Western Diet - WHY it sucks for me and why I think its connected to UC

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crazytrain411
Regular Member


Date Joined Nov 2008
Total Posts : 109
   Posted 11/24/2008 4:55 PM (GMT -6)   
High carbs, sugar, deli meat, pasta, lots of bread, white bread, bread with yeast/gluten, salty snacks, red meat, cookies, waffles, donuts, cinnamon buns, coffee, fries, burgers, sauces and salad dressings, canned food, chocolates, dairy, milk, cheeses,...

Doesnt sound too healthy does it? Well I think theres a reason why we always hear its not healthy. I think I was harming myself enough already with this garbage. I cut out most of that stuff completely. I not only digest better but I feel better, and I actually eat vegetables and fruits every day instead of once a week. Combined with probiotcs I dont need any medication any more.

Im doing asian style food, fish, its worked out pretty well so far. I think my body is healing :/
Waiting to see if I'm cured - no symptoms since probiotics started

Probiotics 16 strains (vsl#3 + ultimate multi probiotic) - 475 billion per day. Pre-biotics 1x a day. No sugar.
L-glutamine, elm powder, vit b & folic acid


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 11/24/2008 5:13 PM (GMT -6)   
There are thousands of Asians, Indians, and vegetarians who all live by strict dietary code (healthy) who have UC. Many of them have also had surgery to rid themselves of UC. I wish it were as simple as eating a healthy diet but I don't think that's the case. Many of us Americans have grown up and eaten healthy diets; diets free of the foods you suggest and not only did we get diagnosed with UC, we lost our colons.

The only cure for UC is surgery. Everything else is called remission.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 11/24/2008 5:14 PM (GMT -6)   
I wish we had a good source for Asian food & fish, I would also eat it every day! I don't enjoy cooking, and our ethnic restaurants are terrible quality. Except for some sushi places, yum.
My naturopath also wants me to take his licorice root supplement, to strengthen the colon. I just can't remember to take it when I'm supposed to.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 11/24/2008 5:30 PM (GMT -6)   
Yes, gluten, saturated fats, sugar, dairy, preservatives... all of these things you mention can stress your digestive system. Eliminating or reducing these things while supplementing with probiotics is defintely helpful for restoring gut health.

Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


crazytrain411
Regular Member


Date Joined Nov 2008
Total Posts : 109
   Posted 11/24/2008 7:17 PM (GMT -6)   
The diet is the tip of the iceberg.

Toothpastes, plastics, wrappings, preservatives, deodorants, radiation from a million sources, detergents, nasty cleaning chemicals, exhaust fumes, pollution, pesticides, antibiotcs, a ton of toxins known and unknown, no exercise, hormones, lack of vitamins, the body is under such an assault no wonder balance is lost.

I can't just accept the fact that my body is suicidal and that my own immune system hates me.
Waiting to see if I'm cured - no symptoms since probiotics started

Probiotics 16 strains (vsl#3 + ultimate multi probiotic) - 475 billion per day. Pre-biotics 1x a day. No sugar.
L-glutamine, elm powder, vit b & folic acid


FitWithUC
Regular Member


Date Joined Nov 2008
Total Posts : 64
   Posted 11/24/2008 8:07 PM (GMT -6)   
crazytrain411 said...

I can't just accept the fact that my body is suicidal and that my own immune system hates me.


I love what you said, neither can I yeah
Peter, 21. Puerto Rico
DX: Ulcerative Colitis as of 06/05
Remissions: Remission: 01/06 till 10/08
Current Treament: Asacol 2400 MG 2X daily, Rowassa nightly, 1MG Folic Acid, 40 MG Prednisone, Remicade, New ChapterĀ® Multivitamin, New ChapterĀ® All-Flora Probiotics, Dolomite Calcium Supplement
Status: Flare!!!!!!!!


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 11/24/2008 9:22 PM (GMT -6)   
Processed food is vicious on the gut for many of us. Some of the fillers added to processed foods to give it body/texture to prevent it from liquefying (especially in the case of low fat foods)  is not much different from plastic in molecular structure, i.e. indigestible garbage that irritates the mucosa. This applies to most of the "-ol" sugar substitutes. Highly refined sugars such as high fructose corn syrup are super-fuels for pathogenic bacteria. It is difficult and somewhat more expensive to stay off processed food and eat only "pure" food free of processing and additives, but it's definitely worth a try. If I could afford it, I'd take it another step further and eat only organic/free-range etc. but I have to compromise some of the time to keep the budget from going through the roof. The biggest differential in IBD incidence is not between Asia and North America but between the poor in developing countries on the one hand, and the elites in those countries or anyone in industrialized countries on the other hand, and I am pretty certain it's due to the hygiene hypothesis including probably most of all, helminth (worm) infection being protective against auto-immunity.


