Gluten Explained Here

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ucwarrior
Regular Member


Date Joined Jul 2008
Total Posts : 298
   Posted 11/13/2008 10:28 AM (GMT -6)   
I wanted to start this post to set the record straight on the seemingly popular Gluten-Free diet.  I feel that some may be confused or led to believe that this is a cure-all dietary aid for UC.  I hope this provides good information for all who read it and clears up some questions concerning UC and food allergies.  I will try to make the jargon as user-friendly as possible.
 
Some individuals suffer from gluten intolerance.  Gluten intolerance is called celiac disease.  It damages the sm. intestine leading to malabsorbtion of food.  It is often misdiagnosed as IBS due to the similar symptoms it produces.  If one does not have a gluten intolerance, the gluten-free diet will have little to no effect.
 
Celiac disease is genetic. 
 
Gluten intolerance can also be developed.  Episodes of severe diarrhea can scrape off layers from the mucosal lining of the gut wall.  This lining contains enzymes that digest fruit, dairy, and wheat.  The lack of ability to make these digestive enzymes can cause a form of "acquired" intolerance to gluten, lactose-based products, and fructose (fruit sugar).  When these foods are consumed, and not broken down and absorbed, it passes thru the sm. intestine into the colon.  Bacteria and yeast in the colon ferment these nutrients, multiply, and sometimes overpopulate the bowel with an infection of gas-producing organisms. Sometimes this bowel infection is enough to activate a dormant food allergy. 
 
Getting an allergy test and omitting wheat, dairy, fruit from your diet is the best way to find out if something is not agreeing with you.  Return one item at a time to isolate its impact on digestion.  One can usually return to eating these foods from an acquired intolerance after the symptoms subside.  If you find a dietary item that doesn't agree with you, remove it. 
 
This is yet another reason for keeping a food diary.  It is unrealistic to expect a person to remember their individual meal components weeks after they eat it.  It is easier to check a diary for an 'uncomfort' food rather than wreck your brain trying to recall a food item that may not have agreed with your digestion.
 
Hope this helps.
 
         
Diagnosed w/ Ulcerative Colitis in 1995
32 years old
Living med free  
Currently in remission  


Terps19
Veteran Member


Date Joined Jul 2005
Total Posts : 1425
   Posted 11/13/2008 11:26 AM (GMT -6)   
I would agree 100% to keep a food diary. My mom kept telling me I should be doing that and it wasnt until then that I figured out that wheat, gluten and diary were really kicking my butt.

My grandmother who is a retired nurse harped on my mom for years about how I probably had celiac disease (I had a lot of trouble gaining weight and had mutliple issues with the big D) but the problems would eventially go away but then come back up a few months down the road.

Skip ahead 15 years to my last sester in college- I got really really sick- lost 30lbs couldnt keep food inside me and basically was a miserable mess. PCP had no answers, the GI doc did an endoscopy and colonoscopy and found NADA- well he said there was slight inflammation under the microscope but nothing that should concern you. But then he went on to say "You have Ulcerative Colitis and here are some meds." Needless to say I did my own reserach, read about the SCDiet, gluten free diets, paleo diets, and pretty much anything else that had to do with food. One day while researching I found a link to something called Microscopic colitis and gluten intollerance. I got the address for a DR in Texas (Dr Fine) and did some stool tests (that are supposedly outdated according to my PCP). Well these outdated tests showed that I had a major intollerance to gluten and another intollerance to casein (protien in milk). We also tested for soy, eggs, an yeast all coming up negative. The stool tests measure antibodies to different protiens to determine intollerances.

I am now on my 2nd year with the gluten free and dairy free diet. My condition improved 10 fold within 6 months. And within a year I was back playing baseball- I never thought I would play again because of my stomach- but I am now part of a city league and travel around the west coast in tournaments.

There is some speculation that microscopic colitis could be a precursor to Celiac disease- others think that UC and Crohns could be the end result of microspic colitis but no "solid" research has been done. It just got me wondering why these people who pused the SCDiet and gluten free diet and paleo diets, didnt have many or any symptoms and were in remission for years.

Most of the time these diets are not accepted by the medical practices around; however, I am fortunate to have a GI doc (now) that supports my efforts to obtain remission. He even said that he would recommend a change in diet to patients who either dont respond to meds or want to go a different route.

In no way am I saying this is a cure all for everyone. I can say that it helped me and many others and just wanted to share with anyone who would listen. As you can see I was once a very very active member on this board. I tried all sort of meds and such before i found something that works for me. DONT STOP TAKING YOUR MEDS IF YOU WANT TO GO THE ROUTE OF THE DIET- this is not a substitute for meds but rather something to supplement with your meds until you feel comfortable to wean yourself off of the meds. Again do this under medical supervision.

