Need advice re: bleeding prior to Friday trip

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LightenUp
Regular Member


Date Joined Jun 2008
Total Posts : 20
   Posted 11/4/2008 2:48 PM (GMT -6)   
I'm taking a ten day cruise on Friday to the Panama Canal, and, wouldn't you know it, I've started bleeding. My UC has been really great for the past two - three months and some weeks you wouldn't even know I had it. However, I started seeing some blood in the past 10 days or so which has increased to just about every bowel movement I have for the last 2 - 3 days. Other than some mucus, I don't have any other symptoms and my stools are still pretty well fully formed. The amount of blood colors the water in the bowl, so it's more than just a few drops, or what you might expect to see adhered to your stool (gross, isn't it?)
 
I telephoned my GI's voice mail this AM and told him what was happening, my trip plans, and that if something went downhill while on the trip i would bump the Prednisone to 40mg until I could get into the office after i returned. I"ll see his nurse on Thursday for my weekly Methotrexate shot and asked for his confirmation of the Pred. increase or other directions at that time.
 
My question is this: Is there anything else that you would suggest I do before leaving the country for 10 days?

Darryl, 58, Male, FL
Dx w/ moderate left-sided UC in 1999
Meds:
Colazol, 6 per day / Methotrexate, one 25mg injection each week /  Prednizone, 10mg per day / Calcium, 1200mg per day / Zocor, 40mg per day
Probiotic = Culturelle HS
Good news? Never seem to have complications from any meds.


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 11/4/2008 3:26 PM (GMT -6)   
Start rectal meds.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


gaff
Regular Member


Date Joined Jul 2006
Total Posts : 442
   Posted 11/4/2008 9:17 PM (GMT -6)   
Yep, Rectal meds. Try Rowasa! It works very quickly.
gaff
left-sided UC since 11/05
 Rowasa, Colazal, Calcium, Centrum
Natren Healthy Trinity Probiotics


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 11/4/2008 10:23 PM (GMT -6)   
Rowasa, Cort enemas or Canasa suppositories.  Also, did you doctor say anything about increaseing the Colazal?  I am on nine a day.   Finally off the pred and feel well after a seven month flare!!! yippeeeeeee.  By the way, which cruise line are you sailing with?  We were on a Panama canal (which did NOT go into the canal) cruise two years ago with MSC Lirica...worse cruise line we ever sailed.

62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Still flaring.   Afraid that I am pred dependant.  Back on Pred 40 mgm for five days, then taper.  Other meds...Colazal, 6MP, Nexium, Cort enemas, Canasa suppository, Benicar, Toprol xl, water pill.
Calcium, Probiotic, Flaxseed oil capsule, multivitamin with Iron
Also have osteoporosis and high blood pressure
Remicade NOT an option. Not a candidate for surgery yet..says surgeon.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30995
   Posted 11/5/2008 12:32 AM (GMT -6)   
rectal meds for sure...I'd suggest the enemas over the suppositories.

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 4(Natural Factors Protec) bedtime + Primadophilus Reuteri Pearls occasionally
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


LightenUp
Regular Member


Date Joined Jun 2008
Total Posts : 20
   Posted 11/5/2008 2:33 PM (GMT -6)   

Thanks for all the replies. Unfortunately, I did not respond to the few rectal meds my GI tried me on several years ago. We tried several, each one for a couple months, but nothing seemed to provide any improvement or really make any difference at all. Wish i could report otherwise.

However, the good news is that the bleeding has decreased noticeably since yesterday's posting, so I'm hopeful. If it does subside, I'm going to enter dry-roasted peanuts to the "no-no" food list, as I believe that might have been the cause. I had some two or three nights last week and, although it took a couple days to happen, I think that was the stimulus.
nono
 
Christine1946; I was on 9/day Colazol but my GI doc. dropped me back to 6 when he put me on the Methotrexate.
 
Also, I will be sailing on Royal Caribbean's Jewel of the Seas and we will go thru the Gatun Locks into Gatun Lake. I took this cruise in 2004 and, because it was the best cruise I ever had, we are taking the whole family with us this time. After sailing on Royal Caribbean, Disney and Carnival, we now only go with Royal.



Darryl, 58, Male, FL
Dx w/ moderate left-sided UC in 1999
Meds:
Colazol, 6 per day / Methotrexate, one 25mg injection each week /  Prednizone, 10mg per day / Calcium, 1200mg per day / Zocor, 40mg per day
Probiotic = Culturelle HS
Good news? Never seem to have complications from any meds.


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 11/5/2008 2:43 PM (GMT -6)   
Try them again! Why not, can't hurt? Keep to low fiber for the time being?
I think your plan for prednisone is what I would do.

And I'm the one who always says don't worry about bleeding, I'm always bleeding. It's the urgency that makes travel difficult.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 11/5/2008 2:44 PM (GMT -6)   
Oh, and have a wonderful time!!!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


LightenUp
Regular Member


Date Joined Jun 2008
Total Posts : 20
   Posted 11/5/2008 7:48 PM (GMT -6)   
Thanks. I'm hoping to, just hope TD #17 doesn't spoil anything for us.

Darryl, 58, Male, FL
Dx w/ moderate left-sided UC in 1999
Meds:
Colazol, 6 per day / Methotrexate, one 25mg injection each week /  Prednizone, 10mg per day / Calcium, 1200mg per day / Zocor, 40mg per day
Probiotic = Culturelle HS
Good news? Never seem to have complications from any meds.


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 11/6/2008 6:09 PM (GMT -6)   
     Glad to hear you are going on Royal Caribbean.  We've never been on that cruise line but heard wonderful reports about it.  Don't EVER go on the MSC Lirica....terrible!  We like Holland America and Celebrity.  Have a great time!  Take all your meds along and try to forget all your woes..lol.  Just relax and enjoy!
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.

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