Thank you everyone for your good wishes and prayers. That means so much to our family. Bratcat's surgery is at 1 pm tomorrow. It was originally supposed to be at 3 then the surgeon's office called about a week ago to move it up to 2 pm. Then on Friday they called again and changed it to 1 pm. So we have to be there 2 hours earlier at 11. This should be a much shorter surgery.
Bratcat is on clear liquids today. She has to take magnesium citrate at 6 pm. Anyone know how "yummy" that is? She's never had to take that before.
She's doing great but I'm channeling all the stress. My face breaks out (rosacea) once in awhile especially under stress. I was fine looking on Friday. Since Saturday I look like a teenager in need of a dermatologist. The dermatologist did give me ointment in the past and I have started using it again. So now I look like a greasy, red-faced person in need of a dermatologist! Then last night I started to get a small rash (hives?) on my arms and today it is near my neck. The hospital probably won't even let me near Bratcat at the rate I'm going.
Does anyone know of something other than Benedryl that might help? My body doesn't react well to Benedryl but I know it will help.
Anyway, I will keep in touch. Hopefully they will put her back on the peds floor. They have computers and toys and snacks and videos and lots of other fun things to keep us busy!
--Mom of bratcat (17 years old) and nonamejames (19 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Flared Fall 2006, Fall 2007, Spring 2008
Asacol, Rowasa, hydrocortisone enemas, prednisone, 6-mp, Remicade
7/3/08-Step 1 j-pouch surgery and no more meds
Step 2 scheduled for November 10
Son nonamejames was diagnosed with Crohns in Spring 2008
Asacol, Pentasa, 6-mp