If anyone is interested in more information dont hesitate to contact me. More info on the tests I took can be found at: https://www.enterolab.com/Home.htm

Thanks for taking the time to read this.
March 2005 Dx'd with Ulcerative colitis
Took: asacol, colazal, rowasa, entocort, VSL probiotic
2.14.06 Test results positive for gluten and dairy sensativity! (enterolab)
July 2006 normal c scope and biopsies
Taking: Wellbutrin 150 mg Ativan .5 mg as needed
Officially married!
Gluten Free Dairy free since May 20, 2006 and feeling great 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 11/13/2008 11:29 AM (GMT -6)   
Thanks, appreciate the straight talk! it's new to me, and I'm still learning. I've been able to eat fruit altho my intolerance is apparently acquired.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 

Post Edited (Peety) : 11/13/2008 10:37:00 AM (GMT-7)


Terps19
Veteran Member


Date Joined Jul 2005
Total Posts : 1425
   Posted 11/13/2008 11:55 AM (GMT -6)   
Peety said...
Thanks, appreciate the straight talk! it's new to me, and I'm still learning. I've been able to eat fruit altho my intolerance is apparently acquired.

Hey Peety
 
How long have you been on your diet?  How did you find out about your intollerances?
 
How spread throughout your colon was the UC/inflammation before this most recent cscope?  I think pancolitis means everywhere?  If that is the case and the UC/inflammation is just down to the last part then I would say your are making good progress. 
 
One of the great things about the diet is that your intestines start to heal once you get out those nasty foods that are beating you up.  It took me about 3 months to feel a noticeable difference and it took a year before I felt mostly better.  BUT BOY WAS IT WORTH IT.  There were so many times I wanted to give up but I am glad that I stuck with it.
 
Email me if you would like some receipes that my family likes.  Good luck continuing the diet and feel free to contact me with any questions or comments...
March 2005 Dx'd with Ulcerative colitis
Took: asacol, colazal, rowasa, entocort, VSL probiotic
2.14.06 Test results positive for gluten and dairy sensativity! (enterolab)
July 2006 normal c scope and biopsies
Taking: Wellbutrin 150 mg Ativan .5 mg as needed
Officially married!
Gluten Free Dairy free since May 20, 2006 and feeling great 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 11/13/2008 1:01 PM (GMT -6)   
You can also check out www.celiac.com to learn everything you want to know about celiac disease and gluten sensitivity. You don't have to have celiac disease to have a problem with gluten. There's also a very supportive forum over there with a special section for folks who aren't sure what their status is and one for the newly diagnosed who are struggling with lots of questions.


Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


Terps19
Veteran Member


Date Joined Jul 2005
Total Posts : 1425
   Posted 11/13/2008 1:55 PM (GMT -6)   
princesa said...
You can also check out www.celiac.com to learn everything you want to know about celiac disease and gluten sensitivity. You don't have to have celiac disease to have a problem with gluten. There's also a very supportive forum over there with a special section for folks who aren't sure what their status is and one for the newly diagnosed who are struggling with lots of questions.

Yup yup that is a good one to go to.  I just didnt think we could post links to other forums... could be wrong tho!
March 2005 Dx'd with Ulcerative colitis
Took: asacol, colazal, rowasa, entocort, VSL probiotic
2.14.06 Test results positive for gluten and dairy sensativity! (enterolab)
July 2006 normal c scope and biopsies
Taking: Wellbutrin 150 mg Ativan .5 mg as needed
Officially married!
Gluten Free Dairy free since May 20, 2006 and feeling great 


landcruiser
Regular Member


Date Joined Jun 2008
Total Posts : 80
   Posted 11/13/2008 4:06 PM (GMT -6)   
So the biggest question I have concerns fiber supplements like metamucil. Gi keeps telling me to increase Fiber. I have been trying and have no blood, but continue to get some days with D, and some days without. Does Psyllium husk constitute a gluten component? If someone is overly sensitive to Gluten, can Metamucil have a negative effect on intestinal function? Any input appreciated.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 11/13/2008 5:13 PM (GMT -6)   
Terps19, posting links to other sites that sell things or other forums are allowed as long as the person posting doesn't have vested interest in that site.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA
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Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 11/14/2008 10:06 AM (GMT -6)   
Terps,
I've had pancolitis, for a long time. I found out through food sensitivity testing by a naturopathic doc, and noticed improvement almost immediately! That was early August. Now, if I eat even a few bites of something with wheat in it, I notice that immediately!

I don't enjoy cooking and it's just me and hubby so we get by on simple meat & veggie meals or eating out where he can get what he wants (and I usually have little selection, boo hoo).

I also got corn pasta which is really good. I just discovered risotto is gluten-free! Now I have something to eat at some of the italian restaurants. Although it's usually really rich...and for the most part I try to do a low-carb diet too.

Are you a Maryland Terp? Me too
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 11/14/2008 1:12 PM (GMT -6)   
Red_34 said...
Terps19, posting links to other sites that sell things or other forums are allowed as long as the person posting doesn't have vested interest in that site.

Not to mention there's alot of great information there, not just a forum and GF shop.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 

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