I'm just curious. At what point would you consider that you might be losing too much blood?
Besides feeling fatigued and being in an almost constant state of pain, I haven't felt really lightheaded or dizzy. I've just had a constant dull ache in my stomach for the past week that frequently esclates to an intense burning/stabbing nauseating pain more towards the right side under my navel area but it feels like the pain is throughout my entire midsection. I've also been having back pain that I can only assume is from the fact that my stomach hurts so by slouching and trying to take pressure/weight off the stomach it's putting it on my back. Last Wednesday I couldn't even sit or stand up straight and only felt okay when lying down on my back.
I'm reaching my three month mark with Azasan and have been getting worse the last few weeks so my doctor was talking Remicade. I'm not really sure what we'll do yet but I guess I'll find out in a few days. I've lost 4 pounds in the last week, which wouldn't seem like much except I'm 119lbs and 5'8" so it's not really a great thing, and I'm starting to develop a complete aversion to food in general because I know it's going to be excrutiating going in and coming out regardless.
But, every time I go to the bathroom it's nothing but liquid stool and blood, sometimes only blood. And quite a lot of it. It's mostly a darker red and sometimes appears to have clots in it when I wipe. I'd say I've gone about 10 times today and had blood every time, sometimes only a little, other times it colors the water red. I have a doctor's appointment Friday already but I'm wondering at what point do you start getting concerned and what measures do you usually take? I'm not one to go to the hosptial for my UC, I never have and would probably have to be passing out before I gave in and went. I'm just getting really tired of feeling this way.
Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...
Lexapro 10mg, Sulfasalizine 3000mg/day, Azasan 100mg