Arthritis/Fibromyalgia with ulcerative Colitis?

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Lori120
Regular Member


Date Joined Apr 2008
Total Posts : 29
   Posted 11/6/2008 1:38 PM (GMT -6)   
Trying to find people that have arthritis and/or fibromyalgia with their UC. Also, the type of arthritis. Also, joint or bone pain.
 
I have UC and then experienced joint, bone and muscle pain. Been diagnosed with fibromyalgia and osteoporosis. Also been diagnosed with rheumatoid arthritis by one rheumy while two others say I don't have it. I have read that UC is common with RA.
 
Need to hear other peoples experiences so I can possibly gain more knowledge with my own condition. My docs are running in circles around me.

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 11/6/2008 1:43 PM (GMT -6)   
Joint pain and inflammation is not uncommon with UC. Fibromyalgia or chronic fatigue are also often related. Osteoporsis can be caused (or at least sped up) by steroids prescribed for UC.

I've experienced inflammation of the lower spine in relation to a UC flare. I've also noticed joint pain, stiffness and popping off and on. Mine seems to get worse if I consume dairy.

Have you tried supplementing with Omega-3? It's excellent for reducing inflammation in the colon and in the joints.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 11/6/2008 1:55 PM (GMT -6)   
I have been just recently diagnosed with osteoarthritis - yesterday to be exact. I have also been told I have fibro by a couple of docs but I don't seem to fit the profile so I'm not sure. RA is an auto immune disease much like Uc so it is not unheard of to have more then one AI condition. If you go to the ccfa.org website you will see that RA and AS are the most common forms of arthritis seen with Uc or Cd.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 11/6/2008 2:10 PM (GMT -6)   
What is AS? I have been having a lot of joint pain but I haven't talked to the doctor about it
Jessica 27/F
Remicade
Lialda 2.4GM
Citalopram 40 MG
omeprazole(for acid reflex)
Tried (Entorcort EC 9ml/day and Prednisone, Asacol ,colazal, Culturelle, dicyclomine)


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 11/6/2008 2:32 PM (GMT -6)   
ankylosing spondylitis <-clickable link


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Lori120
Regular Member


Date Joined Apr 2008
Total Posts : 29
   Posted 11/6/2008 3:21 PM (GMT -6)   
I'm taking fish oil, 500mg twice daily. Also have gone on an "anti-inflammatory" diet. Less pain. I do have a positive RA Factor in my blood. I was on Asacol but caused my stomach and acid reflux to really get bad.

I get red knuckles and redness in other areas but don't swell. My CRP and Sed Rate are normal. I take CO Q-10 (100mgs) p/day. Took myself off of all my other meds and decreased my xanax a lot! My liver enzymes were too off. Had to get it back down. Haven't taken enough steroids to give me osteoarthritis. Just took nuclear whole body scan and it showed all joints degenerated. I know I have spinal stenosis, DDD, herniated discs. Lost an inch of height this year and now have scoliosis(typo?). Need an MRI of my spine but no one will give it to me. Have continuous feelings of electrical impulses coming out of my entire spine and then going to the rest of my body. My hands, feet, nose and ears get so freezing cold so many times. Wondering if I'm tending towards Raynauds.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5962
   Posted 11/6/2008 4:40 PM (GMT -6)   
     Diagnosed with osteoporosis a few years ago.  I don't take any meds for it, just calcium.  Afraid the meds they give you for osteoporosis will cause ulcers in my esophagus and I have enough ulcerations in my rectum.  Fell right after I was diagnosed with osteoporosis and suffered a compressed fracture of the lumbar spine.  Thank God, I really have no pain in my back or joints.  I do a LOT of walking and that probably helps.  I'm sure all the prednisone I have consumed since being diagnosed with UC contributed to the osteoporosis.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 11/6/2008 7:00 PM (GMT -6)   
Apparently once you have one auto-immune disorder it's not all that uncommon to get others. Makes sense when you think about it. The health section of the newspaper I read has a sporadic column about living with chronic illness and one essay was written by a woman who had MS, and then developed UC. I really felt bad for her, I couldn't imagine having UC along with an illness that affects your ability to move around quickly -- when in flares I often have to bolt for the bathroom at top speed.

Meesh
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08
10 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08; 8/15/08, 9/26/08; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Tylenol Arthritis Formula or Tramadol as needed for arthritis pain; Rowesa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;
Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro

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