Lialda - anyone taking it? (40 days till you feel better)

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ZosoKitty
New Member


Date Joined Nov 2008
Total Posts : 6
   Posted 11/21/2008 6:19 AM (GMT -6)   
Good morning,

My doc put me on Lialda and has told me that it takes about 40 days before you really really start to feel the effects of the drug.

I've been on it for 2 weeks now and I'm feeling better in that my stomach isn't getting as bloated, not having as many gas pains, and i think the inflammation is down a lot. I also do not have nearly the urgency and # of visits to the restroom. BUT there is still blood --- I had about 2-3 days with no blood and I was all excited, but this morning I was back to the "murder scene".

I wonder if my doc meant it would be about 40 days until the blood stops....anyone know?
I'm also doing the Rowasa enemas 1x/week but I might increase that to 2-3x/week for a while - get aggressive.
29-yr-old female
Diagnosed October 2008 (originally told UC, then rediagnosed w/ Crohn's after biopsies)
Rowasa (1x/day)
Lialda (1x/day)


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 11/21/2008 9:42 AM (GMT -6)   
Hi - the first time I was put on Lialda I was in a flare but I had very little bleeding.  The Lialda and Canasa started to work within about a week and gradually helped more over the next few months BUT...then I flared again five months later and the flare was much worse with lots of bleeding.  I started Lialda again (along with Canasa) at that time and it did not help at all to stop the flare.  To get the flare under control and to stop the bleeding I had to take pred along with the Canasa and the Lialda.  I was on pred for 3 1/2 months because the flare was just that hard to stop...I never stopped the Lialda - in fact I still take it now to try to keep me in remission...with all that said...Lialda probably works differently for different people and different situaitons.  My doctor did say that in general that Lialda for me anyway, is to be used more as a preventative drug...so I would say not to wait too long...if the Lialda is not working to control the bleeding...I waited too long to go back to the doctor - kept thinking the Lialda would work...by the time I went my flare was WAY out of control. 
Dx 2006 right after the birth of my daughter
Lialda varies 2-4 pills a day
Canasa on and off as needed
Probiotics
Just tappered off pred


SocalJohn
Regular Member


Date Joined Oct 2008
Total Posts : 160
   Posted 11/21/2008 5:41 PM (GMT -6)   
Yeah it should work almost right away. Lialda and Asacol are Anti Inflammatorys. They have a special coating so it breaks open when it gets to the intestines, and puts the medicine where the problem is. He probably meant it would be 40 days till the bleeding stops.

Typically though, These drugs are given along with 6-MP or Prednisone. Prednisone works right away, but 6-MP can take 6-12 weeks before it starts working.

Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 11/22/2008 7:06 PM (GMT -6)   
Asacol, Colazal and Lialda didn't work on their own for me. I am currently on Lialda with Remicade infusions every 6 weeks and nightly either Rowesa or Canasa. I had been on Prednisone from April 2006 to April 2008. I'm not sure the Lialda is even doing anything -- I was taking one of the three of those drugs since diagnosis but it seems the other meds were what got things under control finally. My GI says the Lialda will help me stay in remission now that I've finally gotten there.

The best thing about the Lialda is you only have to take it once a day.

Meesh
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Finally achieved remission mid October 2008!!
11 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08; 8/15/08, 9/26/08; 11/08/08; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Rowesa and/or Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D; Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro

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