Power of Suggestion: When Drug Labels Make You Sick

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Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 11/18/2008 6:36 PM (GMT -6)   
Today in the Wall Street Journal, I think we have to watch out for this
 
Reason for edit: Lengthy articles are not allowed per forum rules.

 

 

Post Edited By Moderator (Red_34) : 11/18/2008 6:15:20 PM (GMT-7)


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 11/18/2008 7:00 PM (GMT -6)   
Very funny, I totally agree with this article. Even the part about how a doctor reacts to a drug- I know my own GI was pretty cavalier about Remicade & I've never had much fear while taking it. After I got so sick right after my 2nd infusion I was ready to give it up entirely, but he basically said I was crazy, to try it again. I'm glad I did. Very interesting article. Whenever I go for an infusion, I do worry a little, like "What if I picked up a bug & just don't know it yet & the Remicade knocks it into full-force action?"... & I just tell myself "Relax, settle down, you're fine, breathe..." And it's all good. And if that exact situation had never happened to me, I know that scenario would never cross my mind! As long as I'm aware that a huge part of it is mental, I figure I'm on top of the nocebo effects. I love that term too, "nocebo"...

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


Michigoose
Regular Member


Date Joined Oct 2008
Total Posts : 64
   Posted 11/18/2008 7:28 PM (GMT -6)   
Ditto and Amen tongue

Moderate to severe left-sided UC, Dx 1991
Lialda 2 per day
Prednisone for flares. SCD recipe yogurt daily for probiotics.
Fish oil caps and Multivitamin and Bee Pollen
Prima. Reuteri. L Glutamine, and iron supplement


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 11/19/2008 7:28 AM (GMT -6)   
I do the same thing. It is good to be educated about side-effects, but if you are going to make yourself get them, maybe ignorance is bliss. Luckily for me, if I induce a side-effect, it usually goes away after a couple of days, especially if the med is helping me. I get really disturbed when I get a side-effect that I wasn't expecting, because that means it is real, and not self-induced. The way I see it, if the side-effect lasts longer than a week, it is legit.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Meds & supplements: Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort, Prednisone, flaxseed oil, L-glutamine.


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5958
   Posted 11/19/2008 9:22 AM (GMT -6)   
     This brings to mind my parents....God rest their souls.  They would purchase the medicine...and mind you they had to pay full price for all their meds, which cost a fortune, read the side effects and say..."forget it, we aren't taking this, it could kill us."  When my husband and I cleaned out their house after dad passed and mom moved in with us, their basement looked like a pharmacy.  All the drugs they purchased and never took.  What a crying shame.  I attribute this to the book...Worse Pills Best Pills.  That was their Bible.  Pity they didn't read about the drug before purchasing it. 
     With all the meds I have to take, especially while flaring, I NEVER read the side effects.  Except with the case of Remicade.  I did a lot of reading about it when my GI doctor wanted to put me on it two years ago.  Glad I did.  It's good to be informed, but my parents went about it in the wrong way and it cost them dearly.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.

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