plz help me till my doctor's visit!

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saposs
Regular Member


Date Joined Nov 2008
Total Posts : 339
   Posted 11/24/2008 6:40 PM (GMT -6)   
hi,
i m a new to IBD -infact, i m guessing that i hv IBD after reading posts, got the doctors appointment in mid-December- still nearly a month to go..
I need help to control my symptoms till i meet with doctor, pls do let me know what i could do - shud i take probiotic, which is best probiotic supplement... pls help with your experience.
my symptoms(past 2-3 months): very slight blood in stool(not mixed with stool-just on one side of it-sorry for all this detailed info.), mucus/pus when ever i go to restroom 3-4 times a day, gas after lunch till i go off to sleep, no pain, no loose stool, not loosing weight, and feel energetic.
i m a vegetarian (have never tasted meat:-D ), i eat lot fruits, green vegetables, exercise-walk 3 miles daily (morning and after dinner), sugar- hardly 1 tsp a day, very little carbohydrates intake, no tea or coffee at all.
thanks !
Guessing i have IBD, first doctor visit scheduled mid-December'08.
On no medication.

Post Edited (saposs) : 11/24/2008 5:52:04 PM (GMT-7)


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 11/24/2008 6:46 PM (GMT -6)   
     You may have IBS and not IBD.   It's best to be seen by the doctor to make sure.  The probiotic I take is Powerdolphilus by County Life.  You can order it over the web.  I take two capsules daily with food.  Not sure if it helps the IBD but my GI doctor suggested I take it.  In the meantime, you could try following a low residue diet.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 11/24/2008 7:01 PM (GMT -6)   
Saposs:

I am sorry for your pain. I am still fairly new to ulcerative colitis. The only thing I could suggest to you is the acidophilus probiotic, along w/ a psyllium husk and multi enzyme. These three things help w/ the health of your colon. If you drink/eat dairy products, which I am not sure is acceptable to a vegetarian or not, but I would either stop or slow down on those products if you do. Some of us become intolarant of dairy.

This is such an individual disease - what works for one may not work for another.

I hope I have been of some help to you.

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 


Asia
Regular Member


Date Joined Aug 2005
Total Posts : 188
   Posted 11/24/2008 7:41 PM (GMT -6)   
I disagree with Christine. If you're having mucous then it's not IBS alone. And since the blood is in the stool and not just streaky on the toilet paper, then it's not IBS. You can't have blood and mucous if you only have IBS. You could have IBD and IBS though.

Anyway, I recommend a very bland diet until your appointment--rice, potatoes (not fries), pasta with very little sauce (rice pasta would be easier on your system than wheat pasta, it tastes just as good as normal pasta--Tinkyada is the best brand) steamed veggies (no raw), take it very easy on the dairy, veggie broth. After a few days of bland eating you should notice a little bit of ease. Legumes should be alright but I would eat them when you're home alone to see how gassy they make you and how long the gas lasts.

I'm a vegetarian too! Have been all my life as well. When I don't feel good steamed rice and veggies help. Plain tofu with soy sauce is okay for me, but not deep fried. I'd test the veggies to see if certain one make you gassy though. When I'm really sick I can't handle cauliflower. Same with the fruit--grapes bother me when I'm ill and so do Asian apple pears.

Suffered for my whole life before being diagnosed.

Told to "Eat more fibre "



Currently on:

Salofalk
1500mg x 4/day
Entocort 6mg once a day Completely off as of 10/21/08. Took 2 years!
Imuran 150mg once a day

Post Edited (Asia) : 11/24/2008 5:49:51 PM (GMT-7)


saposs
Regular Member


Date Joined Nov 2008
Total Posts : 339
   Posted 11/24/2008 7:57 PM (GMT -6)   
this is such a helpful place... thanks so much! m on improved diet from tomorrow itself as suggested by u all & also probiotic.
Guessing i have IBD, first doctor visit scheduled mid-December'08.
On no medication.


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 11/24/2008 8:08 PM (GMT -6)   
Until you find out exactly what may or may not be going on, please try not to stress yourself as it can truly stir things up.