Pancolitis 20 years ago, full med-free remission 10 years,
Flaring/simmering on and off ever since, allergic to all 5ASAs
10 20 17.5 15 12.5 10 mg 8 7.5 20 17.5 mg pred, 100 mg Imuran
TCM, Probiotics (Primal Defense and others), DMSO, TSO, hookworm
Turmeric/circuminboswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie
 
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/24/2008 9:48 PM (GMT -6)   
Processed foods/beverages, fast foods, animal fats, caffeine, refined sugar are all junk and we don't need any of them to survive...I also gave up the above mentioned junk and am better off for it...these particular "foods" do not only have a negative impact on IBD, but IBSers as well...not to mention they're probably linked to heart disease, osteo and other health issues as well.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 11/25/2008 8:13 AM (GMT -6)   
crazytrain411 said...
The diet is the tip of the iceberg.

I can't just accept the fact that my body is suicidal and that my own immune system hates me.


Obviously that is the case though. I know plenty of people who eat and live waaay worse than I do, with no bowel problems whatsoever. Maybe the diet and things do hurt us, but it's only because we have defective plumbing in the first place.

Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar spine from long term prednisone use...

Current Meds:
Lexapro 10mg, Azasan 100mg

 
 


sore_guts
Regular Member


Date Joined Jun 2007
Total Posts : 186
   Posted 11/25/2008 9:42 AM (GMT -6)   

I dont believe my UC was caused by unhealthy foods, but they defintely do agravate it and I have reached remission thru healthy eating.  I have eliminated processed foods and foods with preservatives.  I also eat way more fruits, veges, whole grains, legumes and I feel so incredible.  The only way to describe it is I feel alive and I realize now that before I always felt tired and in a haze.  I didnt know it at the time how terrible I felt until now that I know what it feels like to feel good. 

I am actaully disgusted now when I go to the grocery store and see all the unhealthy, junk that fills 85% of the stores.  No wonder Americans are overweight and unhealthy.  It makes me angry because it is costing us all millions in health care related illnesses.  Not just IBD, but heart disease, diabetes, and many, many more illnesses.  And I am really angry with all these foods companies that target kids with cartoon characters to sell their crap to my kids.  I want my kids to be healthy and live a long life, not grow up with high cholestorel and overweight.  But trying to make a 5 year old understand that is impossible.


 sore_guts
 
Currently in Remission since June 2008!!
 
High magnesium/ beta carotene diet
36 year old female with left-sided UC
lialda 1 pill  3 times/day
multi-vitamin 1/day
Digestive Advantage Colitis formula 1/day
 
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 11/25/2008 10:26 AM (GMT -6)   
I think it's misleading when we say diet does or doesn't "cause UC." It's not that simple. Poor diet is definitely ONE FACTOR that increases the overgrowth of bad gut flora which can lead to IBS and ultimately to IBD, but it's only part of the equation.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 11/25/2008 2:11 PM (GMT -6)   
but princesa...IBS isn't a precursor to IBD.
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec 2 or 3  +   1 or 2 Primadophilus Reuteri Pearls @ bedtime
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 11/25/2008 2:16 PM (GMT -6)   
crazytrain411 said...

I can't just accept the fact that my body is suicidal and that my own immune system hates me.

You have a defective body, basically.....you won't change that fact, but you can change how and how much it reacts by making some changes.  Dare I say that not accepting the fact is part of your problem.  Not accepting doesn't make it not so.
 
Meds can be helpful.    Maintaining the status quo isn't a failure...we all work at feeling well while living with UC, PSC, arthritis, Reynauds, kidney disease, asthma, lung disease...etc.
 
open your eyes to the facts of what YOU are living with and not putting the blame after the fact.  It's not the diet, but it could be what's in the foods we eat. 
 
