Firstly Hello all and thank you for reading my post. Despite being a long term UC person I have only discovered this site while in Hospital...now on my 4th significant flare of life.
I have put my history in the signature box and would dearly like some of you insight or perspective on where I'm at ?!
I appreciate we all have a same/similar disease but clearly have different outcomes and suffering.
I'm a fairly positive person with a busy life, a couple of young kids, busy maybe too stressful job. I have had UC my whole adult life, Dx at 20 nd now 37. Typically I have had a very good quality of life between bouts. When hit I end up in a bit of major flare and then end up in hospital. By and large I have had 7 Days of IV steroids, react well - Blood and mucus goes away and bowl returns to fairly normal over a month or so while reducing on Pred.
Of course all through the years UC reminds me its there..sometimes urgency or just cramps (general smoldering !). But also perhaps quite fortunately in good shape. I get Endoscoped every year and as recently as June was quite. Then BANG in August 2008 and now in hospital. Sorry for waning on but I would like to ask -
1) DO others have this profile ? or is a complete collapse and sugery likely at some point ?
2) Is this type of Steroidal intervention ultimately going to fail sometime ? I know it's to be avoided but....we've UC !
3) I've heard of people not reacting to steroids...is this something that develops through my type of use and intervention or is it something that is binary ie it works / does not work for someone ?
Perhaps my tale will also help others who suffer the way I do. My father also has UC. Diagnosed when he was 30 now 67. He has pretty much medicated himself over the years with Predfoam enemas' I suspect its all lower left side. But he seems to do ok. I think I got a heavy does of the gene !!! Thanks Dad.
Thanks in advance for your input, this is a great www site and positive inspirational ....particularly when your down right
Dx Proctitis - 1989
Dx - UC 1992 - Left Side Moderate
Dx - UC 1996 - Pan Colitis - Severe
Remission until 2005 (couple of mini flares inbetween)
DX - UC 2005 - Pan Colitis - Moderate Severe
DX - UC 2008 - 43 CM Moderate...
All of the above required a hospital stay and 5-7 days 4 X 100mg Steroids, Asacol and Prefoam Enema's (20mg).
I take predfoam for mini flares and rarely have had to take pred tablets inbetween remission
On Asacol 2 x 3 times per day since 2005