Teenage Support

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Sandroulla
New Member


Date Joined Nov 2008
Total Posts : 2
   Posted 11/19/2008 9:37 AM (GMT -6)   
I have a beautiful 17 year old neice who has recently been diagnosed with ulcerative colitis and she is finding it a little difficult to cope with. She has matured very quickly as a result of the diagnosis and now finds she has little in common with her schoolmates, who are only interested in hanging around in the park and drinking, so she is feeling very isolated as they do not understand her situation and do not seem very interested in hearing about it.
 
I would love to put her into contact with other teens who are going through or have gone through similar circumstances so that she does not feel quite so alone. Her confidence has taken a severe blow and the thought of boyfriends and fun times seem to impossible for her to think of at the moment.
 
I have tried to get her involved in forums like this but she is a little reluctant at the moment as she is not sure she would get any response - I hope I can prove to her otherwise!
Thank you.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5962
   Posted 11/19/2008 9:42 AM (GMT -6)   
     There are quite a few young people involved with this forum.    Your niece probably feels isolated right now but she needn't feel that way. 
     
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


lil-momma
Regular Member


Date Joined Feb 2008
Total Posts : 132
   Posted 11/19/2008 11:10 AM (GMT -6)   
I have tried to get my daughter involved on here as well as other online groups and she too is reluctant. This has been a huge support for me, basically the one place that I find comfort, support and answers. My daughter is 16 now and was diagnosed over a yr ago w/ crohn's. She has her times but for the most part has matured beyond her yrs. She does well most of the time. She has involved herself with multiple clubs at school and in the community. These seem to help her as she is occupying herself and helping others. My advice for you, would be to offer her support so she knows she can come to you and she will hopefully find what works for her. My heart goes out to you as I have been in your shoes and it isn't a good place to be. Much love and laughter to both of you!
32 yr old Dx w/UC in 2001 - some what controlled by diet. I take multi-vitamins & probiotics.
Mother to 16 yr old daughter dx w/CD 9/07- she had surgery for abscesses 11/07, ileocolectomy/resection 10/08. She is taking multi-vit, iron for anemia, probiotics, bentyl prn, prilosec 20mg-x2, 6 mp 50mg-x3


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 11/19/2008 11:18 AM (GMT -6)   
Hi, welcome to Healingwell :) I'm sorry to hear that your neice got this diagnosis. It is not easy no matter what age you are and I can't imagine having to deal with it while being a teenager. We do have some teens on here that have Uc and we are a very active forum. You can also tell your neice about http://www.dragonpack.com/ This is a great website for kids and teens to talk about their health or to read other stories. Sometimes knowing that they aren't the only ones out there with Uc can be an assurance.


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA
To help Healingwell - click here: DONATE
 
 
 
 

 
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 11/19/2008 11:49 AM (GMT -6)   
Hi! I hope you can convince your neice to join, HealingWell is such a great place. I was diagnosed when I was 14 years old and found this place a few years later and I really wish I had found it in the beginning! It has been an enormous amount of help and a source of great information and support.

As if being a teen isn't hard enough, being a teen with UC does seem almost impossible at times, for sure. You really find out who your true friends are. But let her know it's not the end of the world, not by a long shot. With a good GI she can find a medication plan that could do wonders, and she will start finding out what things she can tolerate and what things she cannot. She can still live a perfectly normal life, it might just be a little difficult right now until she gets her footing. And I know how terrifying the prospect of dating is, especially when the typical date is dinner and a movie and you're worrying whether you'll even make it through the first part. But a lot of times, when I'm out having a good time, I find that my stomach often behaves itself. And if I'm worried, I do some pre-emptive planning and down some Pepto and/or Immodium beforehand.

Anyway, support is definite crucial and will be so helpful in dealing with this disease. She should do as much research as she can to try to understand what she's going through, and talk to people even if they're not her age to get answers to any questions she might have. I hope we see her here soon! :)

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Azasan 100mg

 
 


Sandroulla
New Member


Date Joined Nov 2008
Total Posts : 2
   Posted 11/21/2008 7:54 AM (GMT -6)   
Thank you all very much for your responses. I will pass this link on to my neice and hopefully she will feel encouraged to get involved a little.

zoeleigh
New Member


Date Joined Nov 2008
Total Posts : 1
   Posted 11/22/2008 8:23 AM (GMT -6)   
hiya there
 
as i have already been introduced very nicely by my auntie there no need for me 2 say who i am.
 
