Questions on symptoms

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anxietyridden
Regular Member


Date Joined Aug 2007
Total Posts : 171
   Posted 11/10/2008 8:51 PM (GMT -6)   
Hey all...never posted here before, I've posted on the IBS board mainly. I have some questions on developments in my symptoms and my doctors treatment of the symptoms. A bit of background first -

I always seemed to be prone to having diarrhea, ever since I can remember. It wasn't anything too unbearable until college started in 2002. I started having horrible cramping and intense bouts of diarrhea, really bad urgency, etc. It came to a head when I woke up with horrific cramping one night and the worst diarrhea of my life - I blacked out from the pain in the dorm bathroom and then later crawled back to my room and called my parents. Was referred to a GI and diagnosed with IBS after being blood-tested for Celiac marker and having an upper GI test done. Those are the only tests I can remember having - I was not asked to give a stool sample nor did I have a colonoscopy (did I spell that right?). They told me to try a gluten free diet anyway and try cutting out dairy and I saw a little bit of relief but not much. Mainly just learned to manage my symptoms, relax during those intense cramping times (using slow breathing and envisioning my colon/bowels relaxing...read that technique in a book somewhere). I was taking a ton of Immodium. Eventually I was put on an anti-depressant as well because the doctor thought perhaps anxiety/stress was contributing to the "attacks" (my term, not the doctors). Again a small bit of relief, not much. I started noticing a bit of a pattern in that some days I would wake up with a horribly achy body and inevitably would have the terrible D that day. Days I woke up with aches and pains I'd just stay home and in bed to be close to the bathroom. I went back to the doc for the achy body complaint in 2005, he tested for lyme then wrote it off as anxiety when that came up negative. I told him the correlation I noticed between the pain and the bowels, and he chalked it up to anxiety AGAIN. After a while I had a period where the symptoms seemed to resolve for almost a year and I was so happy and thought maybe it was just anxiety after all! But now they're back. Actually they have been back for over a year now. When the symptoms came back it was more in the form of constipation for days and then horrific diarrhea, to the point where I would be sitting on the toilet sweating, shaking, trying not to vomit from the cramping. This cycle just kept going. Then I had a horrible stretch where I felt constant colon cramping and pain and a feeling I needed to empty my bowels and all that would come out would be a tiny bit covered in mucus - trying to actually go was agony, felt like my colon was cramping, I was sweating, feeling like I could puke. I'd have to leave work and go home to sit on the toilet. THEN I noticed tenderness and a "lump" in my left lower abdomen. Reluctantly went back the the doctor (was feeling crazy at this point), told him the symptoms, he said my IBS was just acting up and thought the "lump" (which he admitted to feeling) was on my ovary. Sent for an ultrasound, all came back normal. Sent for a CT scan to check my lymph nodes, came back normal. When I finally spoke up and said I was almost certain the tenderness and lump was related to my bowels I was referred back to a GI. He felt the lump. He said he "had no idea what it was" and called in another doctor in the practice. He also "wasn't sure." They said my only option would be exploratory surgery if it didn't get better/go away. confused What? No thanks. GI said I did not need a colonoscopy because I was "too young." (I'm 24). I left there feeling frustrated, that was over this past summer. Nothing has gotten better and I went to the doctor yet AGAIN last month for fatigue, feeling achy, irregular bowels, etc. I mentioned more than once the correlation I noticed between bowels and body aches but was written off for the most part. Basically got the whole "And have you been more anxious than usual lately?" or "Did this get better or worse when you started the anti-depressant?" Argh! He did some blood tests, only thing that came back was that I am anemic and he started me on Slow-Fe 2x per day.

OK now for another issue. I have, for a while now, had blood ON my stool and on the TP after a bowel movement. Almost every time. I have always just thought that I must have fissures or something due to frequent diarrhea and forceful BM's during constipation. I haven't considered the fact that blood could be IN the BM, just thought it was on the outside of it due to passing by a fissure and blood coating it. Sometimes after I've wiped I'll have some blood drops/marks in my underwear later, but that would happen with an irritated fissure right? Well within the past 2 months something else has happened. I am a runner, and several times after I have run I've noticed that my butt has bled. The first couple times it wasn't a lot and I thought "OK I irritated the fissure with running and it bled, whatever." Well yesterday I ran in a race and during the race I could FEEL the blood coming out, trickling, sometimes felt like gushing. I was disconcerted but kept running, thinking maybe it is just sweat?? I finished and (I was wearing spandex tights) put my hand against the bum of my tights and my hand came away with blood on it. Then I got concerned. I didn't go to the bathroom right away, didn't want to draw attention to myself, so wasn't sure of the actual damage. I started to feel lightheaded and then started to get the horrible colon cramping and told my ride I needed to get home right away. She (sister) let me put her sweats on over my tights for the ride home. By the time we got home the blood had soaked through to the sweats as well. TMI might be coming up - I got home and started to clean myself up, and it seemed as if I had also lost some fecal matter with the blood while I was running? I was so embarrassed. It wasn't a lot but...well, you know. Within a few minutes I had some bad diarrhea. I've felt crampy since then.

