins
Cortenema
Rowasa


bokscarracer
Regular Member


Date Joined Sep 2008
Total Posts : 152
   Posted 11/3/2008 2:46 PM (GMT -6)   
what dosage of celexa were you taking? i'm taking the 20mg dose and am hoping to stay there. i'm going to try to wait it out and see if the bleeding gets better. some other people said it didn't really affect their uc but maybe since i started it while in a flare i'm getting mixed signals about it. i would consider pred if the cortifoam doesn't help things out.

potato
Regular Member


Date Joined Jun 2008
Total Posts : 281
   Posted 11/3/2008 3:06 PM (GMT -6)   

I'm not saying this is what's happening with you, but I had similar symptoms in August and think the culprit was Rowasa.  I was trying Rowasa one night, generic the next and nothing the third.  I still had bleeding on some days. 

Fortunately I keep a journal and I was able to see that the bleeding came the days after I used the Rowasa.  I quit using it and haven't seen any blood it weeks. 

We're all different, so it's really a good idea to write everything down and be your own detective.

 


Potato...  Female, 58, dx 11/07 mild left sided ulcerative colitis (50 cm)
asacol 3 3x a day, cortenema (generic) every other night rowasa
culturelle, benefiber wafers metamucil wafers, activia yogurt, spinach & sunflower diet, primadophilus reuteri
children's vitamin, Vitamin E 400 mg, omeprazole 2xday
oxazepam when needed, lomotil or ImodiumAD when needed
Yoga, meditation, The Work by Byron Katie, exercise at least 5 days a week
 


Scarlet504
Regular Member


Date Joined Oct 2008
Total Posts : 192
   Posted 11/3/2008 3:13 PM (GMT -6)   

I also took 20 mg of Celexa (a whole pill) for two days and symptoms got so worse. Then I decided to only take 10 mg (half a pill) for two days - UC symptoms got a little better. And then I tried to go on the full dose of Celexa again which means 20 mg - and UC symptoms got worse again. So after taking Celexa for a week, I just quit taking it totally.

Celexa always helped me, but I never started taking it during a full blown flare before. I know some people who are in the same boat and can't start on SSRIs while in a flare. It makes symptoms worse - so I am not the only one there. It might be the reason that SSRI make anxiety worse in the beginning. I took Celexa for GAD (generalized anxiety disorder) and not for depression and everytime I started SSRI, I got more panic attacks and anxiety, but within in two or four weeks, it really gets better. Maybe the worsening of GAD (more anxiety etc.) while getting used to the Celexa really puts stress on the body and that is the reason that makes the UC symptoms worse. Anyway, I am only taking some Xanax now for the anxiety if I really need to calm down now. And my doctor wants me to ride out this flare with Xanax now before we think of starting Celexa or a different SSRI.

Hope you feel better soon!


Pancolitis since 3/1997
Worst flare of my life since 8/2008, finally showing improvement!!
 
Meds (as in 11/2008)
12 x Asacol a day
40 30 25 20 mg Prednisone
Align
Flintstones Complete Vitamins
Cortenema
Rowasa


bokscarracer
Regular Member


Date Joined Sep 2008
Total Posts : 152
   Posted 11/3/2008 8:14 PM (GMT -6)   
would going poo multiple times throughout the day elicit the progessively increased bleeding i experience as the day goes on? as i said i use rowasa at night and i think that helps with the bleeding. towards bedtime the last couple poos will have blood with them. i have a lot of gas too that just kind of explodes out and i'm thinking that exacerbates the bleeding as well. any thoughts would be appreciated!

bokscarracer
Regular Member


Date Joined Sep 2008
Total Posts : 152
   Posted 11/4/2008 7:54 AM (GMT -6)   
well i tried the cortifoam last night and this morning i had quite a bit of blood mixed in with the poo as well as free blood coming out. i never had this much with the rowasa. just a question, how much blood should signal that it's time to go to the hospital? i mean, does the blood coming out of our butts just look like more than it really is?
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