Weird side effects from steroids

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

susie45
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 11/18/2008 6:17 PM (GMT -6)   
Hi
I have U.C. for about 4 years and had a flare up for almost a year now. First doc didn't want to put me on steroids new doc did and i am having weird side effects. Sugar, &  blood pressure are both low opposite from usual side effects. I am always confused and feel like I am drunk, also feeling very depressed. I have been on prednisone for almost a month. I am on 50 ml a day. I haveto wait for the bleeding to completely stop for a week and then take 5 pills for another week and then start decreasing. Does anyone have these side effects because i wake in the morning with the shakes and my blood sugar level is 65 to 70 not to mention i gained 20 pounds.  i was never one for gettting high so i hate this feeling and with all of this i am getting panic attacks feels like my heart is racing out of my chest.  thanks susie
 
I just added a title to your post

Post Edited By Moderator (Red_34) : 11/18/2008 6:18:22 PM (GMT-7)


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 11/18/2008 7:15 PM (GMT -6)   
Yes, that's how I feel although I don't check blood sugar. Very uncomfortable! That's a long time to be on such a big dose, is it working at all? What else are you taking?
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


susie45
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 11/18/2008 7:22 PM (GMT -6)   

hi petty

i started with 6 mg then decreased to 5 then 4 and when i went to 3 i started bleeding again he then put me back up  to 5 and i have been on that for a week i am also on asocal 1600mg daily. he want to take me off of asacol and try lialda


mh53mike
Regular Member


Date Joined Aug 2008
Total Posts : 149
   Posted 11/18/2008 8:40 PM (GMT -6)   
6mg?? thats nothing. I am surprised you feel anyside effects....
27y old male. Diagnosed with UC (lower proctitis) in 2004.
 
Current daily treatment:                             Probiotics & supplements:
2400mg oral asacol                                       Digestive enzymes
75mg azathioprine                                        folic acid & calcuim with V-D
20mg Prilosec                                              VSL#3 probiotic 
Diet:Little/no sugars, fats, carbs, caffine,yeast,breads,alcohol. Stay natural as possible. A not so strict form of the SCD.  
Results:1 Bowel movement in the morning no blood! Remission since 08Sept08
 
 


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 11/19/2008 3:09 AM (GMT -6)   
Susie, did you mean 60mg, then 50mg, 40mg, etc, using 10mg pills? The weight gain is a pretty standard side effect, and mood changes can also be attributed to prednisone. You might want to ask you doc about trying some rectal meds to help you get off the pred quicker. Also, adding a probiotic would probably help you out some.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Meds & supplements: Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort, Prednisone, flaxseed oil, L-glutamine.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 11/19/2008 3:32 AM (GMT -6)   
I can't comment on the pred, for I've never been on it......but has your doc never had you on any rectal meds such as Rowasa or Salofalk?

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec 2 or 3  +   1 or 2 Primadophilus Reuteri Pearls @ bedtime
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


GonnaGetThruThis
Regular Member


Date Joined Feb 2007
Total Posts : 55
   Posted 11/19/2008 6:22 AM (GMT -6)   
Hi Susie, I'm sorry to hear you are feeling like that.

I've had very similar side effects when I've been on a high dose for a prolonged period of time. It's one of the many many bad things about Pred.

The shakes, loss of concentration, dehyrdation, mood swings, weight gain, insomnia, depression are all quite common side effects. What dose are you actually taking, because your posts seem a lil confusing.

Maybe you shouldn't be on such a high dose and instead need to be complimenting the preds with something else?
Status: possibly flaring again?? :(

- 25 yr old female diagnosed January 2004 with UC - Left side
- Asacol 2 daily (400mg each)
- Azathioprine - 100mg daily


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 11/19/2008 8:03 AM (GMT -6)   
How are you taking the Prednisone? Do you take it once a day? It might help to divide the doses. I've posted about this on here before. When I take Pred, I have to split it up into 3 or 4 divided doses a day. It keeps it equal in my system. When I took it once or twice a day, I could always tell when my dose was coming due because I would feel really lousy, like my body was crashing. Maybe try the divided doses, it might help some.
Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 


susie45
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 11/19/2008 3:20 PM (GMT -6)   
hi all and thanks for the info i am sorry i am taking 50 mg daily at once in the morning.
i could deal with the side effects but what worries me is the low blood sugar anyone ever had that with pred. What is a probotic?

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 11/19/2008 5:57 PM (GMT -6)   
It returns good bacteria to our gut, because a lot of us have yeast that has taken over our colons. I'm sure others can explain it better! It's what they talk about is so good about yogurts, but stronger, medicinal.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, September 23, 2018 10:54 AM (GMT -6)
There are a total of 3,005,856 posts in 329,271 threads.
View Active Threads


Who's Online
This forum has 161807 registered members. Please welcome our newest member, Wimp7755.
327 Guest(s), 7 Registered Member(s) are currently online.  Details
DBwithUC, 07kr5, Vdang2k, BossJ, pasayten, Yellow19, colitisresearch