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JEG
Regular Member


Date Joined Apr 2008
Total Posts : 112
   Posted 11/14/2008 1:11 PM (GMT -6)   
I've been having a flare and my dr. put me back on pred, plus the colazal, etc.  Anyway, he told me the other day to stop using immodium b/c it can cause some pretty serious issues.  Does anyone else agree?  I like to use it b/c it makes the urgency a little less and I have my daughter's baptism this weekend and I just keep picturing myself running out of the church like a crazy person confused
Thanks!
3x3 colazol a day - trying generic again
vitamin
probiotic
rowasa enema
zoloft - anxiety got a little out of control after last flare.
mommy of a beautiful baby girl born 8/25/08


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 11/14/2008 1:16 PM (GMT -6)   
You don't want to use Immodium frequently or long-term, but you can use it for special occasions or traveling.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


JEG
Regular Member


Date Joined Apr 2008
Total Posts : 112
   Posted 11/14/2008 1:25 PM (GMT -6)   
great i just wasn't sure. thanks! he just kind of scared me into thinking i should never ever take it.
3x3 colazol a day - trying generic again
currently flaring...not as bad as the last one though
2x2 lialda starting 11/15/08
vitamin
calcium supplement
probiotic
rowasa enema
zoloft - anxiety got a little out of control after last flare.
mommy of a beautiful baby girl born 8/25/08


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 11/14/2008 1:49 PM (GMT -6)   
Don't use it continually. An antispasmodic could help you with some symptoms, but it won't imobilise the colon like Imodium does.

Definitely save it for the times you need it.

My perspective on it...it has its purpose, but can give one a false sense of doing well ignoring important changes that may need intervention.

Enjoy your very special day!

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec 2 or 3  +   1 or 2 Primadophilus Reuteri Pearls @ bedtime
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


JEG
Regular Member


Date Joined Apr 2008
Total Posts : 112
   Posted 11/14/2008 2:39 PM (GMT -6)   
thanks! so i guess i'll use it sunday but only use it when absolutlely necessary. it's so nice to have people to ask these questions to. no one i know has this disease let alone understands it.
3x3 colazol a day - trying generic again
currently flaring...not as bad as the last one though
2x2 lialda starting 11/15/08
vitamin
calcium supplement
probiotic
rowasa enema
zoloft - anxiety got a little out of control after last flare.
mommy of a beautiful baby girl born 8/25/08


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 11/14/2008 3:38 PM (GMT -6)   
My GI said not to take it, AT ALL. Perhaps he's a bit strict and it would be helpful for special events, but you're messing around with Toxic Megacolon and emergency surgery to remove your colon, without prep, is pretty risky.
Meesh
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Finally achieved remission mid October 2008!!
11 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08; 8/15/08, 9/26/08; 11/08/08; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Rowesa and/or Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D; Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


JEG
Regular Member


Date Joined Apr 2008
Total Posts : 112
   Posted 11/14/2008 3:52 PM (GMT -6)   
i think it's so weird that they never mentioned to this to me before. i had no idea how serious it was or i would not have taken it. but i know i need it sometimes. ugh.
3x3 colazol a day - trying generic again
currently flaring...not as bad as the last one though
2x2 lialda starting 11/15/08
vitamin
calcium supplement
probiotic
rowasa enema
zoloft - anxiety got a little out of control after last flare.
mommy of a beautiful baby girl born 8/25/08


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 11/14/2008 4:01 PM (GMT -6)   
It's weird how opinions from doctors can differ so much. I've seen people on here who've posted that their doctor told them it was okay to take Immodium every day, some say every once in awhile, others say not at all. I take it frequently, not every day but maybe more than I should.

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Sulfasalizine 3000mg/day, Azasan 100mg

 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 11/14/2008 4:05 PM (GMT -6)   
Take as small a dose as you need to be able to do what you're trying to do. I get a lot of benefit from 1/2 a pill, and will do it daily during a bad flare. It keeps things calmer but doesn't bring it to a halt. And I would take a whole one, or even two for a special situation.
My old GI would prescribe it before it went OTC. It was cheaper as an Rx!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 11/14/2008 4:10 PM (GMT -6)   

Imodium - a subject that surely does different as we differ.  My NP told me that my doctor prescribes it for many patients.  Has to depend on condition of the person, I believe.  I have used it when needed for years for IBS/diarrhea.  I have NEVER had constipation.  So, when diagnosed with UC I also wondered.  I use it sparingly as instructed and I will write more about it and my trip to Vegas.  Just got back and very tired but want to write about my experience flying/hotels/casinos/medication and the UC.  Watch for my post.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 11/14/2008 4:10 PM (GMT -6)   
My GI told me it was fine if I wasn't taking more than the recommended dose per day. I used it a lot when I flaring as I was in high school and actually needed to be in class. Now it take it if I'm going somewhere where I can't be near a bathroom. I'd say if your GI says don't use it, then don't.
Sam
19 year old college student diagnosed with ulcerative colitis at 16
Remission since January/April 2006
400mg Asacol 2x, 10mg Elavil, 75mg Effexor XR for GAD

"If you don't like something change it. If you can't change it, change your attitude"
Maya Angelou


