The first time I started Remi, I received the three induction infusions, then the insurance cut me off because it wasn't yet FDA-approved for UC. I had a little more trouble after the first couple of months, but basically stayed in a semi-remission for about
a year before going back into a full-blown flare.
I suspect it would be different for each person, just as it is with all meds. Some stop their meds and stay in remission for five years, others are flaring within two weeks. Some go back to their pre-medication level, others are worse and the flare is harder to control. Just don't convince yourself it won't come back. Like everything else we take, Remi is not a cure, and the symptoms will almost certainly come back at some point.
Consider, though, that if Remi buys him a year or two, there may be another new and effective treatment available for him to turn to.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal, Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
Co-Moderator UC ForumPlease remember to consult your health care provider when making health-related decisions.
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