What happens if or when you have to quit Remicade

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Date Joined May 2008
Total Posts : 172
   Posted 11/18/2008 12:44 PM (GMT -6)   
Just wondering,   once my son starts on Remicade and then has to quit due to expense or some other reason,  what happens to his body then?  Will his immune system go back to what it was?  or will things get worse.  Or, maybe the remission while on it, will heal his descending colon and then stay that way.  Just curious.  He was accepted for the PAP free help, but we are still waiting for the official letter to start the treatments.  Any experienced folks out there who went through having to stop the Remicade??
Thanks   A mom

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Date Joined Mar 2003
Total Posts : 10407
   Posted 11/18/2008 1:06 PM (GMT -6)   
The first time I started Remi, I received the three induction infusions, then the insurance cut me off because it wasn't yet FDA-approved for UC. I had a little more trouble after the first couple of months, but basically stayed in a semi-remission for about a year before going back into a full-blown flare.

I suspect it would be different for each person, just as it is with all meds. Some stop their meds and stay in remission for five years, others are flaring within two weeks. Some go back to their pre-medication level, others are worse and the flare is harder to control. Just don't convince yourself it won't come back. Like everything else we take, Remi is not a cure, and the symptoms will almost certainly come back at some point.
Consider, though, that if Remi buys him a year or two, there may be another new and effective treatment available for him to turn to.

Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

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