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Reelin Gator
New Member

Date Joined Jul 2008
Total Posts : 15
   Posted 11/18/2008 10:15 PM (GMT -6)   
Hey, I also wanted to ask if anyone has gone on cyclosporine or heard of doc thinks it could be good for me.

Veteran Member

Date Joined Sep 2005
Total Posts : 5162
   Posted 11/18/2008 10:26 PM (GMT -6)   
I have used Cyclosporine twice for severe UC flares.... make sure the GI that you are using is experienced with Cyclosporine; it's not one of those drugs that you just want to "try" but it is very safe if properly monitored by an experienced GI. Each time that I used Cyclosporine it required a lengthy hospital stay.

It is a very effective drug for treating a UC flare; I noticed significant improvements in about 4 days of being on IV Cyclosporine. And not too many horrible side effects either.

I would suggest that weigh everything out before starting Cyclosporine; also consider surgery. Remember that between 25%-35% of UC patients require colon surgery at some point in their life.

DX'd with Pan-Colitis June 2005
Current Status: Remission
Current Meds:  50 mgs 6-mp
Supplements:  Forvia multi-vitamin

New Member

Date Joined Nov 2008
Total Posts : 2
   Posted 11/19/2008 12:56 PM (GMT -6)   
I did two rounds of cyclopsporin in hospital in 2007. It allowed me to avoid the surgery but I was VERY VERY sick when i had it. I had to go back in hospital for a second round bcs the first doc didn't give me oral cyclosporin to maintain remission. Be sure if you do the iv you're remission is managed with oral cyclo for a few months.

I was symptom free for almost two years after that.

Good luck
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