should i refuse a flex sig without anesthesia?

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TaylorB
Regular Member


Date Joined Jun 2007
Total Posts : 76
   Posted 11/19/2008 6:30 AM (GMT -6)   
i have enrolled in a drug trial.  they give two flex sigs...both without anesthesia.  i have had two hemmie surgeries and two fissure surgeries.  i think it is infinitely insensitive that a drug company in the business of making butt medications wouldnt spring for flex sigs with anesthesia.
 
what is your opinion?

UC Dude
Regular Member


Date Joined Aug 2005
Total Posts : 438
   Posted 11/19/2008 6:36 AM (GMT -6)   
Is it part of the trial?

If not, perhaps it is too risky for them in case they kill someone?
 


TaylorB
Regular Member


Date Joined Jun 2007
Total Posts : 76
   Posted 11/19/2008 6:43 AM (GMT -6)   

it is part of the trial.  they give you blood work, a tb test, a chest xray and these 2 flex sigs in different weeks of the trial.  the drug is a tnf blocker like remicade only they are testing it

sub Q instead of IV infusion. 


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 11/19/2008 8:20 AM (GMT -6)   
I've had flex sigs w/out anethesia. They really weren't painful, just a little uncomfortable. You might ask for some anti-anxiety drug if you are worried. An anti-anxiety would relax you and loosen up you muscles. I wouldn't worry about it though. The prep is still the worst part of any scope.
 
What is the trial for, if you are allowed to tell?  I've been contacted about trying something myself, but I'm doing okay right now, and I don't want to mess with things.  I told 'em to ask me again tomorrow though.  LOL


Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Meds & supplements: Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort, Prednisone, flaxseed oil, L-glutamine.


Old Hat
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Date Joined Feb 2007
Total Posts : 5191
   Posted 11/19/2008 9:59 AM (GMT -6)   
Flex-sigs are usually done w/o anesthesia. Ask if they can give you a shot of Demerol about half an hour before the procedure. Chances are that they don't want to specialize the routine for any one patient because, since it's a drug trial, they want to control all possible variables. Do remind them, though, that you've had prior "events" in that part of your colon. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 generic Colazal daily for maintenance of remission)

princesa
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Date Joined Aug 2007
Total Posts : 2204
   Posted 11/19/2008 10:01 AM (GMT -6)   
I'm never agreeing to one without anesthesia again, but from past discussions on this forum, I think I'm in the minority.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 11/19/2008 10:09 AM (GMT -6)   
     I've had several flex sigs and never  had anesthesia with any of them.  Although during the last one my blood pressure shot up to over 200.  But then again, I am an older person who has had high blood pressure for about ten years now.  I think it was the anxiety.  Make sure you are not allergic to Demerol.  I noticed that someone posted ask for a shot of Demerol before the procedure.  They gave me Demerol ten years ago during my very first colonoscopy while I was hospitalized.  My BP shot up to 210/110.  Doc said I am allergic to Demerol.  Well, heck, I never knew that because I never had Demerol before.  Maybe try Xanax or something like that before the procedure.  It really isn't anything to get too upset over.  It is just a bit uncomfortable, not painful.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 11/19/2008 11:00 AM (GMT -6)   
I've never had a sigmoidoscopy (the three GI's I've gone to have all done the full c-scope when they needed to see what was going on), so can't advise on the discomfort. If it's part of the protocol for the study, however, you probably can't remain in the study if you refuse.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


AKB
Veteran Member


Date Joined Mar 2006
Total Posts : 992
   Posted 11/19/2008 12:45 PM (GMT -6)   
I've had 3 flex sigs, no pain killers, nothing. They were horrendous, BUT i was flaring. The discomfort was not in the rectum but in the air pressure they pump into you. STRONGLY recommend the Xanax route, and you can most certainly ask if you can get some demerol. Your insurance will most definitely not cover the anesthesia if it's not part of the protocol, as they never want to have anything to do with drug trials.
Dx:

Left-sided UC, Jun 2005. Flex-sig only... clear for first 20cms, then inflamed through next 30cms.

Therapies:

Pharmaceutical: Lialda 2/day, Rowasa/hydrocort as needed
Probiotics: Primadophilus Bifidus
Naturals: Caprylic Acid, Vit ABCDE, Zinc, Turmeric, Bromelain, Fish Oil, Flax Oil


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 11/19/2008 12:50 PM (GMT -6)   
No! Come on, they're not THAT bad! I've had a bunch, never with any meds, & yes I hate them more than anything, would prefer a colonoscopy, but they only take barely 10 minutes, then it's over. The air is the worst of it, no doubt. Just awful! But I'm not scarred from it or anything...

