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sgtpeper
Regular Member


Date Joined Nov 2008
Total Posts : 87
   Posted 11/15/2008 10:37 PM (GMT -6)   
Hey all,

Still trying the sunflower seeds/spinach diet. Just sick of feeling bad.

I am currently taking asacol 2 pills 3 times a day and a probiotic 2 times a day and thats it.

I am trying to avoid the rowasa or canasa. Trying to make the diet work for me instead.

Am I being foolish?

I have blood when I wipe probably every few days. I have some days where I dont go at all and other days where I feel like I cant even leave my house. Its a really weird feeling....

Just looking for advice...

Thanks,
Jeff

bokscarracer
Regular Member


Date Joined Sep 2008
Total Posts : 152
   Posted 11/16/2008 12:18 AM (GMT -6)   
i'm still trying that diet as well and hoping for some better results. i wonder how kiss520 is doing? she seemed to be doing well on the diet but i haven't seen any updated posts from her about it. i would say to continue the rowasa/canasa as long as you're still having flare symptoms. if you aren't responding to the diet and not taking the rectals than that bleeding could become more frequent and perhaps worse. perhaps you are doing better since some days you aren't going but other days you are? maybe just a little bipolarism going on in the rectum as the monster in there is being slowly restrained? let's hope so!
Proctosigmoiditis up to 25 cm
Colazal 3 caps 3 times a day
Hydrocortisone enemas AM and PM for next two weeks
Canasa suppository for lunch (for my butt)
Rowasa enemas nightly after hydrocort enema regimen is completed
Celexa 20mg daily
Fish oil, milk thistle, Ultimate Flora critical care probiotic, Alive multivitamin, lysine
Spinach and sunflower seed plan


sgtpeper
Regular Member


Date Joined Nov 2008
Total Posts : 87
   Posted 11/16/2008 12:35 AM (GMT -6)   
I havent used any rectal meds at all this flare. Its only my second flare Ive ever had - I was diagnosed earlier this year.

I used canasa before but it was really expensive. I have a fully supply of rowasa ready to go for this round.. just dont want to use it...

Cfromutah
Regular Member


Date Joined Mar 2007
Total Posts : 369
   Posted 11/16/2008 12:48 AM (GMT -6)   
you need to give the diet more time. Did you two not just start the diet a little over two weeks ago? I tried many medications and every thing I could think of for UC and the only thing that put me in remission was the high magnesium and beta carotene diet, or sunflower seed and spinach diet, whatever you want to call it diet. I know it works because it worked for me and it worked for everybody else on here that I seen that gave the diet a fair chance and stuck with it but me and just about everybody else I seen that the diet helped it took a month before they seen really good results. If you ask me med's are worthless compared to this diet. Med's are not needed if you follow this diet, I am on zero med's or supplements and am 100% symptom free.
I also want to mention another thing. When I was in my worst flare and first started this diet and then went into remission it wasnt really a gradual thing for me, I was doing the diet and still had symptoms up until about a month into it or so and then bam, one day my stools were solid and had no symptoms. I mean I noticed a little improvment throughout the first month of the diet but one day about a month or so into it its like somebody flipped a switch and symptoms were gone. So dont get discouraged if your having symptoms still. Just stick with the diet because it WILL help you.

Post Edited (Cfromutah) : 11/16/2008 12:16:48 AM (GMT-7)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/16/2008 1:43 AM (GMT -6)   
Why not take advantage of rectal meds if you're suffering? You can still do the diet and the probiotics and asacol and if you use rectal meds to get the proctitis under control then maybe with your diet, probiotics and asacol you can keep it in better control.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30411
   Posted 11/16/2008 2:31 AM (GMT -6)   
live and learn.....we all want to not have to use the meds. And you don't want to use the Rowasa because???

They're expensive, that's for sure.

Hope you feel better soon.
q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec 2 or 3  +   1 or 2 Primadophilus Reuteri Pearls @ bedtime
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


bokscarracer
Regular Member


Date Joined Sep 2008
Total Posts : 152
   Posted 11/16/2008 10:52 AM (GMT -6)   
yes sir i'm still sticking with the diet! i have a sunbutter fix now so really i have no choice!
Proctosigmoiditis up to 25 cm
Colazal 3 caps 3 times a day
Hydrocortisone enemas AM and PM for next two weeks
Canasa suppository for lunch (for my butt)
Rowasa enemas nightly after hydrocort enema regimen is completed
Celexa 20mg daily
Fish oil, milk thistle, Ultimate Flora critical care probiotic, Alive multivitamin, lysine
Spinach and sunflower seed plan


sgtpeper
Regular Member


Date Joined Nov 2008
Total Posts : 87
   Posted 11/16/2008 10:59 AM (GMT -6)   
Im not using the Rowasa honestly because I have a fear of how to get it all in there and its embarrassing as I just moved in with my girlfriend a few weeks ago. Our place is pretty small so not a lot of privacy heh...

