i need advice with diet

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

susie45
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 11/21/2008 3:46 PM (GMT -6)   
hi all
 
i am on this dreaded drug prednisone which making me so weird. I am very depressed i mean to the point where i am giving up on things i usually wouldn't waiting for the doc to return my call i have been bleeding for almost a year started prednisone about a month started with 60 ml and and now on 50ml i stopped bleeding for 4 days and had a major flare today.  i believe it is triggered by the foods i am eating i changed docs and both said uc has nothing to do with diet.  Ever since i started taking the prednisone my sugar has been in the 60's which is followed by shaking. I have been eating sugar (candy, Cake, cookies) like i am addicted i can get enough and i cant get it in fast enough. If anyone has any info on what to stay away or what to add to my diet please let me know sometimes i feel people who are going through this can know more than some docs
thanks really  smhair need to come off of prednisone

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 11/21/2008 5:00 PM (GMT -6)   
Prednisone can make you SO hungry! Give in to it? But many say sugar can trigger problems, so try something not sugary but what will make you feel better...pamper yourself through this! I eat potato chips, bad but so good and not irritating to me. The weight comes back off when you get off prednisone, it may take a while so don't beat yourself up about it.
Diet is so different for everyone, and it doesn't cause UC but you can figure out what your trigger foods are. My worst is iceberg lettuce, and a lot of people can't handle salad or high fiber during a flare.
Pamper yourself, be well!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5958
   Posted 11/21/2008 5:06 PM (GMT -6)   
     You might want to try staying on a low residue diet while flaring.  Prednisone plays havoc with my emotions too, so I know what you are going through.  I've been off the pred for almost three weeks now...yippeee!  This is after a seven month flare which had me on the prednisone for the most part.  Another side effect was the horrible insomnia!  I had to take Ambien cr for that.  Now I sleep like a baby.  I am confused by the fact that your blood sugar is so low.  Usually prednisone increases blood sugar and pressure.  I wish you well and hope you improve.  Any questions you can email me at polishprincess46@yahoo.com.

62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 11/21/2008 5:09 PM (GMT -6)   
Ahhh, so sorry you are having such a hard time. UC is such an ugly disease. When I was diagnosised my GI told me to eat a bland diet, white breads, no red meats, no dairy, no sugar, if you can't see thru it don't drink it, stay away from fried foods and greasy foods like McDonalds and such. I pretty much did that thru the worst part of my flare.

Like Peety said, diet is different for everyone. This is such an individualistic disease. I don't take the Prednisone, but felt compelled to respond in hopes that I may be of some help.

I will pray you feel better soon!

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 11/21/2008 5:16 PM (GMT -6)   
A diet high in sugar is going to make UC symptoms worse. I'd recommend you check out The New Eating Right for a Bad Gut for guidelines on improving your diet to help heal your gut. This book covers the foods that generally are acceptable for people with IBD and the foods that often cause problems. There's also a special section on Omega-3 foods and supplements to reduce inflammation.

I'd also recommend you read Coping With Prednisone: It May Work Miracles, But How Do You Handle The Side Effects? for tips on dealing with the munchies, carb cravings and other side effects of pred.

http://www.amazon.com/Coping-Prednisone-Other-Cortisone-Related-Medicines/dp/0312155026/ref=sr_1_1?ie=UTF8&s=books&qid=1227309296&sr=1-1


Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


mh53mike
Regular Member


Date Joined Aug 2008
Total Posts : 149
   Posted 11/21/2008 5:17 PM (GMT -6)   
"I have been eating sugar (candy, Cake, cookies) like i am addicted i can get enough and i cant get it in fast enough."
 
 Well that would be the first thing i would suggest you stop doing. If you want diet advice the best thing you can do for yourself is start reading up on gut flora and bacteria and all that stuff. Educate yourself then you will under stand why doing the above is a horrible idea as it feeds bad bacteria, that can also bee a sign of yeast and bad bacteria over growth.
 
My suggestion cut all the crap out, sugars, cakes, start eating right, and start heavy dosage of probiotics. Its tough for the first few weeks but after that it gets easier plus you should be feeling better and that alone should give you motivation. If not then have fun with prednisone and the ups and down.
27y old male. Diagnosed with UC (lower proctitis) in 2004.
 
Current daily treatment:                             Probiotics & supplements:
2400mg oral asacol                                       Digestive enzymes
75mg azathioprine                                        folic acid & calcuim with V-D
20mg Prilosec                                              VSL#3 probiotic 
Diet:Little/no sugars, fats, carbs, caffine,yeast,breads,alcohol. Stay natural as possible. A not so strict form of the SCD.  
Results:1 Bowel movement in the morning no blood! Remission since 08Sept08
 
 


susie45
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 11/21/2008 9:51 PM (GMT -6)   
thank you all for the good advice spoke to doc tonight and he has started taking me off the prednisone
i will see what he suggests next the 2 flares that started me was when i ate ice burg lettuce every day now chatting with ya all i see how my diet is really making this flare up worsen thank you for making me open my eyes to a different way of eating susie

AKB
Veteran Member


Date Joined Mar 2006
Total Posts : 992
   Posted 11/22/2008 1:43 PM (GMT -6)   
just to echo the above, coke and cake are a deadly combination if you're fighting UC. You can have one or the other in very small amounts, but if you go on a binge, you will, in my opinion and experience, quickly and severely alter your intestinal flora to the point where a flare becomes much more likely. It's the dang sugars. I LOVE COKE. I miss it the most of all the things that have changed since I got UC :(
Dx:

Left-sided UC, Jun 2005. Flex-sig only... clear for first 20cms, then inflamed through next 30cms.

Therapies:

Pharmaceutical: Lialda 2/day, Rowasa/hydrocort as needed
Probiotics: Primadophilus Bifidus
Naturals: Caprylic Acid, Vit ABCDE, Zinc, Turmeric, Bromelain, Fish Oil, Flax Oil


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 11/24/2008 9:56 AM (GMT -6)   
With sodas, you're not only dealing with sugar or dangerous artificial sweeteners, you've also got carbonation... do any of us really need more gas?

If you're still unconvinced about sugar, check out this article:

http://www.drcarolyndean.com/articles_scary_truth_about_sugar.html


Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, April 22, 2018 8:45 AM (GMT -6)
There are a total of 2,954,192 posts in 324,090 threads.
View Active Threads


Who's Online
This forum has 162146 registered members. Please welcome our newest member, tiffiany.
344 Guest(s), 5 Registered Member(s) are currently online.  Details
Craftylady, astroman, chikinnooodle, Pratoman, Old Mike