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


perach
Regular Member


Date Joined Apr 2007
Total Posts : 116
   Posted 11/19/2008 1:49 PM (GMT -6)   
I've done several flex sigs without drugs-it's certainly not pleasant but it is totally bearable if you prep right. Totally agree the air after is the worst! In a sick way, I actually like watching the screen with my doctor to see what's going on in there.
-Lialda (4 pills/day), canasa, Align probiotic, kefir, multivitamin, calcium with vitamin d, iron


TaylorB
Regular Member


Date Joined Jun 2007
Total Posts : 76
   Posted 11/19/2008 3:11 PM (GMT -6)   
my situation is the hemmies and the fissures. i dont have a normal Butt hole! i will ask about the xanax and the demerol...definitely out of the study if i dont do the flex sig.

Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 11/19/2008 4:30 PM (GMT -6)   
I have flex sigs all the time, no prep and no drugs. It's all about personal comfort though since you have different problems which makes you concerned.
26 year old, Married, Female.
Diagnosed with UC since March 2007
Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 11/19/2008 4:37 PM (GMT -6)   
     The only prep was to take a Fleets enema about an hour before the sigmoidoscope and of course, couldn't eat anything after midnight the night before.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 11/19/2008 9:06 PM (GMT -6)   
All I know is I would never do a flex sig. again without some type of anesthesia or pain meds. My one and only was way too painful.
Diagnosed with UC March 2007; Asacol 4 tablets 3x/day; Rowasa; Canasa; Viactiv; Metamucil wafers; multivitamin; sublingual allergy drops


at wit's end
Veteran Member


Date Joined Jun 2007
Total Posts : 569
   Posted 11/19/2008 11:34 PM (GMT -6)   
I've never had a problem with the flex sig. Sure you cramp some from the air circulating inside your colon but it's nothing intolerable to me. I even lay there and watch them look at the lining of my colon on the screen. Pretty neat. It does not take more than 10 or 15 minutes at the most if that long. And I never have anesthesia for that.
Diagnosed with left sided UC in sigmoid colon and rectum 1986.
Put on Azulfidine 2 X 3 a day and Rowasa enemas 60mg.
Have been pretty much in remission overall other than a few flares over the past 21 years.
Medicine changed to Asacol 400mg 2 pills X3 times a day. Taken off all meds in 2004.
Diagnosed with acid reflux 2005. Put on Protonix 40mg.
Have been using Canasa 1000mg suppositories nightly since January 2007.
Was put back on Asacol 400mg 2 pills 2X a day in July 2007 maintenance. 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 11/20/2008 12:06 PM (GMT -6)   
I had many flex sigs when I participated in a drug study and never had anesthesia. I would not want the added risk anyway for what is really a simple procedure. Just ask them to " try to be as quick as possible, please!" And reschedule if you're having a bad day. Maybe they can use a topical numbing agent around your weary b-hole.

Oh, and I remember I was not to use an enema or fleet, they wanted to view things as normal, poo and all.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


at wit's end
Veteran Member


Date Joined Jun 2007
Total Posts : 569
   Posted 11/20/2008 3:48 PM (GMT -6)   
I am always expected to clean out for both things, the sigmoidoscope and the colonoscopy.
Diagnosed with left sided UC in sigmoid colon and rectum 1986.
Put on Azulfidine 2 X 3 a day and Rowasa enemas 60mg.
Have been pretty much in remission overall other than a few flares over the past 21 years.
Medicine changed to Asacol 400mg 2 pills X3 times a day. Taken off all meds in 2004.
Diagnosed with acid reflux 2005. Put on Protonix 40mg.
Have been using Canasa 1000mg suppositories nightly since January 2007.
Was put back on Asacol 400mg 2 pills 2X a day in July 2007 maintenance. 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 11/20/2008 5:08 PM (GMT -6)   
Since the prep is about the same for a colonoscopy, I'd much rather have a colonoscopy with meds rather than a sig without the meds. It was very painful for me; I've had two surgeries on my fallopian tubes which caused scar tissue to build in that area, so it was hard for them to get in and manuever the scope. It's all up to personal choice and what level of pain you can take. I consider myself to have a high pain tolerance....but I sure had one heck of a lot of pain with the sig but pretty much for the reason I stated above.

