Bratcat's j-pouch connection

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Old Hat
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Date Joined Feb 2007
Total Posts : 5190
   Posted 11/6/2008 12:52 PM (GMT -6)   
Best wishes to Bratcat & Bennie for the upcoming Step 2 next Monday. I can imagine that you'll be thrilled to get rid of the wafer + all the cut/paste bother & keeping track of ostomy supplies. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 11/6/2008 3:27 PM (GMT -6)   
Bratcat, I hope your next surgery goes well. I’m very interested in how it goes because I will be having the second step in a few months. The date for my next surgery has not been set yet.

Take care,
Paul
Diagnosed in 2000 at age 43 with UC. Colon removed October 20/08.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: http://www.laflammefamily.ca 


Apetro
Regular Member


Date Joined Aug 2008
Total Posts : 95
   Posted 11/6/2008 10:48 PM (GMT -6)   
Good luck Bratcat, I wish you a speedy recovery and life without meds!

http://asilentocean.blogspot.com/  -> My blog
 
Diagnosed 7/27/08
 
Prednisone 20mg/day 40mg/day and tapering again....


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 11/6/2008 11:49 PM (GMT -6)   
Good luck, Bratcat. It's been a rough road for you, but things are about to smooth right out.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 11/7/2008 1:10 PM (GMT -6)   
Good luck Bratcat, heal quickly so you can enjoy life. no meds sounds good.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 11/7/2008 2:56 PM (GMT -6)   
Good luck bratcat! I hope it's a quick recovery. And Bennie, I hope you can keep us updated!
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort, Culturelle, Fish Oil
 


barbl
Regular Member


Date Joined Jul 2006
Total Posts : 320
   Posted 11/7/2008 3:35 PM (GMT -6)   
Visualizing a perfect surgery and an excellent recovery!!!

Dx'D in 1990. Remission 1991 - 1/2005
Both flares were in extremely stressful times in my life
Colonoscopy 10/2008 mild UC
*****Digestive Advantage IBS formula 4 a day, 1 Forvia, 2 Metamucil.         ????REMISSION!!!????


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 11/7/2008 5:28 PM (GMT -6)   
Thinking about you---- no more bag !!! tongue
Jackie, 43

Pancolitis, DX Jan. 07

Lexapro, colazal 3x3, Sythroid, Protonix, Rowasa suspension

10 infusions of Remicade- doesn't work
tried 6MP - taken off because of health concerns

Prednisone and Levaquin added- October 30th


bratcat
Regular Member


Date Joined Jan 2007
Total Posts : 74
   Posted 11/7/2008 9:40 PM (GMT -6)   
Thanks everybody!!! We will definitely keep you all posted on how things go. I am very excited for this surgery. :-)
Diagnosed with UC 10/12/06
Daughter of Bennie
17 years old
Flared 3 times in a year and a half tried almost all medicines
Current Meds:None!!
JPouch Step 1 of 2 on July 3


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 11/8/2008 9:14 AM (GMT -6)   
My fingers are crossed for you girl! Good luck! :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, Osteoarthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Bennie
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Date Joined Nov 2006
Total Posts : 552
   Posted 11/9/2008 4:32 PM (GMT -6)   

Thank you everyone for your good wishes and prayers. That means so much to our family. Bratcat's surgery is at 1 pm tomorrow. It was originally supposed to be at 3 then the surgeon's office called about a week ago to move it up to 2 pm. Then on Friday they called again and changed it to 1 pm. So we have to be there 2 hours earlier at 11. This should be a much shorter surgery.

Bratcat is on clear liquids today. She has to take magnesium citrate at 6 pm. Anyone know how "yummy" that is? She's never had to take that before.

She's doing great but I'm channeling all the stress. My face breaks out (rosacea) once in awhile especially under stress. I was fine looking on Friday. Since Saturday I look like a teenager in need of a dermatologist. The dermatologist did give me ointment in the past and I have started using it again. So now I look like a greasy, red-faced person in need of a dermatologist! Then last night I started to get a small rash (hives?) on my arms and today it is near my neck. The hospital probably won't even let me near Bratcat at the rate I'm going.
Does anyone know of something other than Benedryl that might help? My body doesn't react well to Benedryl but I know it will help.

Anyway, I will keep in touch. Hopefully they will put her back on the peds floor. They have computers and toys and snacks and videos and lots of other fun things to keep us busy! turn


--Mom of bratcat (17 years old) and nonamejames (19 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds
Step 2 scheduled for November 10
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 11/9/2008 7:15 PM (GMT -6)   
Bennie, what about Benedryl creams? I can't do Benedryl at all (I have a bad reaction to antihistamines) but I have no trouble with the creams. My MIL gets rashes when she stresses out too and I've seen her suffer her fair share of rashes! Hang in there Mom - before you know it, your baby girl will be out of surgery and on the road to her new life.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, Osteoarthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


UC Mom
Regular Member


Date Joined Jun 2007
Total Posts : 146
   Posted 11/9/2008 9:59 PM (GMT -6)   

Hi Bennie.  Hang in there Mom.  I admire you so much, and I totally understand the hives thing.  As much as I have been through with my son, you have been through so much more. My son, the UC person broke out with hives right in front of the peditrician recently.  He gave him a Claritin right away, and that helped. Can you take Claritin? I will be praying for you and Bratcat.  You are an inspiration to us all.


UC Mom
Son diagnosed 10, 2006 at age 15
6MP 100 mg. per day
Vitamin Supplements
Culturelle


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 11/9/2008 10:50 PM (GMT -6)   

Sherry and UCMom, thanks for the ideas. I think we have benedryl cream around here (I sometimes think we have every medicine known to man in this house). I know we have claritin. I think I will try that.

