I have started on 20 then gone to 30 if I didn't get results (and that is the way is usually happens). Even 30 does not kick it quickly but the side effects are more tolerable than going higher. At about
15 my side effects subside (moon face, thumping heart, hunger).
I kind of prescribe my own doses after all these years, along with some attempt to follow the doc's advice...
While the side effects are uncomfortable, for me they go away and it is well worth it if your flare is bad. When you can't do anything without needing a bathroom every hour or more, that is true misery. Or being constantly worrying that you need one, as you say!
Going to unfamiliar places is tough, and sometimes just not worth it. Vegas is actually relatively easy, there are bathrooms everywhere! (if you can tolerate the flights). It's road trips I HATE. I hope your husband is as compassionate as mine is, he never complains.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares.
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills.
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.