Carol

Remicade - will have my 25th infusion on November 26 
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Mommy pooh
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 11/20/2008 9:56 PM (GMT -6)   
I had a flex sig. earlier this year. Nothing to eat after midnight and 2 fleets enemas the morning of was all the prep. Much better than a full scope. I told him he was not going up there without knocking me out. He laughed at me and gave me demerol and versed just like he does on normal cononoscopies. My GI usually prefers the c-scope but in this case, he wanted to see what was going on at the end of my colon before we started 6MP.
  • 25 years old, married, Mommy to 22 mo. old 
  • Ulcerative Colitis since Sept. 2004
    • 1st flare Sept-Nov 2004
    • 2nd flare Aug. 2007-July 08 
  • Currently taking:75mg 6MP, 4 Lialda, Digestive Advantage Chrons/Colitis, Loestrin 24, and allergy shots once a month 
  • Past meds: Pred., Entocort, Dipentum, Asacol, and Canassa
  • 10/6/08 Found a 1cm kidney stone in right kidney.  Had the stone blasted and passed the fragments.

 


mh53mike
Regular Member


Date Joined Aug 2008
Total Posts : 149
   Posted 11/20/2008 10:09 PM (GMT -6)   

I dont think they should give anesthesia for such a simple procedure. Actually i thought they always keep people awake for a flex sig until i read a few posts on here. By the time they knock you out they would be waking you again its so quick.

 


27y old male. Diagnosed with UC (lower proctitis) in 2004.
 
Current daily treatment:                             Probiotics & supplements:
2400mg oral asacol                                       Digestive enzymes
75mg azathioprine                                        folic acid & calcuim with V-D
20mg Prilosec                                              VSL#3 probiotic 
Diet:Little/no sugars, fats, carbs, caffine,yeast,breads,alcohol. Stay natural as possible. A not so strict form of the SCD.  
Results:1 Bowel movement in the morning no blood! Remission since 08Sept08
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/21/2008 1:57 AM (GMT -6)   
I have anal issues too (perianal crohn's skin tags) and I feel for you, no one is allowed to touch me with either type of scoping or even a finger without me being completely under....those are my rules and I'm sticking with them...forever.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


:)
Regular Member


Date Joined Feb 2008
Total Posts : 182
   Posted 11/21/2008 2:04 AM (GMT -6)   
Had countless felxible sig's. Not comfy at all, mostly bec. of all the air. thankfully, its passable when its over.
It def. hurts much more if youre flaring! it was crazy pain. My first Colonoscopy and flexible sig i was in bad shape, a shot of valium in the arm barely did anything, i was furious at the dr. that i felt EVERYTHING. Mainly, bec. i expected to not feel anything and it HURT. ALOT.
but I just took it like a lady:)
I'm told that women tolerate pain much better than men.....
 
the next time around i was bolder and spoke up and said, while it was nice to experience a little valium it was not enough and it hurt. He was shocked to hear me say it, he thought It was peaches and cream. so i asked him if he ever had a colonoscopy:) he's over 60 at least, so he mustve had one. anyway, he said,"youre my best patient, you never said a word about it, i didnt know." I guess it doesnt pay to be so macho about it...
 
youll probably feel better about it when it moves into remission.
Dx: Dec. 2006 with UC
F, 23, NYC
Thank G-d - Prednisone then 6MP, Rowasa and Asacol brought remission
Now Asacol 4tabs 2x a day.
Reduced to 2tabs 2x a day. Soon had a very mild flare. Upped to 6 tabs 2x a day. Rowasa enemas nightly. Soon replacing that with Cortifoam (generic). Dr. says it's like shooting a mouse with an elephant gun....
 
Muiltivitamin, Iron and Folic Acid supplements


beckstar06
New Member


Date Joined Nov 2008
Total Posts : 1
   Posted 11/26/2008 8:15 PM (GMT -6)   
Hello, I am new this forum :) My boyfriend (age 24) has been having a lower GI bleed, and is scheduled for a flex sig next week.  He is pretty anxious , and I am wondering if there is anything he (or I) should know about.  He was told to take a fleet enema one hour before the procedure.  He had a dre in the office last week, and said it was very painful.  Should he ask for sedation/antianxiety?  Would I be able to be in the room with him during the procedure, or will I need to wait outside?  Thank you!

FitWithUC
Regular Member


Date Joined Nov 2008
Total Posts : 64
   Posted 11/26/2008 8:56 PM (GMT -6)   
I had one full awake last week, it was uncomfortable, but not painful! I just wanted it to be over.
Peter, 21. Puerto Rico
DX: Ulcerative Colitis as of 06/05
Remissions: Remission: 01/06 till 10/08
Current Treament: Asacol 2400 MG 2X daily, Rowassa nightly, 1MG Folic Acid, 40 MG Prednisone, Remicade, New ChapterĀ® Multivitamin, New ChapterĀ® All-Flora Probiotics, Dolomite Calcium Supplement
Status: Flare!!!!!!!!

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