JEG
Regular Member


Date Joined Apr 2008
Total Posts : 112
   Posted 11/14/2008 4:32 PM (GMT -6)   
ElaineNY I can't wait to read b/c I'm trying to decide on a trip for next summer and am already worrying about going b/c of the uc. I'd love to read it. It doesn't completely stop me from going as you know nothing stops that. but it does help not feel the urgency. I just don't want to rush out of church. I guess if I have to though I have to...it's a part of life.
3x3 colazol a day - trying generic again
currently flaring...not as bad as the last one though
2x2 lialda starting 11/15/08
vitamin
calcium supplement
probiotic
rowasa enema
zoloft - anxiety got a little out of control after last flare.
mommy of a beautiful baby girl born 8/25/08


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 11/14/2008 6:19 PM (GMT -6)   
my GI said to take it if I needed it, But i never take over one in a day its all I need and I never have any problems going the next day. I only use it if I have to get out because it makes me a little sick to my stomach.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


neednewbody
Regular Member


Date Joined Sep 2008
Total Posts : 59
   Posted 11/14/2008 9:10 PM (GMT -6)   
That is very interesting. I take 2 Lomotils in the morning every day. Otherwise, I wouldnt be able to go to work. and then about 5 hours later, I take 1-2 immodiums. This holds me over until I get home from work.
When i have special evening plans, I take more immodium. Sometimes I take too many and I feel bloated and almost constipated the next day.
my MD is aware of what I do and prescribed the lomotil.
I always wait for a BM between doses so that I dont get impacted.
I am hoping that when I see him, we can fix the flare instead of just covering the symptoms up. I know my colon is still very hurt inside and the immodium is just allowing me to live.
Liver transplant 2004 -- liver is only healthy part of me
Prograf 1mg bid for transplant
 
Remicade every 6 weeks - not working
pentasa 1500mg tid
palafer once daily
lomotil every day as needed
immodium every day as needed
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/15/2008 1:04 AM (GMT -6)   

Check out this link about Imodium...

 

http://www.gicare.com/pated/loperamide.htm

 

:)


My bum is broken....there's a big crack down the middle of it! LOL :)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 11/15/2008 1:53 AM (GMT -6)   
Thanks for the link pb4.....I'd forgotten that it stops the secretion of fluid in the bowel lining.

Even more so that I don't think it's a good idea to use it continually with an inflamed colon...since that's the colon's natural way to keep things from settling in it during inflammation.

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec 2 or 3  +   1 or 2 Primadophilus Reuteri Pearls @ bedtime
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


beefree
New Member


Date Joined Oct 2008
Total Posts : 17
   Posted 11/17/2008 4:23 AM (GMT -6)   
I asked my Gi about immodium and he said if you had general uc i wouldnt recommend it due to the risk of megacolon but because its contained to left side of colon it should be ok for occasional usage for travelling etc to use with caution cheers B

JEG
Regular Member


Date Joined Apr 2008
Total Posts : 112
   Posted 11/17/2008 7:17 AM (GMT -6)   
thank you all so much!
3x3 colazol a day - trying generic again
currently flaring...not as bad as the last one though
2x2 lialda starting 11/15/08
vitamin
calcium supplement
probiotic
rowasa enema
zoloft - anxiety got a little out of control after last flare.
mommy of a beautiful baby girl born 8/25/08


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/17/2008 2:19 PM (GMT -6)   
I was under the impression that laxatives are linked to toxic mega colon, not imodium, when I tried to find negative side effects of long term use of imodium it never listed or mentioned toxic mega colon, yet when researching laxatives it's commonly mentioned.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 11/17/2008 4:08 PM (GMT -6)   
laxatives because the colon is basically lazy and will take a crutch when handed readily. The dependency of laxatives is common. 

TMC is where a part of the colon is already lazy/lost its elasticity and normal movement...stop the movement of the rest of the colon, and the area that's the weakest can basically have a buildup of more gas and basically blow.
 
Pain meds with codeine/narcotic, totally liquid diets, not eating etc can also contritute to TMC...

that's how I see it.

q


*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec 2 or 3  +   1 or 2 Primadophilus Reuteri Pearls @ bedtime
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

Post Edited (quincy) : 11/17/2008 3:11:05 PM (GMT-7)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/17/2008 4:19 PM (GMT -6)   
Yes, I uderstand that, but to the best of my searching I have not found anything implicating Imodium as causing toxic mega colon.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 11/17/2008 5:02 PM (GMT -6)   

When you Google "Toxic Megacolon and Imodium" you get a lot of info including this article...

 

New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
CLOSE TO REMISSION!!
 
 
 
 
 
 
 


JEG
Regular Member


Date Joined Apr 2008
Total Posts : 112
   Posted 11/17/2008 5:02 PM (GMT -6)   
a lot of times when i'm in a flare i don't eat, or i eat very little.  that can cause tmc too?  it seems like you can't win.

3x3 colazol a day - trying generic again
currently flaring...not as bad as the last one though
2x2 lialda starting 11/15/08
vitamin
calcium supplement
probiotic
rowasa enema
zoloft - anxiety got a little out of control after last flare.
mommy of a beautiful baby girl born 8/25/08


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 11/17/2008 5:04 PM (GMT -6)   

I should have added that you should always consult your doctor or NP about medications for YOU as we are all different.  Mine knows how often I use it and when and ok'ed it for me!

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
CLOSE TO REMISSION!!
 
 
 
 
 
 
 


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 11/17/2008 10:03 PM (GMT -6)   
my old gi used to give me scripts for imodium bc i hated buying the pckages with them all wrappd individually...
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