I'm getting the second infusion shortly and then will come the 6 week gap and eventually 8 week gaps between infusions, assuming all goes well. So far the only change- which I suppose is not to be scoffed at- is going from multiple D a day to one or two soft formed stools. But nasty gut pain continues even on 20 mg pred. I'm hoping this 'recharge' or priming will really kick in but am worried that the long gaps between infusions will not last. Or does the priming effect take a while to kick in but it builds momentum? I guess I just have to wait and see and keep being patient. Desperately looking to get off the pred once and for all- only time will tell if it's that or the knife.
Pancolitis 20 years ago, full med-free remission 10 years,
Flaring/simmering on and off ever since, allergic to all 5ASAs
10 20 17.5 15 12.5 10 mg 8 7.5 20 mg pred, 100 mg Imuran
Probiotics (Primal Defense and others), TSO,
Turmeric/circumin, boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie