Non-ulcer dyspepsia IBS with your UC, anyone?

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Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 11/20/2008 4:20 PM (GMT -6)   
I have a mysterious but very chronic (24/7 but it tends to be worst at night, but can be nasty any time) symptom that may or may not be from my UC and was wondering if anyone else has this. 
 
This is not officially diagnosed in me or anything (who the heck needs any more diagnoses espcially if it is useless in terms of treatment) but I know I have IBS concurrent with my UC, and 80% of the time that IBS is in the form of a sharp, burning, clenching pain in the center of and a few inches up from my belly button, just below where my rib cage meets the center of my abdomen.  When it hurts there, I can actually push in and feel a little click on the tissue.  I've been scoped up and down, including upper GI and upper GI barium etc and they are positive I have nothing inflammatory in the upper system, and colonoscopies don't show anything other than the usual inflammatiion - past and present (since I am not in full remission) associated with UC.  Well, upper GI scans once revealed a very small hiatial hernia, but I was told categorically it is way too small to cause symptoms and would be considered pretty "normal" in any adult over 30 years of age- at least not the least bit unusual and certainly not enough to cause any symptoms.  I have even had an ultrasound for the gallbladder come up dry.  It is not GERD by the way, although when the pain is bad enough it can cause a bit of reflux.  But it doesn't respond to stuff like Tagamet, Pepcid etc.  Anyway, just wondering if there is anyone else on this forum who suffered or suffers from this sort of mystery pain.  Maybe I should post this in the IBS forum, but I can't help but think it is an IBS that is triggered or amplified by the presence of UC activity in me.  Oftentimes this pain worsens as I try and wean off pred, but perhaps that is just the collateral benefit of pred reducing the pain of this local IBS.  Also, this pain, though centered in this one spot, seems to sometimres spread out and radiate to general UC-like pain in my colon, which I assume is outright inflammation.
 
One trigger seems to be supplements of any sort- even mine which are mostly without fillers and additives.  This is tough because I rely on supplements to combat and deal with nutritional issues from having UC, being on pred, etc., but as far as this symptom goes, they are least if I take no supplements whatsoever,, and worsen as I take more supps.  However, if I take no supps, in particular no probiotics, my UC will gradually worsen (i.e. probiotics do benefit the UC a little bit even though not alot), and I consider it too dangerous not to take calcium, vit D etc while on prednisone.
 
 


Pancolitis 20 years ago, full med-free remission 10 years,
Flaring/simmering on and off ever since, allergic to all 5ASAs
10 20 17.5 15 12.5 10 mg 8 7.5 20 17.5 mg pred, 100 mg Imuran
TCM, Probiotics (Primal Defense and others), DMSO, TSO, hookworm
Turmeric/circuminboswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie
 
 
 

Post Edited (Probiotic) : 11/20/2008 3:23:26 PM (GMT-7)


ErinD
Regular Member


Date Joined Jul 2008
Total Posts : 94
   Posted 11/20/2008 6:45 PM (GMT -6)   
My dad had he same exact symptoms as you, especially the 'pushing on the area and almost getting a click' piece.  He had a hietal hernia as well.  Even though yours may have been small at the time could it have gotten worse?  I know medications didn't help him either, he had to mostly change his diet to control it and he eventually had it repaired.

Diagnosed with UC 3/2008
10mg Prednisone
75mg 6-MP
Calcium + Vit D
Probiotics
Entocort 9mg daily
800mg Asacol 3X daily
Bentyl
Lomotil
Dicyclomine
Prevacid
 


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 11/20/2008 6:56 PM (GMT -6)   
Hey thanks, Erin. The upper GI scoping or scan that found the hiatial hernia was coincident at the time with the same sort of pain I now have and have had in spurts for years... so I don't think it has got any worse (though I am having a flare of it right now). Hmm, if I ever have this silly tubing (colon) removed I should ask them to go and tweak that while they have me opened up, lol.  I'm a bit confused though by the location of the pain versus all my reading on hiatal hernias.... in theory the burning pain should be up higher, hence the terms "heartburn" etc., but that location a few inches above the belly button seems  abit low for the stomach/esophagus junction.  I'll ask my GI.  Not keen to do another barium swallow- those sort of drinks seem to irritate my already inflamed UC colon.  But if I am entering a UC remission, slowly, via Remicade I would sur elike to get to the bottom of this nasty and chronic burning pain.


Pancolitis 20 years ago, full med-free remission 10 years,
Flaring/simmering on and off ever since, allergic to all 5ASAs
10 20 17.5 15 12.5 10 mg 8 7.5 20 17.5 mg pred, 100 mg Imuran
TCM, Probiotics (Primal Defense and others), DMSO, TSO, hookworm
Turmeric/circuminboswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie
 
 
 

Post Edited (Probiotic) : 11/21/2008 1:13:33 AM (GMT-7)

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