Thank you so much for all your advice it means so much. you are right it is very hard and i am coping quite well its just i have no one to talk to. All my friends seem to not want anything to do with me. And its something i really need at the moment. But i supose you do realise who your real friens are and ive realised my only real friends are my famil that have been the best support a person but its not the same. I just want someone to go girly shopping with or have a sllepover. Just be a normal teenager.
 
xxxx

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 11/22/2008 10:03 AM (GMT -6)   
Hi Zoeleigh :) We may not be able to go girly shopping with you but we all can definately relate to what you are going thru. I was not a teen when I was diagnosed but I was 22 years old. I know what it's like to just want to be normal. You found a great website with many caring and compassionate people so don't hesitate to post about your concerns, fears or if you should have any questions.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA
To help Healingwell - click here: DONATE
 
 
 
 

 
 


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 11/22/2008 11:19 AM (GMT -6)   
I'm SO glad you joined! You have found the best website and in time you'll find out just how much this place rocks! I was 15 when I started the diagnosis process and no one in my family has/had it so this place was a godsend. Its so hard when you're in high school and just wanting to be a normal kid but you'll get through it. Trust me girlie you are not alone! :)
Sam
19 year old college student diagnosed with ulcerative colitis at 16
Remission since January/April 2006
400mg Asacol 2x, 10mg Elavil, 75mg Effexor XR for GAD

"If you don't like something change it. If you can't change it, change your attitude"
Maya Angelou


AKB
Veteran Member


Date Joined Mar 2006
Total Posts : 992
   Posted 11/22/2008 1:46 PM (GMT -6)   
what your friends don't tell you is that many of them have very serious issues too-- be it allergies, IBD, ADHD, whatever... no one is perfect, and everyone tries their best to pretend to be. As you get older, everyone faces and accepts that and you'll have no problem finding friends that get it. In high school, it is tough but your crowd will switch from immature children to the people focused on their future. I try to find the best in everything, and the misery of IBD for me, which left me home every weekend while my friends were out partying and drinking, to work incredibly hard on my passions instead-- which have made my life a much better place in the end than a couple nights out drinking.

It's hard to explain, but we understand, and it will be OK.
Dx:

Left-sided UC, Jun 2005. Flex-sig only... clear for first 20cms, then inflamed through next 30cms.

Therapies:

Pharmaceutical: Lialda 2/day, Rowasa/hydrocort as needed
Probiotics: Primadophilus Bifidus
Naturals: Caprylic Acid, Vit ABCDE, Zinc, Turmeric, Bromelain, Fish Oil, Flax Oil


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 11/24/2008 2:00 PM (GMT -6)   
Hi and Welcome to HW, This is an outstanding place. You will meet ppl here you can talk to or a place to vent if needed we are always here for you.

teddybear
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis


FitWithUC
Regular Member


Date Joined Nov 2008
Total Posts : 64
   Posted 11/24/2008 2:32 PM (GMT -6)   
zoeleigh said...
hiya there


as i have already been introduced very nicely by my auntie there no need for me 2 say who i am.



Thank you so much for all your advice it means so much. you are right it is very hard and i am coping quite well its just i have no one to talk to. All my friends seem to not want anything to do with me. And its something i really need at the moment. But i supose you do realise who your real friens are and ive realised my only real friends are my famil that have been the best support a person but its not the same. I just want someone to go girly shopping with or have a sllepover. Just be a normal teenager.



xxxx



Hello there!! I'm new too here blush I'm 21 from Puerto Rico and I was diagnosed at just about your age, (18), I'm very social and also a university student so you can hit me @ my MSN rocker_n_poet@hotmail.com I know how hard can it be sometimes when your own friends don't exactly know what you're going through, luckily there are some best friends that know it and are always there for me. Hope to have a chat with you sometime.

take care and thanks to your aunt for bringing you here.
Peter, 21. Puerto Rico
DX: Ulcerative Colitis as of 06/05
Remissions: Remission: 01/06 till 10/08
Current Treament: Asacol 2400 MG 2X daily, Rowassa nightly, 1MG Folic Acid, 40 MG Prednisone, Remicade, New ChapterĀ® Multivitamin, New ChapterĀ® All-Flora Probiotics, Dolomite Calcium Supplement
Status: Flare!!!!!!!!


UC-V
Regular Member


Date Joined Jun 2004
Total Posts : 86
   Posted 11/25/2008 7:53 PM (GMT -6)   
Hey there,

I was diagnosed at 20 and I am now 24 and I can tell you its been very hard and still is! But this forum has really helped me especially in times of desperate need. You may think your alone BUT YOUR NOT!!!! You may feel like no one will understand, start a post here and you will see how quickly people respond telling you they are going through the same thing!

One of the first people I told about my UC was a family friend, a well educated adult, who I thought i could sympathize with. Her reaction, "Ewww thats gross, so is your gut broken or something?" Given that first experience I was very reluctant to tell anyone about UC. But I see you already have a wonderful caring aunt who you have to talk to and is interested in helping you.

You really do learn who your true friends but Ive also learned NOT to deny faith in them completely. It took me 3 years to tell my best friends, which was only a year ago, about this condition. And guess what, they understood and then yelled at me for not telling them sooner! This doesnt mean that I tell any and everyone, I'm still very selective but at least Im not dealing with it on my own anymore.

And in terms of boyfriends. I dated someone for 5 years and didnt tell him. I just said i had stomach problems and even tho he pushed me to tell him I just couldn't. I was so embarrassed by it. When your ready and come to terms it will get better. I am not fully there yet but I'm much further than when I started. I started dating an old boyfriend this summer and was open with him. He made me feel really good about myself and said I dont think of you any different and not to be ashamed. Even though we are no longer dating, that has to be one my my best moments, to give me hope that someone didnt see me as a burden, broken, or unlovable.

I can't guarantee all the responses will be positive, that there won't be days where you want to crawl into a dark hole, or you simply just want to rip your gut out....but we're here for u...:)
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