I hate the anxiety!

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glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 11/24/2008 3:49 PM (GMT -6)   
Grrr!  My grandpa died yesterday morning and tomorrow is the viewing just for my immediate family.  He will then be cremated so there won't be a burial.  I know that the drive to the funeral home tomorrow is going to be treacherous as I'll be really nervous which will make my stomach do flip flops and feel like I have to go to the bathroom.  I HATE HATE HATE the anxiety that comes with this disease.  I miss the days of getting a nervous stomach that didn't make me poop..lol.  I'm so thankful that we won't have to go to a cemetery for a burial because I'd be really nervous then.  It drives me insane that instead of mourning and thinking of my grandpa, I have to worry about my stupid disease!
 
On Saturday my daughter and I will be in a Thanksgiving parade, I'll have to pop a bunch of Immodium just so I can have the peace of mind that my colon will cooperate!
 
I hate that I can't simply enjoy being in a parade or enjoy going to a morning movie with my daughter's Daisy troop because UC is always in the back of my mind!
Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 


FitWithUC
Regular Member


Date Joined Nov 2008
Total Posts : 64
   Posted 11/24/2008 4:09 PM (GMT -6)   
Very sorry to hear about the loss of your grandfather glamourgirl. Anxiety and stress are the worst, I'm a university student and it always gives me problems, some professors are really tough on students. =(
Peter, 21. Puerto Rico
DX: Ulcerative Colitis as of 06/05
Remissions: Remission: 01/06 till 10/08
Current Treament: Asacol 2400 MG 2X daily, Rowassa nightly, 1MG Folic Acid, 40 MG Prednisone, Remicade, New ChapterĀ® Multivitamin, New ChapterĀ® All-Flora Probiotics, Dolomite Calcium Supplement
Status: Flare!!!!!!!!


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 11/24/2008 4:43 PM (GMT -6)   
It is the worst part of it.
I am feeling better and just can't believe the freedom that has come with it.

Breathe deep, sit by an open window, quiet your body. Don't eat!
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 11/24/2008 7:05 PM (GMT -6)   
I am so sorry for the loss of your Grandfather. Not only are you anxious about the uc problems, but just the anxiety of losing someone you love. Take deep breaths and don't eat until after the service I would suggest. I wish I could be a bit more helpful for you.

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 11/24/2008 8:05 PM (GMT -6)   
The viewing is at 2:00 so I don't think it's a good idea to wait to eat. I will be fine with taking Immodium, it works for me. I hate that I have to do that in order to go to a darn viewing...it's just so frustrating!
Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 


mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 11/24/2008 8:15 PM (GMT -6)   
sorry for your loss. i recently went to my uncles funeral. the trip in the funeral precession was the hardest part for me. we went from the church to the cemetery - about 10 miles or so....but it seemed to take forever. i was a pall bearer as well so that made the anxiety even worse at the time. my solution was to not eat all day....it still was stressful and i was very anxious...but made it through w/o incident. i definitely know how you feel about not being able to really mourn your loss because you are so preoccupied with the thought of soiling your pants in public...freakin irritating.....
immodium is a good solution for that day, but leave the day after open because it seems that when the dam breaks, it is relentless....
33 yr old male. UC for 14 years. 5mg pred (tapering off), 12 pills Asacol per day, Dicyclomine (for cramps), 0.5 - 1mg Atavan per day (anxiety) when needed, Fish oil pills, Culturelle probiotics. Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (And I am still more afraid of my UC!!)  "I poop in the woods because I can"


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 11/24/2008 9:28 PM (GMT -6)   
If anxiety aggravates your symptoms you may want to ask your GI to prescribe Xanax. It's good for stressful situations as it works fairly quickly when the anxious feeling start and it takes the edge off nicely. My husband gets knocked for a loop just taking half a 25 mg dose, while I usually need 50 mg to quell anxiety and I don't feel tired or any other ill effects -- so while it may be a little too late for this situation, you'd want to try it first at a time when and where if it makes you too sleepy or unable to function you'll be able deal with it.

Be very careful when taking Immodium, you can get Toxic Megacolon, which is a life-threatening complication that can occur taking Immodium with UC. My GI has told em not to mess with it under any circumstances, while others on the board here take it fairly regularly. Just make sure your GI knows.

Meesh
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Finally achieved remission mid October 2008!!
11 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08; 7/5/08; 8/15/08, 9/26/08; 11/08/08; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Rowesa and/or Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D; Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 11/24/2008 9:45 PM (GMT -6)   

I am one of those who takes Imodium (prescribed by my doctor) in small doses and only when really needed.  In fact, usually 1/2 about 2 hours before I go out works just fine. I have never gotten constipated and am "regular" when taking it.  Be sure to consult with your doctor, however, we are all different!

I also take 1/2 Xanax and don't think I could deal with such things as my husband's cancer and my Dad just being put into a nursing home - with out.  My husband also takes Xanax for his anxiety.  There are other medications that helps - talk to your doctor for assistance. 

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Close to remission -spoke too soon!
 
