I'm new and confused, help!

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spluxa
Regular Member


Date Joined Nov 2008
Total Posts : 183
   Posted 11/13/2008 3:40 PM (GMT -6)   

I was diagnosed with UC several six month ago, and I need help to tolerate it. First my biggest question is WHAT TO EAT? I’ve done a lot of search, and everywhere is different, so what is most common? Second, what is remission? I do have dome blood and mucus almost everyday, but nothing else really bothering me, sometimes bloating after I eat. Does it call remission? Or remission is when You Are normal? A was told about VSL #3, does it really help? And my third question (a little bit stupid cos I know the answer), is it really going to be with me for life?


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 11/13/2008 4:00 PM (GMT -6)   
Hi and welcome to Hw! :) Diet is very individualistic and what one can tolerate another can't. The general rule of thumb is to stick to the "white" foods while in a flare. Such as fish, chicken, rice, potato etc. This is considered a low residue diet and it will help your colon heal faster. Remission is where you have no symptoms. Anytime there is bleeding, no that is not considered remission. And yes, this is a lifelong chronic illness. Right now the only "cure" is removal of the large intestine and some say even that is not a true cure.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA
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spluxa
Regular Member


Date Joined Nov 2008
Total Posts : 183
   Posted 11/14/2008 3:16 PM (GMT -6)   
One more question: How to find a good doctor GI who would be more open for other then medications and sergery?

Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 11/14/2008 3:38 PM (GMT -6)   
I f you can find a progressive GI, that would be fantastic. But I have to say, I have found GI's, compared to most other specialties, extremely conservative and behind the times as regards new developments. So I think the wisest thing to do is to find an internist or general practitioner who is both an MD and an alternative practitioner (the type that does acupuncture, herbs, vitamin supplement therapies etc) in one, and work with both the mainstream GI and the alternative guy so that the treatments complement each other. Use the alternative guy to probe into alternative or cutting edge therapies (as well as tests that your GI will probably refuse to prescribe) if you feel comfy trying them, and use the mainstream GI for your hard core allopathic treatments, endoscopy, meds, etc.. Keep both of them in the loop. In major cities you can find an alternative doc who is an MD, but most alternative practitioners are not MD's and if worst comes to worse, you can deal with a naturopathic practitioner, ND, but the GI will dismiss them and they can't prescribe you much.
 
To find the alternative docs, google acupuncture or natural medicine, as well as the various associations they are members of, and you should stumble on some find a doc sites for those types.  Hopefully some of them will have an MD after their name. 


Pancolitis 20 years ago, full med-free remission 10 years,
Flaring/simmering on and off ever since, allergic to all 5ASAs
10 20 17.5 15 12.5 10 mg 8 7.5 20 17.5 mg pred, 100 mg Imuran
TCM, Probiotics (Primal Defense and others), DMSO, TSO, hookworm
Turmeric/circuminboswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie
 
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 11/14/2008 4:13 PM (GMT -6)   
I don't think I have been normal since I had had UC, but am hopeful with this gluten issue I've discovered about myself. I'm not sure there is definition of remission, and what does it matter? I'm happy if I have no urgency, because that's what makes me miserable.

I have learned more from my naturopathic doc and this message board in the last few months than I did in 20 years with my two GIs. (Although one was a stellar researcher and I am grateful for him, and the other is very accomodating).

White foods, I agree! I have to stay away from high fiber, which no dietician has ever seemed to know how to deal with.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 

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