I am so close to remission (as in no blood), but my BMs are unpredictable. For a few days in a row I'll have very little stool, and then on a random day I'll have multiple BMs/diarrhea. I've kept track of the foods I've eaten and I haven't found a correlation. I also still have mucous. In my last remission with just Asacol, I only had 2-3 BMs at the same time every day; even when flaring, I would have to use the bathroom during certain times. This is so annoying! My GI is talking about
increasing the Remicade dosage, which I'm not too excited about
(I didn't even want to use Remi in the beginning)! Anyone else have this problem? Any advice?
Sometimes I think I should have just gone ahead with surgery (I was scheduled for surgery in September and canceled it due to a good c-scope). Three surgeons told me I'm going to need it sooner or later, and who knows how long Remi will work or what the long-term effects could be? And I'm just feeling sad and bummed out. I know things could be much worse but I also know that I'll never be "normal" again. And I hate not knowing what's going to happen and how to plan out my life and the fact that I had to give up stuff b/c of this disease.
Thanks for listening!
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP, 1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort, Culturelle, Fish Oil