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TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted 11/14/2008 12:19 PM (GMT -6)   
Hi,
I read in another post someone say something about Asacol and fatigue. I'm exhausted most of the time. Could it be the Asacol? I'm kinda in remission, but every time I think about dropping my dose I have a minorly bad day and think twice. I feel pretty good, though, so maybe it's not the DD.
 
I looked up Asacol side effects and fatigue wasn't listed. Any insight? I'm getting ready to start a full-time job instead of my cushy part-time one. I don't know how I'll manage, though.

Tressa 35 (F) in WNY
UC w/skip lesions & stomach ulcers
Asacol 12/day, prilosec twice/day, Canasa as needed


quincy
Elite Member


Date Joined May 2003
Total Posts : 30591
   Posted 11/14/2008 2:07 PM (GMT -6)   
I think it's worth a try, but the way to decrease/taper is one pill a week.

So, that way, you'll find the amount that agrees with you.

Starting a new job is stressful....that could be part of the problem....but DO stay on the Canasa at least nightly till you're a bit more settled in your job.

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec 2 or 3  +   1 or 2 Primadophilus Reuteri Pearls @ bedtime
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 11/14/2008 2:11 PM (GMT -6)   
I don't think it's the asacol that causes fatigue - I think more it's just this disease. When I was in the worst part of my flare I couldn't sleep enough. I was proud if I got a sink of dishes washed. Now that my uc is better, not in remission, but better, I do get tired easier and I sleep like a rock at night. Bright side for me, because I feel there is always a bright side to every bad situation in life, is before UC I never slept!

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 11/14/2008 3:45 PM (GMT -6)   
When I was taking Asacol, over a two year period, I went from being moderately active to not even being able to keep my eyes open during my lunch break. When I stopped the Asacol, for a couple of weeks I felt like the fog had been lifted from my mind/body. But soon enough, a full blown flare appeared, so I wasn't able to enjoy the new found energy I had. Now I'm on Lialda, and the same thing is starting to happen, which leads me to believe I have a slight intolerance to 5-ASAs.

Your tiredness could be the UC, or it could be the Asacol. If you want to try life without Asacol, do a slow taper, and keep your doctor informed about what you are doing. If you go into a flare after going off the Asacol, you'll want to have a back-up plan in place and ready to go quickly, especially if you are starting a new job.

Good luck, and I hope you find something that works for you.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Meds & supplements: Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort, Prednisone, flaxseed oil, L-glutamine.


TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted 11/14/2008 7:15 PM (GMT -6)   
Thanks for your responses. I'm not flaring right now. So, I'm thinking that maybe it is the Asacol. I'm gonna follow quincy's advice and do a slow taper, 1/wk. If I start flairing, I'll go back up. I don't wanna tell my doc, though. I don't think she'll approve. It took 3 years to find her and meds that work! I gotta do something, though. I'm so tired all the time. My 81 y/o mother in law has more energy than me!

beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 11/15/2008 5:54 PM (GMT -6)   
I did a rather quick taper off Asacol. Went from 9 a day one week (going down by one pill every couple of days) to 6 a day the next week to 4 a day the next week. Then I told my doc and he told me to slow down. I was tapering with out his knowledge at first. I still ended up in a flare...I guess I was in remission while taking the Asacol. I sure was exhausted all the time, but my bm habits were pretty regular.

If your doctor is concerned about your well being, she won't mind your going off the Asacol. She might not recommend it, but at least you'll keep her informed. Some people can maintain remission without meds.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Meds & supplements: Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort, Prednisone, flaxseed oil, L-glutamine.

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