I would agree 100% to keep a food diary. My mom kept telling me I should be doing that and it wasnt until then that I figured out that wheat, gluten and diary were really kicking my butt.
My grandmother who is a retired nurse harped on my mom for years about
how I probably had celiac disease (I had a lot of trouble gaining weight and had mutliple issues with the big D) but the problems would eventially go away but then come back up a few months down the road.
Skip ahead 15 years to my last sester in college- I got really really sick- lost 30lbs couldnt keep food inside me and basically was a miserable mess. PCP had no answers, the GI doc did an endoscopy and colonoscopy and found NADA- well he said there was slight inflammation under the microscope but nothing that should concern you. But then he went on to say "You have Ulcerative Colitis and here are some meds." Needless to say I did my own reserach, read about
the SCDiet, gluten free diets, paleo diets, and pretty much anything else that had to do with food. One day while researching I found a link to something called Microscopic colitis and gluten intollerance. I got the address for a DR in Texas (Dr Fine) and did some stool tests (that are supposedly outdated according to my PCP). Well these outdated tests showed that I had a major intollerance to gluten and another intollerance to casein (protien in milk). We also tested for soy, eggs, an yeast all coming up negative. The stool tests measure antibodies to different protiens to determine intollerances.
I am now on my 2nd year with the gluten free and dairy free diet. My condition improved 10 fold within 6 months. And within a year I was back playing baseball- I never thought I would play again because of my stomach- but I am now part of a city league and travel around the west coast in tournaments.
There is some speculation that microscopic colitis could be a precursor to Celiac disease- others think that UC and Crohns could be the end result of microspic colitis but no "solid" research has been done. It just got me wondering why these people who pused the SCDiet and gluten free diet and paleo diets, didnt have many or any symptoms and were in remission for years.
Most of the time these diets are not accepted by the medical practices around; however, I am fortunate to have a GI doc (now) that supports my efforts to obtain remission. He even said that he would recommend a change in diet to patients who either dont respond to meds or want to go a different route.
In no way am I saying this is a cure all for everyone. I can say that it helped me and many others and just wanted to share with anyone who would listen. As you can see I was once a very very active member on this board. I tried all sort of meds and such before i found something that works for me. DONT STOP TAKING YOUR MEDS IF YOU WANT TO GO THE ROUTE OF THE DIET- this is not a substitute for meds but rather something to supplement with your meds until you feel comfortable to wean yourself off of the meds. Again do this under medical supervision.
If anyone is interested in more information dont hesitate to contact me. More info on the tests I took can be found at: https://www.enterolab.com/Home.htm
Thanks for taking the time to read this.
March 2005 Dx'd with Ulcerative colitis
Took: asacol, colazal, rowasa, entocort, VSL probiotic
2.14.06 Test results positive for gluten and dairy sensativity! (enterolab)
July 2006 normal c scope and biopsies
Taking: Wellbutrin 150 mg Ativan .5 mg as needed
Gluten Free Dairy free since May 20, 2006 and feeling great