Went back on my Asacol

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Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 11/14/2008 8:22 AM (GMT -6)   
Ok, I'm over 50 and I am having an over 50 moment here.   When I posted that the doc took me off of my asacol and upped my canasa to twice a day, someone highly advised me to slowly get off of the asacol and not do it cold turkey.  Did I listen?  No!  I think that is one of my problems w/ my continued cramping, D, etc.  no blood thank you God!  Anyway, teaches me a lesson!  Started back on my asacol yesterday - we'll see.  Such a wonderfully crazy disease!
 
Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 11/14/2008 9:36 AM (GMT -6)   
Hi, I've lost track, why did you need to go off asacol?
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 11/14/2008 10:18 AM (GMT -6)   
I had called my gi and talked w/ his nurse and told her I wasn't seeing much improvement. She talked w/ the doc and he advised to stop the asacol and do canasa twice a day - so I did. Think it was a mistake so I started back on them (my decision) yesterday to see if it helps.

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 


TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted 11/14/2008 1:23 PM (GMT -6)   
My GI told me that it takes about 3 months for Asacol to start working. That was my experience. I've been on the max dose (4pills/ 3times/day) since June and am pretty much back to pre-UC form.
Tressa 35 (F) in WNY
UC w/skip lesions & stomach ulcers
Asacol 12/day, prilosec twice/day, Canasa as needed


quincy
Elite Member


Date Joined May 2003
Total Posts : 31005
   Posted 11/14/2008 3:05 PM (GMT -6)   
gigi..how many asacol are you taking now? Try an initial dosage of no more than 6 (3 twice daily)..and increase after a month if you need to.

Tressa...Asacol starts working immediately, it may not improve symptoms radically for 3 months. The healing process takes a while.

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec 2 or 3  +   1 or 2 Primadophilus Reuteri Pearls @ bedtime
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 11/14/2008 3:08 PM (GMT -6)   
Quincy, I am taking what the doc initally perscribed which was low 1 pill 3 times per day. So that is what I am doing.

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 31005
   Posted 11/14/2008 3:20 PM (GMT -6)   
wow...maybe you weren't improving because the dosage wasn't high enough. At least 4 daily seems a working dosage..2 twice a day.

If you don't improve, ask the doc to consider increasing...your UC symptoms seem higher than what the Canasa can deal with.

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec 2 or 3  +   1 or 2 Primadophilus Reuteri Pearls @ bedtime
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 11/14/2008 5:19 PM (GMT -6)   
That's too low a dose, I agree. (I think we talked about that already, didn't we?).
If you're suffering I would slam it with 9-12/day

BTW, when I got asacol the first time (special FDA protocol for study) it started working immediately. Otherwise I was being told surgery was probable...
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 31005
   Posted 11/14/2008 5:26 PM (GMT -6)   
you don't need a high dosage to start...increasing as needed will find the optimum dosage without the side effects such as diarrhea or bleeding that could have one believing it's UC symptoms.

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec 2 or 3  +   1 or 2 Primadophilus Reuteri Pearls @ bedtime
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 11/14/2008 7:22 PM (GMT -6)   
I thought 6 a day was maintenance on asacol
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


quincy
Elite Member


Date Joined May 2003
Total Posts : 31005
   Posted 11/15/2008 3:13 AM (GMT -6)   
6 is my maintenance amd treatment I guess...basically, it's the constant, and I treat flares by increasing the rectal meds and then tapering to maintenance.

I was only once up to 8 asacol daily for about 4 months...that's in 20 years, not bad..

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec 2 or 3  +   1 or 2 Primadophilus Reuteri Pearls @ bedtime
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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