How do you personally decide if your probiotic is working?

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emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 11/5/2008 9:34 PM (GMT -6)   
I'm curious how each of you determines whether or not a given probiotic is working for you? What symptoms are helped in your case? How long did it take for improvements to show up?

Thanks as always for your advice --
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg (or more) and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Trying acupuncture
Osteopenia and other assorted ailments


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 11/6/2008 12:43 AM (GMT -6)   
My theory is that everyone reacts differently to probiotics. This is due to the unique configuration of one's personal gut flora. I started taking probiotics back in '99 after I took microbiology in college and began to gain an understanding of microbial ecology. I noticed that it started tightening up my stools and lengthening the time between BMs.

The reaction to probiotics can be felt, if at all, in a few days or a few weeks depending on the strains, potency, current gut flora, FOS additions...

I take large doses during the beginning of a flare with some metamucil and FOS powder. This combined with a reversion back to my comfort foods in my food diary takes me back into solid stool remission every time with minimal or no flare. I wish this would work for everyone...
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 11/6/2008 2:24 AM (GMT -6)   
If it is working i feel that you should be seeing a more solid bm after a few weeks.Also less gas too after a few weeks.#
Marty


  



       
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 11/6/2008 6:02 AM (GMT -6)   
For me it was the lack of intestinal sounds and discomfort that I knew I found the right probiotic.
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princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 11/6/2008 9:12 AM (GMT -6)   
You'll see an overall improvement in symptoms and will generally start to feel better. I'd give a new probiotic at least a couple of weeks before you decide it's not helpful. It's also a good idea to ramp up to a therapeutic dose so you'll have less gas and discomfort.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 11/6/2008 9:27 AM (GMT -6)   
I see improvement after a couple of weeks of starting it and if I stop it I get worse.
Beth, 33 ~ hoping to taper pred successfully, wish me luck!
Major Flare Sept/Oct 07.  Flare May 08 (from aspirin?).
UC dx'd 03/00 Proctosigmoiditis; Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07. Close to remission since 9/08.
Prednisone 10mg 1xday, Lipitor 10mg 1xday, Diovan 160mg 2xday. Tekturna 300mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 11/6/2008 4:24 PM (GMT -6)   
Thanks, everyone, for your responses! I've had improvements in all these areas, but started so many things around the same time, I'm not sure what's helped with what. I'm pretty sure that one Primal Defense pill a day is not enough, however -- will try adding at least one more.
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg (or more) and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Trying acupuncture
Osteopenia and other assorted ailments


mh53mike
Regular Member


Date Joined Aug 2008
Total Posts : 149
   Posted 11/6/2008 5:18 PM (GMT -6)   
I saw improvement in less than 4 days, only at very high dosage though 50 billion cfu's daily. Things it help were gas, bloating, frequency of bowel movements, overall digestion. No more bubble/rumble guts and i literally felt like i lost 10 inches on my waist because the bloating went away. I love probiotics and continue to take them.
26y old male. Diagnosed with UC (lower proctitis) in 2004.
 
Current daily treatment:                             Probiotics & supplements:
2400mg oral asacol                                       Digestive enzymes
75mg azathioprine                                        folic acid & calcuim with V-D
20mg Prilosec                                              VSL#3 probiotic 
Diet:Little/no sugars, fats, carbs, caffine,yeast,breads,alcohol. Stay natural as possible. A not so strict form of the SCD.  
Results:1 Bowel movement in the morning no blood! Remission since 08Sept08
 
 


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 11/7/2008 7:44 AM (GMT -6)   
Every time that I've switched probiotics, I've had an increase in gas for the first few days. After that, it is just an overall reduction in symptoms. If I'm still gassy from the new probiotic after 10 days, I'm pretty sure it isn't going to work. I also end up taking more than the directions say is needed. If you do end up switching brands, try to taper yourself off the old one, and start the new one at the same time. I've noticed that helped reduce the gas production I get from new pro-bs.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Meds & supplements: Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort, Prednisone, flaxseed oil, L-glutamine.


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 11/8/2008 9:16 PM (GMT -6)   
Thanks, Brandon-- the tapering idea sounds like a good one. Hope you're doing well --
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg (or more) and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Trying acupuncture
Osteopenia and other assorted ailments


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 11/10/2008 4:43 AM (GMT -6)   
Hey Emory -

Are you still in your flare? I thought your new doc was going to get you all well again? Sorry to hear that you are still looking for that magic combo, but so am I. I've been looking at some of your other threads, and that LDN looked promising. I looked it up on google, and it seems hard to get in the low dose, but it also looks like it has some definite upsides. I'll have to ask my GI doc about LDN next time I speak to him.

I'm still trying to taper off the pred, but in the last few days, it seems that Lialda isn't helping me anymore, and I'm looking to move on to something else. I've been thinking that instead of playing around with meds, surgery sounds good, but I don't even know that I'd qualify for it. I just want to get back to feeling normal again. I'm getting sick of being sick all the time.

I hope you start feeling better soon.
Sorry to hijack your thread. lol
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Meds & supplements: Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort, Prednisone, flaxseed oil, L-glutamine.


emory
Regular Member


Date Joined Aug 2008
Total Posts : 327
   Posted 11/10/2008 10:47 AM (GMT -6)   
Hey Brandon,

Hijack away! Thanks to everyone's responses, I already found out what I needed...

I don't know if I'm flaring or not. I really don't have any symptoms except more-frequent-than-typical BMs (usually a couple a day, but a week ago, I had two days in a row with 6 and 8 -- whoa!) and every couple of weeks, some mucus. I'm still using both the hydrocortisone and Canasa, and with this thread, was just wondering if more probiotic might equal fewer BMs, and that sounds like a good possibility.

You may h ave noticed that the LDN/worm therapy thread is pretty old. I'm still interested in both of those, but feel like what I've got going is probably okay for now. One thing I am very interested in is magnesium supplementation. The spinach/sunflower seed diet seems to be helping quite a few people, so I did a little extra Googling and looking on amazon, and have found some sources saying that magnesium deficiency can cause everything from heart palpitations to migraines to anxiety and insomnia. (Sound familiar?) I checked one book out of the library called The Magnesium Factor; it focuses almost entirely on heart disease and Type II diabetes. While interesting, I want to learn more about the migraines and insomnia. Am still researching.

I'm sorry that Lialda isn't getting the job done any more. Sick of being sick is not a fun place to be. I hope YOU start feeling better soon --
emory
40, female
Dx ulcerative proctitis, 3-5 cm, June 2008 (after 5 weeks of blood and mucous) and still flaring
Canasa 1000 mg suppositories and 2 tsp smooth texture Metamucil nightly
25 mg hydrocortisone suppositories and 1 Garden of Life Primal Defense Ultra in a.m.
Effexor 37.5, Remeron 30 mg, Clonazepam .5 mg (or more) and Trazodone 75 mg for sleep/anxiety
2.5 mg methimazole for thyroid
Trying acupuncture
Osteopenia and other assorted ailments

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