One for the ladies...

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GonnaGetThruThis
Regular Member


Date Joined Feb 2007
Total Posts : 55
   Posted 11/19/2008 6:36 AM (GMT -6)   
I have noticed that approx 2 weeks before my period is due I start getting some of my bad symptoms kicking up again. Usually this includes alot of wind, some blood, urgency to the loo etc.

I mentioned this to my GP who is trying to get my system back on track and the only thing she suggested was to start taking the contraceptive pill.

Now with the combination of Preds, asacol, aziathyioprine etc I don't know if that's such a good idea. I hate being reliant on medications anyway so I'm a bit unsure whether this is the right way to go.

Has anyone else experienced this too? And if so, what do you use to help?
Status: possibly flaring again?? :(

- 25 yr old female diagnosed January 2004 with UC - Left side
- Asacol 2 daily (400mg each)
- Azathioprine - 100mg daily


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 11/19/2008 7:59 AM (GMT -6)   
I notice that a few days before my period, I start having some D.  I went off the pill years ago because I thought the hormones from it made my UC worse.  I'm not sure what the answer is, I guess it's just another one of those joys of being a woman with UC!

Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 


Winter
Regular Member


Date Joined Sep 2005
Total Posts : 210
   Posted 11/19/2008 8:22 AM (GMT -6)   
Lots of women have that problem right before their periods. I have a friend who doesn't have UC that has D 2 weeks before her period. Hormones as usual :)
Lialda 3 tablets  daily
Remicade every 8 weeks
Folid Acid daily
Methotrexate 3 times a week
Align Probiotic
 


GonnaGetThruThis
Regular Member


Date Joined Feb 2007
Total Posts : 55
   Posted 11/19/2008 8:36 AM (GMT -6)   
But D with blood and mucus???
Status: definitely flaring again :(

- 25 yr old female diagnosed January 2004 with UC - Left side
- Asacol 6 daily (400mg each)
- Azathioprine - 100mg daily
- Prednisolone (10mg daily since 13/11/008)


madabs
Regular Member


Date Joined May 2008
Total Posts : 388
   Posted 11/19/2008 8:56 AM (GMT -6)   
Those of my troubles that I do not blame UC, I blame on my period.  Together they are the evil stepmother to my cinderella. You can guess where I am in my cycle right now.
 
My experience is I get more severe symptoms just before and during my period.  Yesterday and today I woke up with D, blood and mucus with an emphasis on the blood and mucus.  All compliments of the tag team of uc and menstruation. skull
 
 
UC diagnosed 10/05, first symptoms 1983
asacol 12/daily and rowasa as needed 
Trying out Culturelle Probiotic
past rx: colozal, lialda, canasa
i can't complain, but sometimes i still do.  lifes been good to me so far.  -joe walsh


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 11/19/2008 9:20 AM (GMT -6)   
For as long as I can remember, I always had "mini" flares before my periods - yes even blood, mucous, D etc. It was getting so bad that these mini flares were turning into real flares that went out of control. That is why I opted for the endo ablation - to help with my flares and my painful periods as well. I still have PMS symptoms but to a lesser degree. I still get watery stool but that is it now. I was not a candidate for birth control pills because of my past history - I am extremely sensitive to hormones because they cause intense migraines as well as me being over 35 and a smoker. It seems that women just can't get a break eh?!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 11/19/2008 9:21 AM (GMT -6)   

Even before UC I always had poops just before and during my period.  I think a lot of women do.  My group of girlfriends even refers to them as "period s--ts."  smilewinkgrin

I'm guessing that these extra poops you're having encourage more blood and mucus simply because you have UC.  Just my guess.


Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Asacol 800 MG 2X daily, Iron 325 MG 2X daily, Zoloft 50 MG daily, Multivitamin.
Diet:  Spinach/sunflower and low-residue.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema.
Status:  Near total remission
 
 
 
 


GonnaGetThruThis
Regular Member


Date Joined Feb 2007
Total Posts : 55
   Posted 11/19/2008 9:28 AM (GMT -6)   
that's so reassuring to know!

When i mentioned it to the GP she seemed baffled and could only suggest one option - ANOTHER medication :(

What do you all take for controlling the PMT symptoms? I have read that Evening Primrose oil is beneficial but not really tried it yet. Anyone tried it?
Status: definitely flaring again :(

- 25 yr old female diagnosed January 2004 with UC - Left side
- Asacol 6 daily (400mg each)
- Azathioprine - 100mg daily
- Prednisolone (10mg daily since 13/11/008)


GonnaGetThruThis
Regular Member


Date Joined Feb 2007
Total Posts : 55
   Posted 11/19/2008 9:30 AM (GMT -6)   
@ Red_34 - I have the same kind of experience, my PMT symptoms kick off the UC and then it all just snowballs downhill from there.

What's endo ablation??
Status: definitely flaring again :(

- 25 yr old female diagnosed January 2004 with UC - Left side
- Asacol 6 daily (400mg each)
- Azathioprine - 100mg daily
- Prednisolone (10mg daily since 13/11/008)


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 11/19/2008 9:32 AM (GMT -6)   
Yep yep yep. It was so bad that I did start bc and that helped for the most part.
Sam
19 year old college student diagnosed with ulcerative colitis at 16
Remission since January/April 2006
400mg Asacol 2x, 10mg Elavil, 75mg Effexor XR for GAD

"If you don't like something change it. If you can't change it, change your attitude"
Maya Angelou


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 11/19/2008 10:00 AM (GMT -6)   
You may want to look into bioidentical hormones as a way to naturally balance your hormones and cycle and reduce PMS symptoms. Check out Suzanne Somers' book, Ageless: The Naked Truth about Bioidentical Hormones to learn more:

http://www.amazon.com/Ageless-Naked-Truth-Bioidentical-Hormones/dp/0307237257/ref=sr_1_2?ie=UTF8&s=books&qid=1227106768&sr=1-2


Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 

Post Edited (princesa) : 11/19/2008 12:09:19 PM (GMT-7)


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 11/19/2008 10:38 AM (GMT -6)   
BC pills is what I think caused my current flare (which has been going on since Feb.) so I'll never take it again. But yeah, my periods are horrible! Last month, I was up all of the first night with diarrhea and nausea. I take Tylenol, which helps with cramping but not anything else.
Female, Age 20
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (4 infusions), 2.4 g Lialda, 1 Forvia, 6 Colazal/day, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 11/19/2008 11:23 AM (GMT -6)   
Endometrial ablation is where the doc burns off a layer in your uterus. It had stopped my periods which in turn stopped the horrible excruciating menstrual cramps I get and the mini flares.  But the endo ablation is not for everyone.  It is mainly for women that are done having children or not going to have children and it has to be medically necessary before a GYN will do it.


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 11/19/2008 12:39 PM (GMT -6)   
yeah, my symptoms kick it up a notch the week before my period too- I just deal with it. I've never been on the pill, & really dislike the thought of taking hormones. Plus I take enough meds as it is. Things settle down when my period ends. Of course, I only get my period like 4-6 times a year, thanks to god-knows-what! But I find if it's an especially bad period, the UC symptoms beforehand are especially bad, & vice versa.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 31006
   Posted 11/19/2008 1:00 PM (GMT -6)   
You should consider rectal meds maybe every second night once you ovulate. 5ASA is still an antiprostaglandin, and will help with some of the hormonal symptoms that affect the bowel during your cycle. Of course, if you have endometriosis, those symptoms might require other intervention...but do try the Rowasa (or Salofalk if you're not in the US)...

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec 2 or 3  +   1 or 2 Primadophilus Reuteri Pearls @ bedtime
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 11/19/2008 1:48 PM (GMT -6)   
Count me in on the things get worse at uc time. The gas alone is a killer. I'm 49 so the idea of bc pills doesn't sound that great considering other complications. So I just ride it out. I am a pamprin girl.
Age: 48
location: Seattle, Wa
Diagnosed with UC in June 2006
Medications: Asacol 3 pills 3 x/day, Canansa am & pm, Atenelol 1 x/day, Ativan as needed
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 11/19/2008 2:29 PM (GMT -6)   
My symptoms Definitely get worse around and during my period. It's terrible because I can't even wear tampons anymore, because every time I have to go to the bathroom so much and every time I do, it pushes the tampon out of "position", and you can't change your tampon every hour or more, it's just uncomfortable and unnecessary, so now I just wear pads, which I hate but oh well. :(

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Azasan 100mg

 
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 11/19/2008 2:30 PM (GMT -6)   
Oh, and I've been on birth control (and a few different types) for years, and it's never helped, unfortunately.

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Azasan 100mg

 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/19/2008 3:41 PM (GMT -6)   
It's common with having IBD, the fluctuations of hormones can exacerbate IBD symptoms...and there's no guarantee that the BC pills will help, infact for some, including myself, it made my symptoms worse because afterall BC pills do contain hormones. You won't know until you try of course because we're all different, but taking a good probiotic is a really good idea because we tend to have bacterial over-growth issues with having IBD and BC pills can also add to that issue. So taking a good probiotic daily is wise whether or not you're on the pill.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


at wit's end
Veteran Member


Date Joined Jun 2007
Total Posts : 569
   Posted 11/19/2008 11:47 PM (GMT -6)   
I am in the middle of a flare right now. And I am curious about something. I was put on BC pills back in June at age 48 due to Provera not stopping what was an ongoing period, ended up being 45 days in length. The pills stopped the period finally. However, I've noticed that with my past 3 pap smears, within a couple of weeks I've had a flareup. The first was back in January after a cryotherapy procedure back the end of December, the second in July after the pap smear at the end of June and the third showed up 2 weeks after my pap smear the end of October.
 
I am having slight issues on and off with urgency and the staining of my pants from the urgency, twice in a row the other night, there is bright red blood, mainly on the tissue, but sometimes when my stools are hard, there is some present on the stools. This all started with again the problem of multiple bm's that came on. For a week now or a little over I've had bright red rectal bleeding. I called my gastro doctor yesterday asking if they could call me in some rectal enemas of Rowasa since I had just been in there 3 weeks before and was feeling great, things were very normal. 10 days later that totally changed.
 
I am also noticing low pelvic cramping with this and have on and off for a few weeks. I started my enemas last night. I'm hoping this will improve soon as I do not want to spend Thanksgiving with this problem. My rear feels swollen and feels really heated inside or burning. Wondering if this could be hemorrhoids? I sit a good deal of the time at work, and at home afterward some. But I am up and about at home a good deal doing things around the house.
 
I am taking probiotics and have been since this flareup started. Any thoughts would be appreciated. This is the second flare I've had since September. And this really stresses me.
 
Diagnosed with left sided UC in sigmoid colon and rectum 1986.
Put on Azulfidine 2 X 3 a day and Rowasa enemas 60mg.
Have been pretty much in remission overall other than a few flares over the past 21 years.
Medicine changed to Asacol 400mg 2 pills X3 times a day. Taken off all meds in 2004.
Diagnosed with acid reflux 2005. Put on Protonix 40mg.
Have been using Canasa 1000mg suppositories nightly since January 2007.
Was put back on Asacol 400mg 2 pills 2X a day in July 2007 maintenance. 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 11/20/2008 7:32 AM (GMT -6)   
You're right, it does sound like hemmies. I have the same feeling of burning and a swollen feeling especially upon going to the bathroom to a bit afterwards. I believe I have internal/slightly outside hemmies. If the Rowasa doesn't help you, ask the doc if you can try either the steroid foam or the steroid suppositories to ease the rectal inflammation and/or hemmies.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA
To help Healingwell - click here: DONATE
 
 
 
 

 
 


at wit's end
Veteran Member


Date Joined Jun 2007
Total Posts : 569
   Posted 11/20/2008 12:09 PM (GMT -6)   
I have suppositories also but I can tell this has gone slightly up into my side as did the previous flare and that is why they are having me use the enemas. The suppositories did me no good last time as they haven't helped this time. So I'm hoping things will improve with this. I do not like the rectal pain either that I am having on and off. Very miserable.
Diagnosed with left sided UC in sigmoid colon and rectum 1986.
Put on Azulfidine 2 X 3 a day and Rowasa enemas 60mg.
Have been pretty much in remission overall other than a few flares over the past 21 years.
Medicine changed to Asacol 400mg 2 pills X3 times a day. Taken off all meds in 2004.
Diagnosed with acid reflux 2005. Put on Protonix 40mg.
Have been using Canasa 1000mg suppositories nightly since January 2007.
Was put back on Asacol 400mg 2 pills 2X a day in July 2007 maintenance. 

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