I used one of my remaining canasas last night. Prepping myself to go up to the Rowasa and just knock this flare out. I have a mild/moderate case of UC and I do take well to the meds usually.

Ill give it a shot - hopefully then the diet keeps me in remission..

quincy
Elite Member


Date Joined May 2003
Total Posts : 30411
   Posted 11/16/2008 11:08 AM (GMT -6)   
Vanity...can be what has you suffering or not.

I'd rather use the rectal meds than be in agony...sheesh, I had to ask my husband to help me with the first one.

20 years later tells me they work...a slow simmer of inflammation and some discomfort might not be bad enough for you to detect as an actual flare....I would suggest you swallow your pride, be honest and do what you need to do in order to keep your flare under control.

In saying that...5ASA meds don't work for everyone...but if it works for you, small price to pay in the long-run.

Keep us posted as to how you're doing...
most of us has gone without meds for a while hoping to not have to do them...

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec 2 or 3  +   1 or 2 Primadophilus Reuteri Pearls @ bedtime
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


sgtpeper
Regular Member


Date Joined Nov 2008
Total Posts : 87
   Posted 11/16/2008 11:14 AM (GMT -6)   
Yea my GF has been great about this. She did offer to help me but Id rather she not ha!

Im working my way up to em.

J

quincy
Elite Member


Date Joined May 2003
Total Posts : 30411
   Posted 11/16/2008 11:19 AM (GMT -6)   
Theres worse things in life than using a retention enema. I don't usually compare stuff like that..but you need to keep things in perspective.

There are always trade-offs.

When you do use it, you'll have the urge to expell it, feel a bit nauseated and want to run to the bathroom. Just white-knuckle through it and it will pass. Lay on your left side and do those butt cheek squeezes.....

Now, doesn't that seem like fun?

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec 2 or 3  +   1 or 2 Primadophilus Reuteri Pearls @ bedtime
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


sgtpeper
Regular Member


Date Joined Nov 2008
Total Posts : 87
   Posted 11/16/2008 11:28 AM (GMT -6)   
Ugh ya super fun lol Thats kind of my fear of using it... Dont want to expell it at the wrong time - laying on my left side means I'd have the wrong side facing my gf!

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 11/16/2008 11:46 AM (GMT -6)   
You can buy pads to put under you until the fluid settles in and the urge passes, or some people just use an old towel.
 
If you change sides of the bed, it will cure the "facing the wrong way" problem.  yeah
 
As one who was never able to use Rowasa or Canasa (I don't tolerate Mesalamine), I envy your being able to use this simple if inelegant solution to our mutual problem. I always wished I could benefit from them.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 11/16/2008 12:55 PM (GMT -6)   

Hi Guys!

I saw in one of the earlier replies than one of you was wondering about my progress - I'm doing GREAT!!  I started the diet on 9/31, and it took about 1 1/2 months to feel completely better.  I guess I shouldn't say completely, because I do still have occasional tummy rumblings (very rarely though).  Every day I have a normal morning poop and sometimes another later on (which may look a bit thinner).  Its been slow and steady improvement and I feel like I am 99% normal.  I can eat a lot more foods than I could before, and I'm still eating the sunflower butter and spinach.  I do about 2 tablespoons of sunflower butter and about 1/2 cup of cooked spinach each day.  I still avoid the really hard raw vegetables, milk, and fried food (don't want to push my luck just yet, but I have every intention of trying them at some point).

I have absolutely no blood, no diarrhea, and no urgency.  I am living a normal life again.  I hope that gives you the encouragement you need.  Keep in mind that I didn't see any improvement AT ALL until the third week.  In fact, the first two weeks were worse than usual. 

Good luck - I'll try to check in more often to see how you're all doing!  :-)


Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Asacol 1200 MG 2X daily, Iron 325 MG 2X daily, Zoloft 50 MG daily, Multivitamin.
Diet:  Spinach/sunflower and low-residue.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema.
Status:  Heading to remission???
 
