I am on 5 mg/kg, which from my observation on this forum seems to be the "standard" dose. How does anyone end up on the higher, eg double dose- failing to get remission and off prednisone on the "standard" dose? Those of us who go on Remi are usually in dire straits to begin with, so I'm surprised that one would, to paraphrase the Untouchables movie line, "go to a knife fight with a knife" as opposed to a gun. I know Remi is incredibly expensive, and most of us on it are lucky that our insurance covers us. Just wondering. I'll bring it up with my GI next visit. Two infusions done, next will be after a 4 week gap, then every 8 weeks. Got some results in terms of bowel movements an formed stool, but the pain remains very nasty.
Pancolitis 20 years ago, full med-free remission 10 years,
Flaring/simmering on and off ever since, allergic to all 5ASAs
10 20 17.5 15 12.5 10 mg 8 7.5 20 17.5 mg pred, 100 mg Imuran
TCM, Probiotics (Primal Defense and others), DMSO, TSO, hookworm
Turmeric/circumin, boswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie