Anyone not have pain?

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glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 11/4/2008 2:14 PM (GMT -6)   
I have never had pain from UC.  I've basically been bleeding for 5 years (besides a few months here and there) so I'm constanly flaring but I never get pain.  The only time I do is sometimes when I'm going to the bathroom I'll get some really bad cramping while I'm trying to go but that's it.  Is this normal?
Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/4/2008 2:17 PM (GMT -6)   
Of course it's normal to not have pain, IBD varies from person to person and even in a severe flare of bowel frequency and urgency does not mean you have to have pain as well in order for the flare to count or anything....I don't have tummy pain either, never really did and I have crohn's (crohn's colitis specifically) but when I first got sick it was in my small intestine as well as my colon, rectom and anus and I still never felt tummy pain, just lower back pain during really severe flares (30+ times/day).

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


bokscarracer
Regular Member


Date Joined Sep 2008
Total Posts : 152
   Posted 11/4/2008 2:20 PM (GMT -6)   
sometimes i get these pinchie sensations on my left side and every now and then on my right side. supposedly i have proctosigmoiditis so hopefully that doesn't mean it has spread. no real pain though but on occasion when i have to crap really bad i'll get some intense pressure. it's funny because my butt knows when it's near a toilet. i'll be walking by a bathroom and all of a sudden my rectum will start going into a fit.

glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 11/4/2008 2:23 PM (GMT -6)   
I know that it differs from person to person, just wondering if the majority have pain or don't have pain. Abdominal pain is always listed as a symptom of UC and my doctor always asks me if I have pain so I was curious if others have pain.
Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/4/2008 3:10 PM (GMT -6)   
I'd say probably the majority do, I'm just glad I'm the minority.

Pain is a common symptom of IBD but luckily that doesn't guarantee we'll all suffer with it, and it can differ from flare to flare likely as well.


:)
My bum is broken....there's a big crack down the middle of it! LOL :)


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 11/4/2008 3:25 PM (GMT -6)   
I also never had pain, I think we are in the minority. My GI could never believe that with my severe flare my pain was zero.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


vega19
Regular Member


Date Joined Sep 2008
Total Posts : 91
   Posted 11/4/2008 4:49 PM (GMT -6)   

I don't have any pain either. Every now and then there is a little tenderness in the lower left area but it's more just a sensation than pain.

V


31 year old female diagnosed with UC (entire colon) Feb 2008
(4) 400mg Asacol 3x a day
Remicade 10mg/kg every 8 weeks
Omega 3 supp, calcium supp, VSL 3
Prednisone 18mg (tapering 2mg every week)


Socalsd
Regular Member


Date Joined Jul 2008
Total Posts : 100
   Posted 11/4/2008 5:03 PM (GMT -6)   
I have never suffered from pain either to the surprise of my GI. Also diet does not seem to effect my UC. My Uc is in the lower sigmoid I wonder if that has anything to do with it.
Prednisone 30mg a day
Clotrimazole Troche (keeps the thrush away from the Pred.
Remicaid
VSL 3DS


34 year old male Southern California


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 11/4/2008 6:40 PM (GMT -6)   
I always tell my NP I am "aware" of my left -sided UC.  I did have pain there - right near where my ovaries are but no more since healing.  Now only discomfort (can't call it pain) would be in my back low and sometimes rectum - never had any really bad pain.  ElaineNY

68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 11/6/2008 7:29 PM (GMT -6)   
i am soooooooooo jealous of all of you.
i have sooooooooo much pain it just ruins me.

i have to take half and endone (oxycontin) every 4 hours to manage.
it is a severe cramping in my guts that just goes and goes and goes and doesnt stop.

when on the toilet, it hurts so bad i sound like im having a baby, i have to have plastic bags with me cuz i involuntarily puke from the pain.
i hate it. i cant get away from it. i walk hunched over and im always grimacing (attractive i know).
it wears me out.
i still go out everyday and walk and shop and eat out and do things cuz i refuse to be bed ridden again. i just strategically know the exact latitude and longitude location of every single toilet on the gold coast.
i just wish they had handle bars on the toilets!
steph - 32 - female - gold coast australia - UC since 2000
severe UC in descending colon and sigmoid colon ONLY
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
prednisolone 25mg x1 a day (ick ick and did i say ick?)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
tumeric capsules - if i remember to take the bloody things.
i still eat what i want, when i want, if i feel like eating at all :(
 
 
 


serothschild
Regular Member


Date Joined Jul 2008
Total Posts : 24
   Posted 11/6/2008 10:07 PM (GMT -6)   

Kazygirl,

Your post made my heart break for you.  I am just a few years older than you and have also gone through terrible flares over the past 3 years that I've been diagnosed.  One of which put me in the hospital for 4 days and the other led me down the path of exploring j pouch surgery as I didn't think Remicade was working after being on it for 4 months.  My dr. and I increased the dose of remicade and it worked wonders.  Have you, in your immense discomfort, considered remicade or J-pouch surgery to put the pain you deal with from UC behind you?  I'm asking because I have also been through so much with this disease (and don't even experience the pain you do) and at your young age you should be able to be enjoying your life rather than being trapped by this horrible disease.

I wish you all the best!

kazygirl said...
i am soooooooooo jealous of all of you.
i have sooooooooo much pain it just ruins me.

i have to take half and endone (oxycontin) every 4 hours to manage.
it is a severe cramping in my guts that just goes and goes and goes and doesnt stop.

when on the toilet, it hurts so bad i sound like im having a baby, i have to have plastic bags with me cuz i involuntarily puke from the pain.
i hate it. i cant get away from it. i walk hunched over and im always grimacing (attractive i know).
it wears me out.
i still go out everyday and walk and shop and eat out and do things cuz i refuse to be bed ridden again. i just strategically know the exact latitude and longitude location of every single toilet on the gold coast.
i just wish they had handle bars on the toilets!


Sandra

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