Now I am going to the doctor tomorrow, I know I need to. But I guess I want to know if anyone has experienced bleeding from the rectum at any time other than while having a BM? Just random bleeding? I'm a little concerned, especially b/c I've been to the doctor so much and two different GI's and still nothing...Anyone else have a similar bleeding experience??

Any advice appreciated...

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 11/10/2008 9:01 PM (GMT -6)   
First thing you need to do is demand a colonoscopy. Don't take no for an answer. You need to be examined as thorough as possible and to know what really is going on, you need the scope.
 @--->--SHERRY--<---@
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anxietyridden
Regular Member


Date Joined Aug 2007
Total Posts : 171
   Posted 11/10/2008 9:12 PM (GMT -6)   
Thanks Red. I always just feel like the doctors think I am crazy and they should know better than me...but people are always surprised when I say I have an IBS diagnosis but never had anything ruled out by colonoscopy. I will take your advice and demand one. Well, I'll be as demanding as I can. I have this passivity problem.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 11/10/2008 9:13 PM (GMT -6)   
Take someone with you when you demand one. Sometimes just having someone there as backup can make one bolder! :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, Osteoarthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 11/10/2008 9:14 PM (GMT -6)   
Oh forgot to mention - no you are not too young. I had my first scope at 22.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, Osteoarthritis
To help Healingwell - click here: DONATE
 
 
 
 

 
 


anxietyridden
Regular Member


Date Joined Aug 2007
Total Posts : 171
   Posted 11/10/2008 9:16 PM (GMT -6)   
That's a good idea, maybe I will take my sister. She can be much bolder than I am and is the only one who truly knows the extent of what I have been dealing with. Thanks!

ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 11/10/2008 9:44 PM (GMT -6)   
In UC hemorrhage usually only occurs during a severe attack. The inflammatory process goes deeper into the gut wall and affects larger blood vessels rather than subsurface capillaries. If you are bleeding like this and your GI's are not concerned, u need to look for another GI doc immediately! If the bleeding persists and copious amounts are seen, you should get medical treatment, as a hemorrhage may be occurring. You need to find out with utmost speed whether a perforation has occurred. This is serious and definately nothing to take lightly! I am not going to get into the dynamics of what could happen if a rupture/tear/perforation of the gut wall were to occur...its bad and called peritonitis. Act accordingly.

The "lump" could be a slow-formed free perforation. The body controls peritonitis by creating an abscess. This is in fact a boil. It is a collection of pus that protects the hole of the gut wall. It can be microscopic or in extreme cases, a golfball.

Without proper diagnosis from your doctor these symptoms are only speculation and are in no way meant to scare you or offer advice. A qualified professional should be the determinate factor here.

Bleeding --a little-- is common for UC and IBD as the ulcerations and capillaries are inevitably gonna bleed. IBS has no blood. Please don't wait until this gets worse before you seek "knowledgeable" assistance.

As far as the too young thing, I got scoped when I was 17. I can't believe your GI doc would test you for lyme and not perform a stool sample or scope you?!?!?!?!? Especially with your symptoms! What kinda GI doc is this? Did he/she get their degree online??
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


Vin
Regular Member


Date Joined Jan 2006
Total Posts : 312
   Posted 11/10/2008 11:50 PM (GMT -6)   
Wow your doctor makes me sick. Get to another dr. right away..

are you running a fever? id be suprised if you weren't. How many stools are you passing a day?

If you can't see another dr right away go to the E.R if you are in ALOT of pain, running a decently high fever(100+), or you have higher then 10-15 movements a day with blood. Get some treatment and hopefully a diagnosis. Ask if it could be Colitis or Chrons to get them pointed in that direction and give them your history.

Vin
UC/Chrons since age 22, now 27.  Several huge flares since then.  Entire colon diseased at some point from cecum to rectum. 
 
Currently tapering prednisone(12.5 mg from 80 mg).  Also just starting 6mp again(75 mg) and lialda.  

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