Scared to death

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Mike2000
New Member


Date Joined Nov 2008
Total Posts : 1
   Posted 11/10/2008 11:37 AM (GMT -6)   

After many years of suffering from episodes of diarrhea last April I was diagnosed with UC. The first biopsy said inconclusive for dysplasia. The treatment with imuran seems to be working fine, no symptoms at all. Last week I had another colonoscopy and the results of the biopsy said high degree of Dysplasia. The doctor told me the colon has to go...I am still shocked and scared. I'm not sure what to do, I schedule an appointment to go se the surgeon next week. My main concerns are the surgery and the quality of life after that. We are expecting a Baby for February so I am concerned about recovery time. If anyone could tell me of their experience I would really appreciate. Thanks


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 11/10/2008 11:55 AM (GMT -6)   
So sorry you are suffering. From what I hear, it sounds like quality of life with surgery is better than lingering with this as I have! Good luck to you ~ congrats on the new baby coming
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 11/10/2008 12:00 PM (GMT -6)   
I recommend that you visit www.j-pouch.org There are several members there who had colectomies due to dysplasia. I opted for surgery 7 years ago and have never regretted my decision. I am very physically active, eat what I want, and take no medications.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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