It doen't negate one's responsibility to eat as healthily as possible in order to function to the best possiblility.  Seems a lot more effort to expend running in the other direction than  to be proactive in your care in dealing with what you actually have.
 
quincy
 
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec 2 or 3  +   1 or 2 Primadophilus Reuteri Pearls @ bedtime
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

Post Edited (quincy) : 11/25/2008 12:37:09 PM (GMT-7)


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 11/25/2008 2:27 PM (GMT -6)   
Crazytrain,

For what its worth I do not accept that I am chronically ill. I am a healthy person who is sometimes sick - that's all.

It's when I tried to live with terms like "chronically ill" and all the usual garbage the medical community labels you that I made the least progress with my condition.

Not accepting is "only moving boxes". You are how you feel. Not how other people tell you how you should feel.

D


Probiotics and maintenance 5ASA's in rectal form
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 11/25/2008 2:39 PM (GMT -6)   
Damo...Chronically ill and having chronic disease are two different perspectives.

I don't consider myself chronically ill.....but I do have chronic disease.

People would never guess, and my friends and family certainly don't dub me as being chronically ill...

It's not all or nothing...perspective does help, but denial certainly can hinder one's progress to feeling better.

q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec 2 or 3  +   1 or 2 Primadophilus Reuteri Pearls @ bedtime
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5968
   Posted 11/25/2008 2:47 PM (GMT -6)   
     I think what it all boils down to is the fact that we with UC have compromised immune systems and the preservatives they put in food plus all the other "junk" in our environment contributes to our illness.
     I attribute my last flare to dollar store bubble bath.  My GI doctor said whatever the ingredients were in that bubble bath could have irritated anyone who did not suffer with an autoimmune illness.  However, it played havoc with me.  The day after I noticed sores outside my vaginal area.  That evening it struck my rectum.  I suffer with ulcerative proctitis.  Needless to say, no more bubble baths for moi!
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 11/25/2008 5:05 PM (GMT -6)   
Like I said quincy, I'm a healthy person who sometimes get sick! I never mentioned the denial word!!
Probiotics and maintenance 5ASA's in rectal form
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 11/25/2008 6:03 PM (GMT -6)   
quincy said...
but princesa...IBS isn't a precursor to IBD.

I realize that's the standard mindset, but in my experience, it does seem to be a continuum. I had digestive problems as far back as I can remember. Eventually, it got worse and I was diagnosed with IBS in college. Rather than trying to figure out the source of problem, I was given antispasmodics and antianxiety meds for symptom suppression while I continued to destroy my digestive health with broad spectrum antibiotics and extremely poor, high sugar diet. In retrospect, knowing what I know now, I believe a diagnosis of UC could have been avoided if I had known how to take better care of my digestive system.
 
But we can argue the semantics - chronically ill vs. chronic disease? - all day long and never agree. I'm just sharing my "gut" feelings on my personal situation.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 11/25/2008 6:13 PM (GMT -6)   
IBS is known to affect 20% of a western countrys population. The percentage of people with IBS and IBD is 40%. So you are twice as likely to have IBS if you have IBD (or possibly vice versa) than if you do not have IBD.

If IBS and IBD are not related then I (genuninely) await, with bated breath, an explanation of the above statistics.

Also given the rate of IBD has increased exponetially since the mid 1920s (per head of population) and given that the western diet has worsened so much over he last 80 years and given the fact that stress levels have also increased exponentially I'd also love an explantion as to what other risk factor has induced the exponential growth in the incidence of IBD

D
Probiotics and maintenance 5ASA's in rectal form
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


crazytrain411
Regular Member


Date Joined Nov 2008
Total Posts : 109
   Posted 11/26/2008 1:57 AM (GMT -6)   
I dont see anything wrong with my immune system. It works well everywhere. It doesnt attack me anywhere except in the colon where things went horribly wrong and unbalanced. Was it my diet? When my UC started I was living on junk and eating 2X a day at my university cafeteria for years. No veggies, no yogurts,. and I had a few runs of antibiotcs. And lots of stress, and little exrecise. Maybe it was just a coincidence.

Some of you will tell me that I am in denial, but I almost believe a hundred percent that it was my colon got flora messed up and not my immune system. My immune system got triggered at age 21 for no apparent reason to attack and destroy my colon? How could anyone believe this?

