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Reelin Gator
New Member


Date Joined Jul 2008
Total Posts : 15
   Posted 11/18/2008 10:15 PM (GMT -6)   
Hey, I also wanted to ask if anyone has gone on cyclosporine or heard of it........my doc thinks it could be good for me.

ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 5162
   Posted 11/18/2008 10:26 PM (GMT -6)   
I have used Cyclosporine twice for severe UC flares.... make sure the GI that you are using is experienced with Cyclosporine; it's not one of those drugs that you just want to "try" but it is very safe if properly monitored by an experienced GI. Each time that I used Cyclosporine it required a lengthy hospital stay.

It is a very effective drug for treating a UC flare; I noticed significant improvements in about 4 days of being on IV Cyclosporine. And not too many horrible side effects either.

I would suggest that weigh everything out before starting Cyclosporine; also consider surgery. Remember that between 25%-35% of UC patients require colon surgery at some point in their life.

--Keith
DX'd with Pan-Colitis June 2005
Current Status: Remission
 
Current Meds:  50 mgs 6-mp
Supplements:  Forvia multi-vitamin
 


SINCE2002
New Member


Date Joined Nov 2008
Total Posts : 2
   Posted 11/19/2008 12:56 PM (GMT -6)   
I did two rounds of cyclopsporin in hospital in 2007. It allowed me to avoid the surgery but I was VERY VERY sick when i had it. I had to go back in hospital for a second round bcs the first doc didn't give me oral cyclosporin to maintain remission. Be sure if you do the iv you're remission is managed with oral cyclo for a few months.

I was symptom free for almost two years after that.

Good luck
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