 
 
 
 
 
 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 11/24/2008 11:54 PM (GMT -6)   
glamourgirl - I can TOTALLY relate to what you are going through. I have crohns and before I was diagnosed it was really out of control. My great Aunt died but my immediate family was her only family so we had to make all the arrangements etc. My husband came with me to the services (he was my b/f at the time). I started to get really sick during the funeral and had to leave the "immediate family" section to sit in the back as I had to keep leaving to go the bathroom. When it was time to head to the cemetary my dad told me to just go home (nicely and out of concern, not rudely) but I just couldn't bring myself to do that. We were her only family and I felt I had to be there. My dad just shook his head and said "she wouldn't want you doing this to yourself." So we hoped in our car and since we were family we were the second car behind the hearse (mom and dad in first). We pull into the cemetary and it is a one way road, no turn around our anything. We are now trapped behind 12 + other cars of mourners with no way out. I start scanning for bushes/trees/ businesses within running distance/nothing. My family all sits down and the funeral guys offers me a seat and blanket. I say no thank you I need to stand. He insists. I have to practically yell "NO I NEED TO STAND." I didn't hear a word of the service. I was clenching my butt cheeks and praying they would just put her in the ground already so I could crap. I was in so much pain. Finally it was over and I had to tell my family "no socializing, move your cars now, I need to leave NOW." So my poor husband rushes me to a gas station. The attendant apologizes and says the toilet is out of order - even he has to go to McDonalds, ACROSS the street. Except the street is a divided highway. I ran across it like frogger and by the grace of god got my pants down just in time.

I carried guilt from that day for so long and eventually brought it up in therapy. But my dad was right. Once I realized I was too sick to be at peace there I should have left. And to this day I will never be "part" of the funeral procession. I will ride in the back and then walk up to the front if that is where I belong. My car will be on the street so that I always have an out.

It sucks so bad but I have since learned after diagnosis and lots of trial and error that immodium and xanax are my friend. I am so glad my doctor has no problem with me using it. It is such a lifesaver.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/25/2008 1:53 AM (GMT -6)   
(((((((((HUGS))))))))))) for the loss of your grandfather....try eating light the day before each even, sticking more to liquids as this is what I do when I have to attend certain functions and it does help...thoughts are with you and your family for your loss.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 11/25/2008 7:12 AM (GMT -6)   
Thanks everyone for your kind words! I take Immodium often and it works great for me, there is no fear of toxic megacolon because I go right back to normal the next day. I've even used it daily on vacations and I still have a few BM's in the morning. I have some Xanax and I thought about taking a 1/2. I just hate to be loopy, it bothers me that in order to get through stressful stuff I have to pop a pill or have a drink (a glass of wine does wonders for me too in stressful situations!). I just wish that I could go to a darn funeral and not have to worry about my disease too! boo hoo!!

FitzyK23-Your story from your aunt's funeral sounds exactly like things I have been through. I'm surprised you made it, I can't hold it that long..lol. My heart went out to you while reading your story, I could relate to that anxiety and totally feel it.
Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 11/25/2008 7:31 AM (GMT -6)   
I'm sorry to hear about the loss of your grandfather. I think we can all relate to what you are going thru to some extent. And lordy do I hate that nervous stomach too! Mine usually acts up if I have to be somewhere that I'm excited about. Hang in there and hopefully today will run smoothly for you.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA
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lambkins
Veteran Member


Date Joined May 2008
Total Posts : 574
   Posted 11/25/2008 8:44 AM (GMT -6)   
Sorry for the loss of your grandfather iknow what you are going through i lost my dad 4 weeks ago and it is very hard without any other problems but u/c seems to thrive on our emotions and worry makes it worse not much help i know hope it all goes well
  
  Diagnosed 22.5.08 with Lft sided U/C
  Meds Predfoam 20mg 2x day stopped started Mesalazine supps 1gm 26/6/08
  Mesalazine 400mg 4 tabsx2 day
  Domperidone 10mg as needed


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 11/25/2008 11:00 AM (GMT -6)   

glamourgirl - I am exactly like you - can take Imodium in small doses, keep things under control and always back to "normal" next day. In fact, we went to Vegas for a week and I took it every day - had regular BM's every day and no blood.  Came home and went off Imodium and trying now to control and get rid of bleeding.  Some think that it "stops" a colon from working but HEY - I felt so much better on vacation - I am discussing this with my doc on the 17th.  Other anxiety medications make me feel "loopy" also but I can take 1/2 Xanax every 6 hours and it just calms me down enough.

Good luck!  By the way, I also have an overactive bladder so I deal with the drinking as well as the eating every day.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only 2 cm. left to heal in rectum - going to try Proctofoam first.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Close to remission -spoke too soon!
 
 
 
 
 
 
 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 11/25/2008 11:36 AM (GMT -6)   
Elaine - I think part of that is from the Immodium. When I take immodium I pee SO much more.
27 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 11/25/2008 11:50 AM (GMT -6)   
Well, the viewing is in a few hours and I was starting to feel really panicky so I popped a 1/2 Xanax..lol. I'm actually starting to feel more calm but not loopy so I might even take the other 1/2 before we leave. Thanks again for all of the support!!
Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 

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