Maintaining Remission Advice

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invisible reflections
Regular Member


Date Joined Nov 2008
Total Posts : 23
   Posted 11/15/2008 12:44 PM (GMT -6)   
Hey everyone.

I just got into remission and would like some tips on how to retain remission. Any advice on supplements/oils/probiotics, foods that you personally avoid (I know it's different for everyone), or anything else is welcome. Thank you! smilewinkgrin
Recently gone into remission!

Currently tapering off of prednisone from 50mg, currently @ 12.5mg and suffering from withdrawal symptoms : (

Colazal(generic)= 9 pills
Immuran (Azathioprine)= 3 pills (150mg)
Multivitamin

Diagnosed 10/07

Flares on Feb 08 and Aug 08


19 year old female college student taking one day at a time...
A little optimism goes a long way.
"Look at the sun and your shadow will fall behind you."


quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 11/15/2008 12:47 PM (GMT -6)   
You could consider rectal meds maybe once a week....have you tried them at all?

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec 2 or 3  +   1 or 2 Primadophilus Reuteri Pearls @ bedtime
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Knight
Regular Member


Date Joined Jan 2005
Total Posts : 352
   Posted 11/15/2008 1:10 PM (GMT -6)   
I.R.,
I suggest staying far away from sugar.  I relate binge eating and binge sugar eating with flares.  Good luck.
 
Knight
 
Mild to Moderate Left Side UC since 10/2002, Joint Pain since 10/2004
 
Strict SCD 7/2004-12/2005
Prednisone 8/2004-10/2004
Remission since 9/2004
Daily Meds:
 1500 mg Pentasa, 150 mg Zoloft, 30 mg Baclofen, 10 mg Ambien


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 11/15/2008 1:19 PM (GMT -6)   
A good probiotic can help get you through cold and flu season and keep your colon healthier year-round. Popular ones here are VSL#3, Primadophilus Reuteri and Culturelle.

Be sure you get the rest you need and try to practice not sweating the small stuff. Stress and tiredness can help trigger flares.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 11/15/2008 1:22 PM (GMT -6)   
From a mental standpoint...don't think about falling out. Enjoy being in remission and don't worry about what could happen!
I'm glad to hear that you're in remission, especially since you're in college! :)
Sam
19 year old college student diagnosed with ulcerative colitis at 16
Remission since January/April 2006
400mg Asacol 2x, 10mg Elavil, 75mg Effexor XR for GAD

"If you don't like something change it. If you can't change it, change your attitude"
Maya Angelou


AKB
Veteran Member


Date Joined Mar 2006
Total Posts : 992
   Posted 11/15/2008 2:30 PM (GMT -6)   
remission means living your life. so number one, don't obsess about the next flare (something I'm still learning to do five years in).

next, avoid binge anything as someone mentioned above-- don't go nuts with alcohol and sweets in particular. It stresses the colon lining, for whatever reasons.

eat healthy, live healthy, sleep well... take your meds religiously. if you want supplement suggestions, you can look at my signature.
Dx:

Left-sided UC, Jun 2005. Flex-sig only... clear for first 20cms, then inflamed through next 30cms.

Therapies:

Pharmaceutical: Pentasa 3G/day, hydrocort 1x every 7 days
Probiotics: Acidophilus Pearls, Primadophilus Bifidus
Naturals: Caprylic Acid, Methylated B-12, Vit ACDE, Zinc (w/copper), Selenium, Turmeric, Bromelain, Luteolin
Killer Foods: Soda, Fried Food (especially french fries!), Beer, Red Wine, Pepperoncinis


invisible reflections
Regular Member


Date Joined Nov 2008
Total Posts : 23
   Posted 11/15/2008 4:58 PM (GMT -6)   
Thanks for the help guys! And you're right, I should definitely enjoy now and not worry about "if."
Recently gone into remission!

Currently tapering off of prednisone from 50mg, currently @ 12.5mg and suffering from withdrawal symptoms : (

Colazal(generic)= 9 pills
Immuran (Azathioprine)= 3 pills (150mg)
Multivitamin

Diagnosed 10/07

Flares on Feb 08 and Aug 08


19 year old female college student taking one day at a time...
A little optimism goes a long way.
"Look at the sun and your shadow will fall behind you."


TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted 11/15/2008 5:19 PM (GMT -6)   
Congrats on remission! Just be aware that you may experience cyclical flares around your period. I'm in remission and still get a couple days a month that give me trouble.

I suggest staying on your meds. Good luck with tapering off the prednisone.
Tressa 35 (F) in WNY
UC w/skip lesions & stomach ulcers
Asacol 12/day, prilosec twice/day, Canasa as needed


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5191
   Posted 11/15/2008 10:11 PM (GMT -6)   
Get regular check-ups, stay on your meds, rest whenever you feel the need, & eat as balanced a diet as possible, avoiding junk foods, lots of fat & sugar. My gastro, who subspecializes in IBD treatment, says to be as disciplined as possible, but if you overindulge in rich foods at a holiday party, wedding, etc. get right back to your careful routine the next day. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 generic Colazal daily for maintenance of remission)

Gervais
New Member


Date Joined Nov 2008
Total Posts : 4
   Posted 11/16/2008 1:01 PM (GMT -6)   
I agree about avoiding sugar and taking probiotics. For me, if I eat sugar I will immediately flare and become very sick. So I know it makes a difference at least for me.

Also, I've found that bananas and potatoes are good foods to eat if I start to feel sick. I actually think they've helped prevent bad flares.

And avoiding stress as much as possible is obviously good for general health, but it is, I think, critically important for maintaining remission, at least for me. That'll be tough since you're in college, but I'd say just try not to worry about things that are out of your control.

sadgirl1984
Regular Member


Date Joined Aug 2008
Total Posts : 55
   Posted 11/16/2008 1:05 PM (GMT -6)   
avoid junk foods n everything unhealthy :)

very happy4u dear
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