My daughter has her 3rd infusion on the 17th, and we are in your same boat. Can't make heads or tails out of this seemingly random disorder.
She is way better, but not in remission. More urgency/bm's than the first couple of weeks--I always fear that a spike is the beginning of the next round of a bad flare. It is like standing on the edge of the cliff and looking down. She increases her pain and bm's at the time of her menstrual cycle. Anyone else notice a correlation?
Daughter,15 diagnosed 1-08 w/ UC Learning from you all.
Asacol, Prevacid, Flagyl, Prednizone 50mg, major flare, now off!, Hosp. @ U of C, Comers, four x this yr. Low residue diet still, and still having problems.
6MP, Colazol ,horrible acne/moon for awhile- No more Pred,but 6mp isn't working. Remicade next up.
Trying probiotics, fish oil, and Mangosteen for kicks.
On 2nd infusion of Remicade, and still on all of the other drugs., except Flagyl and Pred. Better, not healed.