And when we are in remission, is there anything that sets us apart from normal healthy people? You all have your opinions, but my 'gut' feeling is this. Im living healthy and feeling better and better.
Waiting to see if I'm cured - no symptoms since probiotics started

Probiotics 16 strains (vsl#3 + ultimate multi probiotic) - 475 billion per day. Pre-biotics 1x a day. No sugar.
L-glutamine, elm powder, vit b & folic acid


quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 11/26/2008 2:31 AM (GMT -6)   
chronically ill... to me to mean sick all the time.
Chronic disease doesn't necessarily mean that....I don't consider myself to be chronically sick or ill.

Yes, we can debate it all day long.


q
*Heather* Status..Asacol 6 (3 twice daily); enemas every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotics....(Natural Factors Protec 2 or 3  +   1 or 2 Primadophilus Reuteri Pearls @ bedtime
~multi-digestive enzymes as needed
~Ranitidine,Pariet (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 11/26/2008 9:15 AM (GMT -6)   
If food is the cause then how come someone can have surgery to remove the UC, return to their same diet, and be totally healthy, take no medications, and have no other illnesses? Since the colon is a waste resevoir, how does digested food cause it to be ill? How come people from other cultures with different eating habits (non western) get UC? This doesn't make sense but I do agree that no matter where you are from you should be eating a healthy well balanced diet.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 11/26/2008 9:50 AM (GMT -6)   
we can disagree until the end of time what the root cause of UC is. i believe until that root cause (or causes) is / are found, we will not have a cure other than surgery, at least with traditional medicine. i tend to believe that there is not one single root cause for UC. i believe there are many things that can all ultimately lead to UC....stress, diet, genetics, environment, etc. can all affect it... western diet is pretty poor, and we live in a world with a lot of chemicals, toxins, and stress... that cant help obviously. but if lifestyle and environment was the cause, why doesn't everyone who lives this life have UC? that leads it down another path - not to overlook those things - but there are other triggers or reasons for UC - there has to be. maybe certain people are genetically predisposed to get it and their path of life triggers it....but if it were as simple as that, don't you think that the medical field would be focusing on a a specific area? like i said - i am not sure there is only one specific area of interest.... UC may be the result of multiple problems with our bodies....which could be why there is no cure right now...when dealing with multiple variables it makes it very difficult to find answers. UC is labeled as a specific disease - so people can simply say - " i have UC"....and to give specialists something concrete to throw medicine at. we know UC is an inflammation of our colons possibly cause by an attack of our immune systems....when you take into account everything that can cause that to happen, how can we focus on only one cause for it?
33 yr old male. UC for 14 years. 5mg pred (tapering off), 12 pills Asacol per day, Dicyclomine (for cramps), 0.5 - 1mg Atavan per day (anxiety) when needed, Fish oil pills, Culturelle probiotics. Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (And I am still more afraid of my UC!!)  "I poop in the woods because I can"


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 11/26/2008 10:30 AM (GMT -6)   
Sue,

The suggestion is that food is a rating factor for UC. I don't think anyone is going as far to say it is the causulty factor. To answer your questions:

If a person has a genetic disposition to a bowel related disease then of course removing their colon will "cure" the disease in that sense.

By the same argument you make how come some people are allergic to nuts and some are not. It is not a genetic answer we are looking for but rather what increases the propensity of risk in each individual (ie a rating factor). No one is suggesting that nuts will cause an allergic reaction to the entire population.

And again by your argument how come people who never smoke get lung cancer. No one is suggesting that smoking is the only way of developing lung cancer.

The argument that is being made here is simply that food is a factor in the syndrome we call UC - that's all.

People see the results of medical statistical surveys but rarely do they actually interpret correctly what they say. No survey can answer a questions like "Does X cause Y". That is very rare. Rather these surveys try to establish a link between a particular condition and a particular life issue like diet, smoking, etc.

D
Probiotics and maintenance 5ASA's in rectal form
 
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"
 
 
 
 
 
 
 


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 11/26/2008 10:35 AM (GMT -6)   
it seems like the cure is getting close since there is medicine that is putting some of us in remission. I don't think food is the cause, but the trigger. My UC is somewhat triggered with stress, but symptoms come up when I eat something wrong, so it goes both ways for me. But I agree there is no cure yet, but maybe closer in the future. Only God knows.
26 year old, Married, Female.
Diagnosed with UC since March 2007
Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)

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