Bratcat is holding OK. She did her prep. It gave her a headache. Plus the nerves are kicking in. My husband is going to work in the morning and then meeting us at the hospital. I'll feel better once he gets there with us.

BTW, we haven't packed a thing but I updated my iPod tonight! It's all about priorities. tongue


--Mom of bratcat (17 years old) and nonamejames (19 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds
Step 2 scheduled for November 10
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5190
   Posted 11/10/2008 1:28 PM (GMT -6)   
Gads, Bennie-- like you really need a rash right now. Wishing Bratcat smooth sailing today & quick progress toward discharge for home! / Old Hat

Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 11/10/2008 8:13 PM (GMT -6)   
Bratcat's surgery went very well. The doctor told us it should take a little over an hour. He said from his first incision to closing her for recovery it took 45 minutes. He was amazed at how much weight she has lost (45 lbs thanks to prednisone).
She's in pain but not horrible. She has her PCA so that should help a bit. She is much more alert than the first surgery. Her catheter should come out tomorrow morning and she should begin walking. Hopefully she'll be out by the end of the week.
She's back in the room she was in for her first surgery. Different bed. I think having nurses who remember her and being on the peds floor is helping her.

I'll keep in touch as I can.
--Mom of bratcat (17 years old) and nonamejames (19 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds
Step 2 scheduled for November 10
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 11/10/2008 9:53 PM (GMT -6)   
Thanks for the update Bennie. I am so glad the surgery went well. Please let us know how the next few days are for her. Your sharing Bratcats surgery stories is very educational for us all.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, Osteoarthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Lonie
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Date Joined Feb 2005
Total Posts : 6448
   Posted 11/11/2008 9:28 AM (GMT -6)   
Good news Bennie! Glad the surgery went well, and I hope a quick recovery for Bratcat. She's one special young lady.

Carol

Remicade - will have my 25th infusion on November 26 
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5190
   Posted 11/11/2008 10:23 AM (GMT -6)   
So glad that Bratcat has the 2nd surgery behind her!!!!! Thanks so much for keeping us posted-- sending you all good vibes. Paul L just posted that he is being discharged from hospital today at noon-- so more good news to share! / Old Hat

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 11/11/2008 12:29 PM (GMT -6)   
I'm so glad bratcat is finally done with her second surgery! I hope she has a quick recovery!
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement
 


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 11/11/2008 10:26 PM (GMT -6)   
Bratcat is doing OK. She had her catheter taken out around noon. She finally urinated on her own around 9:30 tonight. She did walk several times today. She even checked in on some websites. (She read your kind thoughts but has no energy to post.) Still no passed gas (that will allow her to have clear liquids). She has some pain by her old stoma area but is still on the PCA. Tonight she is running a low grade fever but so far the doctors aren't too worried. She looks and feels so much better than she did the first surgery. But the nurses have to keep reminding her (and me) that this was also major surgery and will take time to heal.

She had a roommate until this afternoon. A very sweet girl who has an ileostomy and a urinary tract infection. Not too sure what she is in for. She also has cerebral palsy and doesn't communicate well. Most of the night and morning she had a wailing type cry. The nurses moved her today to another room (no, we did not say anything). So for now, Bratcat is in a huge room by herself again. We moved to the other side (where she was for her first surgery). It is a bit more open and right next to the bathroom.
--Mom of bratcat (17 years old) and nonamejames (19 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds
Step 2 scheduled for November 10
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 11/12/2008 8:12 AM (GMT -6)   
What's a PCA?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, Osteoarthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 11/12/2008 11:09 PM (GMT -6)   

A PCA is an IV patient controlled analgesic (at least I think that is what it is). It is the controlled substance drugs. The patient "chooses" when they want to have the drug. The pump is set to only administer at a minimum setting (in Bratcat's case it is no more than every 6 minutes). She can press the button as much as she wants but it won't dispense anymore often than every 6 minutes. But if she thinks she can go longer than that she doesn't have to take the PCA. This also helps because she doesn't have to wait to ask the nurse for meds and then wait for the nurse to bring it. Her PCA right now is morphine.

Bratcat passed gas today! That was the criteria to move on to clear liquids. Her potassium level was a bit low so the doctor wanted her to have potassium administered. Unfortunately the surgeon was in surgery and had not OK'd the clear liquids so the first 2 doses (of 3) were done by IV. They burn going in and it was the first time that she got upset. By the 2nd bag, the surgeon had OK's potassium orally. Much easier to handle. She's been walking alot today. It's amazing how different she is from her first surgery. She has some discomfort but can get herself up and down off the chair, walk the floor (at a pretty good pace), and is much more social. Today they changed the top dressing of where her stoma was. Tomorrow they will change the whole thing and we will see what it looks like.

She had another roomie this morning. An 8 day old baby with jaundice. Then he was moved to PICU and she now has 2 new roommates (the room is for 3). One is a 5 year girl with asthma. Her parents are hoping she can go home tomorrow. The other is a baby (under 1). They just came in so we haven't met yet. The floor holds 14 beds and they are all filled. When Bratcat was here in July there were 4 patients in total. Big difference!


--Mom of bratcat (17 years old) and nonamejames (19 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds
Step 2 scheduled for November 10
 
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 11/12/2008 11:32 PM (GMT -6)   
A very speedy recovery : )
Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 11/13/2008 12:39 AM (GMT -6)   
Im glad to hear she is up and walking hopeing she has a speedy recovery,
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.

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