Hey Vin- I have been in the same boat. They waffle on being positive it is UC even though they are fairly sure in most cases... but they waffle over some conflicting signs. I too have some patchiness in scopes, of non-inflamed areas. I insisted on a Prometheus blood test which was 95% sure it was UC, but both of my GI's are not all that impressed by this test in spite of its claimed reliability of 95% of whatever. However I am still being labeled as UC which for now gives me hope that I still have the surgery option available. heck, I guess even those with indeterminate (not sure if it's UC or CD of the colon) colitis can't be turned down the surgery option if it is completely refractory to treatment. I went on the jpouch forum and have learned that even if it turns out to be CD, it is not inevitable that it turns into CD outside the colon later- but that can happen which would, to put it mildly, be a bummer. What a freaking' ridiculous disease.
Pancolitis 20 years ago, full med-free remission 10 years,
Flaring/simmering on and off ever since, allergic to all 5ASAs
10 20 17.5 15 12.5 10 mg 8 7.5 20 mg pred, 100 mg Imuran
Probiotics (Primal Defense and others), TSO,
Turmeric/circumin, boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie