What were your bathroom habits before UC?

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glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 11/12/2008 8:57 PM (GMT -6)   
I only went about once or twice a week.  I never felt uncomfortable, once a week was normal for me.  I would LOVE to have that again...lol.
Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 


Mommy pooh
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 11/12/2008 9:42 PM (GMT -6)   
I was same as you (once or twice a week). Never had any bowel problems before the first flare. I know a lot of people on here say they had always had problems before discovering UC but that wasn't my case.
  • 25 years old, married, Mommy to 20 mo. old 
  • Ulcerative Colitis since Sept. 2004
    • 1st flare Sept-Nov 2004
    • 2nd flare Aug. 2007-July 08 
  • Currently taking:75mg 6MP, 4 Lialda, Digestive Advantage Chrons/Colitis, Loestrin 24, and allergy shots every third week
  • Past meds: Pred., Entocort, Dipentum, and Canassa
  • 10/6/08 Found a 1cm kidnet stone in right kidney

 


goften
New Member


Date Joined Apr 2007
Total Posts : 18
   Posted 11/12/2008 9:46 PM (GMT -6)   
I've always gone daily. Also I've always had to go in the middle of a meal. My parents used to laugh when I'd get up in the middle of dinner and go to the bathroom. "making room for more?" they'd say. Now they wish they'd have done something about it, thinking it was a sign. But I tell them now, who would have put those two things together - UC and "making room for more". In between flairs I average one to two times a day.
matt
Diagnosed in 2003 with Pan UC -
last Colonoscopy was 8/20/08 - lower 8" infected
currently at the tail end of my third flare
40mg Prednizone
50mg Mercaptpurine
3x3 750mg Colazal
100mg Hydrocortizone enema twice a week
Fish Oil with Omega 3
daily vitamin
St. Johns Wart (was feeling down -thought I'd give it a shot)
 


doors12
Veteran Member


Date Joined Jul 2006
Total Posts : 698
   Posted 11/12/2008 9:59 PM (GMT -6)   
Mine was also once or twice a week only, before UC.
 
That's why I was so surprised to end up with this DD.
Diagnosed with Ulcerative Colitis 6/2006 at age 26 after sudden E.R. visit
~Pancolitis (Mild to Moderate)
 ~I had Mono in 2000
On Colazal 3x3/day; Folic Acid 1mg; Calcium/Magnesium/Zinc combo
In remission about 2-3 months after E.R. but not back to normal!
 
~Interested in finding a cure/making sense out of U.C. and philosophical and psychological aspects of UC and "Stress" and Personal Development issues with Chronic Illnesses. 


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 11/12/2008 10:33 PM (GMT -6)   
I use to go every other day. That feels like it was soooo long ago but it was really only 4 years!
Sam
19 year old college student diagnosed with ulcerative colitis at 16
Remission since January/April 2006
400mg Asacol 2x, 10mg Elavil, 75mg Effexor XR for GAD

"If you don't like something change it. If you can't change it, change your attitude"
Maya Angelou


ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 11/12/2008 11:17 PM (GMT -6)   
I used to go about 1-2 times per day. In remission, I do the same. I have noticed that the structure and color of my BMs are alot different than when I was younger and living with dormant UC.
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 11/12/2008 11:17 PM (GMT -6)   
I used to go once a day pretty reliably but that was about it. However, for a few years before the UC showed up out of the blue, I started to get sensitive to some foods - I think some low grade lactose intolerance - and get more flatulence. But no IBS or anything. I had an almost 10 year remission after my first years of UC, and for six months before my remission ended, I had IBS and loose stools, and then full blown UC again.


Pancolitis 20 years ago, full med-free remission 10 years,
Flaring/simmering on and off ever since, allergic to all 5ASAs
10 20 17.5 15 12.5 10 mg 8 7.5 20 mg pred, 100 mg Imuran
Probiotics (Primal Defense and others), TSO, hookworm
Turmeric/circuminboswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie
 
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/13/2008 1:24 AM (GMT -6)   
I was a once a day gal, with total bowel control, for example while waiting at the bus stop if the "urge" came I'd be able to control is and within seconds the urge would pass then as soon as I was near a toilet I could "go" or I could wait until later that day for the "urge" to come up again and go...boy do I miss those days...it's why I miss the 80's so much (well, that and big hair LOL)...and being able to eat as much as I wanted and what I wanted without gaining an ounce...I had a great metabolism and I didn't have to exercise, mind you I did a lot of walking/taking the bus but that was pretty much my only form of exercise once I finished school...sorry for the ramble.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Asia
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 11/13/2008 2:34 AM (GMT -6)   
That's a tough one, there never was a before UC for me.
However, I'm pretty much in remission since starting my Imuran. For the first time ever I go 1-3 times a day. I'm in awe. And they're usually formed too! It's so weird.

Suffered for my whole life before being diagnosed.

Told to "Eat more fibre "



Currently on:

Salofalk
1500mg x 4/day
Entocort 6mg once a day
Imuran 150mg once a day


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5968
   Posted 11/13/2008 8:18 AM (GMT -6)   
     I used to go about twice a week too.  My doctor said it was normal for me.  However, if I got nervous about something, it would always trigger diarrhea.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


anglfrmhvn69
Regular Member


Date Joined Dec 2006
Total Posts : 337
   Posted 11/13/2008 8:27 AM (GMT -6)   
i always went once a day no problems until this disease hit me out of the blue.

pamela

 i was diagnosed with uc on april.16,2003. had my sec. colonoscopy on aug.22,2007 came back normal.

currently flaring on prednisone 60mg x1 week,40mg x1 week, 20mg x1 week.

i also take nexium 40mg once a day for acid reflux.

take one multivitamin a day

                                                                       

 


lambkins
Veteran Member


Date Joined May 2008
Total Posts : 574
   Posted 11/13/2008 9:41 AM (GMT -6)   
I was a once a day after breakfast and never had problems before this disease
  
  Diagnosed 22.5.08 with Lft sided U/C
  Meds Predfoam 20mg 2x day stopped started Mesalazine supps 1gm 26/6/08
  Mesalazine 400mg 4 tabsx2 day
  Domperidone 10mg as needed


BevJay
New Member


Date Joined Sep 2007
Total Posts : 7
   Posted 11/13/2008 9:41 AM (GMT -6)   
I was diagnosed with UC in my early 50's, but now believe I had it for years.   The BM's and urgency increased as I got older.  I never had an accident, but many times I just barely made it to the bathroom.    

zeebeez
New Member


Date Joined Jun 2007
Total Posts : 11
   Posted 11/13/2008 9:44 AM (GMT -6)   
Before UC - at least 1 BM daily.

And like Goften - I remember as a child, so many times, having to use the bathroom in the middle of a meal. I don't think I've ever been 'normal' turn
42 yr old female diagnosed w/UC (30cm) in 2006
Remicade, Colazal - 12 daily, Imuran - 100 mg daily,
Mesalamine enemas - 8 g (2 daily A.N.),
Dicyclamine - 20 mg (up to 4 daily A.N)
Prednisone - last dose in 7/08
OTC Probiotic Acidophylus, Omega 3 Fish Oil, & Super B Complex vitamins


cycling_sasquatch
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 11/13/2008 12:44 PM (GMT -6)   
Once a day or once every couple of days. I hated going at school, so every morning I'd go before, whether or not I had to. Probably why I came down with hemmoroids when I was 20. Also on vacations or trips I could go days without going. I guess I liked familiar places to go (upstairs at home.) Now I don't give a sh-- where I go sh--. I got over that fear REAL quick with UC!
UC diagnosed Dec. 2006
Azathioprine 200mg/day
Multivitamin, fish oil, fiber supplement, Nature's Way Primadophilus Optima, Digestive Advantage Crohn's & Colitis


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 11/13/2008 12:51 PM (GMT -6)   
You know, I honestly don't remember it was so long ago, I think I went a few times a week but it's hard to remember pre-UC when I'm flaring.. it almost seems like there's never been and never will be anything else.

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Sulfasalizine 3000mg/day, Azasan 100mg

 
 


disco
Regular Member


Date Joined Jan 2008
Total Posts : 154
   Posted 11/13/2008 1:11 PM (GMT -6)   
I used to be a once a week guy, they were huge, i wasn't allowed in certain houses as a kid because I caused plumbing problems.  Those days are long gone.

Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort
40 MG Pred cycle stating 3/26
Remicade


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 11/13/2008 1:41 PM (GMT -6)   
I would say two to three times a week for a LONG LONG time...I even wondered if I went enough...funny to think of that now...however I do think looking back that I had a few very mild flares in my mid 20's 5-6 years before I was diagnosed...at that time I just thought it was stress and nerves and did not realize it may have been the early warning signs of something worse...
Dx 2006 right after the birth of my daughter
Lialda varies 2-4 pills a day
Canasa on and off as needed
Probiotics
Just tappered off pred


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/13/2008 2:34 PM (GMT -6)   
Wow, a lot of you never really had normal bowel function...going only a few times a week or less is basically borderline constipation (or even definite constipation) at least that's what it's considered by that British doc from the show "you are what you eat".

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 11/13/2008 5:18 PM (GMT -6)   
I'd take constipation over diarrhea any day of the week. :)
Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/13/2008 5:25 PM (GMT -6)   
LOL, ya until you actually have constipation, my gawd it's painful and honestly both D or C suck big time...I saw a show on IBS and they interviewed a lady with chronic IBS-C who said the longest she went without having a bowel movement was 30 days and she said she never felt pain like that in her life and even thought of suicide.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 11/13/2008 5:42 PM (GMT -6)   
I have never been what would be called regular. Always been about 3 a day, not usually formed.

I never had a formed poop in diapers. Not one. There was one day this year I had one hard poop in a day and I was a little freaked out. Hard poop sucks! Could have to do with the sturictures but I am kinda grateful for not fully formed stool. ooh i hate calling it stool.

According to my GI anywhere between 2 a day and 1 every 2-3 days can be normal. It depends on the person.

My dad has always gone every 3 days until he had to take a fiber supplement. He was so funny! He realized that he's just been a little constipated his whole life. He was so happy to find fiber supplements!
Kelly, 30, suburbs of Chicago, IL

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, no more pred after two years!!!! Off imuran as remicade is working!
Prontonix once daily for acid reflux, zofran 8mg every six hours for nausea
Remicade started 3/1/08...just had 4th infusion


vega19
Regular Member


Date Joined Sep 2008
Total Posts : 91
   Posted 11/13/2008 5:43 PM (GMT -6)   
I was once every other day for as long as I can remember before UC. In remission I am once a day with formed stools but softer than they were before UC.

31 year old female diagnosed with UC (entire colon) Feb 2008
(4) 400mg Asacol 3x a day
Remicade 10mg/kg every 8 weeks
Omega 3 supp, calcium supp, VSL 3
Prednisone 16mg (tapering 2mg every week)


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 11/13/2008 8:44 PM (GMT -6)   
I truly miss my morning routine: Wake up, brush teeth, use the toilet for my daily bm. Then shower, breakfast, off to work. I was so regular in the mornings that it never occurred to me that my bowels could betray me like they have.

Now, I wake up, use the loo, wash my hands, brush teeth, use loo, take shower, go make breakfast and pack it for later, use the loo, check my email, loo one last time (whether or not I think I need it), then off to work. I won't eat breakfast until I've been at workfor at least 2 hours. After breakfast, it's the loo again. Through out the day, I drink around 2 gallons of water spread out from waking to sleeping. I'll eat another meal a few hours after my breakfast, and do some snacking through out the day. One more loo trip a hour before my shift is over, and home. Then...wait for it...another loo trip before bed, then bed.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Meds & supplements: Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort, Prednisone, flaxseed oil, L-glutamine.


doors12
Veteran Member


Date Joined Jul 2006
Total Posts : 698
   Posted 11/13/2008 9:04 PM (GMT -6)   
Probiotic-

I noticed you crossed out turmeric and circumin from your signature

I just came across an article on turmeric and had been considering giving it a go. What was your experience with it?
Diagnosed with Ulcerative Colitis 6/2006 at age 26 after sudden E.R. visit
~Pancolitis (Mild to Moderate)
 ~I had Mono in 2000
On Colazal 3x3/day; Folic Acid 1mg; Calcium/Magnesium/Zinc combo
In remission about 2-3 months after E.R. but not back to normal!
 
~Interested in finding a cure/making sense out of U.C. and philosophical and psychological aspects of UC and "Stress" and Personal Development issues with Chronic Illnesses. 

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