 
 
 


Cfromutah
Regular Member


Date Joined Mar 2007
Total Posts : 369
   Posted 11/16/2008 1:59 PM (GMT -6)   

I recommend that to make this diet work faster you eat other foods high in magnesium often in addition to spinach and sunflower seeds. almost all nuts are high in magnesium and pumpkin seeds are loaded with it. and peanuts and peanut butter have a lot also. Go to this website hereNutrition facts, calories in food, labels, nutritional information and analysis – NutritionData.com and in the upper left hand corner click on tools and then from there click on nutrient search tool and then foods that are the highest in and put in magnesium. and it will pull up 1000 foods with the highest magnesium content with the foods containing the highest amount towards the front of the list and the lowest towards the end of the list. I like to use the based on levels per 100 gram setting on there as apposed to the 200 calories setting on there because its easier to judge about what 100 grams worth of food is. Also in the top right of that website you can just type in foods individually to find the nutritional value of individual foods. I use the site often to find the magnesium and beta carotene content of foods. Any food with 80 milligrams or more of magnesium per 100 gram serving is a good source of mag. Dont forget foods high in beta carotene too.


Post Edited (Cfromutah) : 11/16/2008 1:08:03 PM (GMT-7)


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 11/16/2008 2:51 PM (GMT -6)   

sgtpeper - You know I am 68, been married 47 years and still did not want to ask my husband to help me or even be in the same room.  When I used Rowasa (became sensitive to it) I used it on the toilet having everything ready to get into bed immediately.  I started with using only about 1/3 to 1/2 because it is easier to keep in.  Put the towel down or ? and lay on left side - play the radio or your IPOD - something to take mind off it.  Ask you gf to give you 1/2 hour to an hour alone - quietly.  You will have an urge, possible cramping, butt squeeze and before you now it you will never know it is in there.  DO NOT give in to the urge - it will subside.  Hey, if this grandma can do it - you can.  If you have mostly rectal bleeding or inflammation it should help - even in 1/2 doses.  Try it if you have some - it is worth the try! I had another colonoscopy after using Rowasa about 4 weeks almost every night and it is confined to rectum now and using a foam enema now - small and easy to keep in.  Also, used Canasa for a while.  Bleeding has stopped and urgency is nearly gone.  I do still have some discomfort but nothing I cannot live with. I do not do a special diet but I know what "bothers" my stomach (I have GERD also) and what I digest best so stick with that.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
 
 
 
 
 
 
 


Knight
Regular Member


Date Joined Jan 2005
Total Posts : 352
   Posted 11/16/2008 11:13 PM (GMT -6)   
Jeff,
I am not a big fan of sticking the rowasa in either. My doc was kinda matter of fact like quincy, and said I must do it. So I did and it DID help with my flares. I kinda made a deal with the doc, that as long as I don;t flare, I don't have to use it. But in all honesty, as much as I don't like to do it, I saw that it did help. I suggest you go to the bathroom, close the door and do it. (my technique) Then clench up and go lie down in bed. It was helpful to me and I hope it helps you too.
Knight
 
Mild to Moderate Left Side UC since 10/2002, Joint Pain since 10/2004
 
Strict SCD 7/2004-12/2005
Prednisone 8/2004-10/2004
Remission since 9/2004
Daily Meds:
 1500 mg Pentasa, 150 mg Zoloft, 30 mg Baclofen, 10 mg Ambien


quincy
Elite Member


Date Joined May 2003
Total Posts : 30411
   Posted 11/17/2008 2:25 AM (GMT -6)   
I'd never say that once you're doing well, you don't have to use it...tapering is so important to get to maintenance, to do at least once a week would help rectal inflammation (that most don't recognise until it's more obvious)..

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec 2 or 3  +   1 or 2 Primadophilus Reuteri Pearls @ bedtime
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


qsam6
Regular Member


Date Joined Nov 2008
Total Posts : 90
   Posted 11/17/2008 9:11 AM (GMT -6)   

I cut out milk and started drinking vanilla soy milk, tastes better than milk and it seems to help my colon. I also cut out caffeine, carbonated drinks, beef, beer, pepper, peppers, fried foods, fresh fruits and vegetables and anything else that I might enjoy consuming. Vanilla soy milk, wine, chicken prepared any way except fried seem to be the only things left that don't anger my UC. I don't recommend more than two glasses of wine with dinner and you shouldn't drink it at all when you are in a flare. However, it seems to help with the churning and turning that I have in my colon if I have a glass or two with dinner.

UC since 2004, remained in remission until 3/07, been in and out of remission since. Asacol 400mg two pills 3 times per day, multi-vitamin and fish oil.

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