Moderate Pancolitis
Dx'd 05/2007
7 Pentasa per day (4/3)
Corti Foam p.m. 2X per week
Prebiotics and Probiotics, Bowel Soother, Fish Oil, Calcium, Multi Vitamin and Melatonin
Trying to reduce sugar in my diet but cannot tolerate artificial sweetners
I excersice daily
Did I happen to mention I HATE this disease!!!


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 11/25/2008 8:22 AM (GMT -6)   
Asia, IBS produces large amounts of mucous and yes you can have bleeding - not necessarily from the IBS but if saposs has hemmeroids (internal or external) then the blood can be coming from that. If it is only on one side of the stool either A) Saposs has IBS with a hemmie or B) It can be the beginning of proctitis.

Either way, Saposs then yes a probiotic is beneficial to anyone especially people with intestinal issues. Also, if you are not allergic to bees then you can try using bee propolis and maybe fish oil to help with any inflammation if what you have is an IBD.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA
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bulldozer
Regular Member


Date Joined Jul 2008
Total Posts : 37
   Posted 11/25/2008 9:11 AM (GMT -6)   
Dear saposs,
Whilst in flare recently I did the following -- avoid fruit and veg in skins or where the seeds/ pips are eaten. I made pureed soups using pulses too. I avoided all wheat products -- used oatcakes and ryvita-- no pasta. Took Manuka honey, multi-vit/ mineral, omega 3, daily. Am already lactose intolerant but tried soya probiotic. Had porridge every day with this and dried cranberries. Increased intake of protein foods.Tried many varieties of beans and peas. Ate little and often. No alcohol anyway. Avoid brown rice. Can you take seafood ?-- as upped intake of prawns, mussels and all fish. Do trawl the forum and see what others have done-- it is an individual disease in that it affects us all differently -- you may have to try many combinations of ideas. Good luck
,

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 11/25/2008 10:43 AM (GMT -6)   
I agree. Peel veggies, avoid seeds, cook all veggies. Pureed soups are easy on the digestive system. If you're eating alot of fruit, you are getting carbs there. Again, avoid peels, bake apples or pears, eat bananas very ripe. Different flavored natural applesauces are good for variety. I'd go so far as to say avoid all gluten for a couple of weeks and see if symptoms improve.

Keep a food journal and track your symptoms. Sounds like something you're eating at lunch is disagreeing with you to cause extra gas.

I take Natren's non-dairy Healthy Trinity as my probiotic.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 11/25/2008 3:01 PM (GMT -6)   
     Another good food is salmon.  It really helps soothe my gut.  I put a little olive oil on it with a tad of paprika and bake it at 350 degrees for half an hour or until done.  The reason I said you may have IBS is the fact that my youngest daughter sometimes has mucus in her stool.  I was quite worried that she may have IBD but the doctor said she had IBS.  As far as the blood is concerned, it may be hemorroids.  Don't get  yourself worked up.  Just wait and see what the GI doctor has to say.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


saposs
Regular Member


Date Joined Nov 2008
Total Posts : 339
   Posted 11/25/2008 7:18 PM (GMT -6)   
thank you all for the help, i wish i had found this forum earlier... today was my first day with all the diet changes as suggested.
M a little worried now shud i start taking probiotic or should i wait till i see my doc. as i searched through threads and read that probiotic might cause some problem in beginning, m worried probiotic might not further flare up even if it is for a few weeks - m already half dead seeing all these changes to my body i will die if it increases :-( coz i will not get the doc till december mid.
my diet today was boiled lentil, carrot, little rice (all mixed together) - and a small slice of bread+ 1/2 peeled apple. i skipped the high fiber homemade bread i had been eating... i will keep u all updated if anything helped.
Guessing i have IBD, first doctor visit scheduled mid-December'08.
On no medication.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 11/26/2008 1:36 AM (GMT -6)   
Asia said...
I disagree with Christine. If you're having mucous then it's not IBS alone. And since the blood is in the stool and not just streaky on the toilet paper, then it's not IBS. You can't have blood and mucous if you only have IBS. You could have IBD and IBS though.

Anyway, I recommend a very bland diet until your appointment--rice, potatoes (not fries), pasta with very little sauce (rice pasta would be easier on your system than wheat pasta, it tastes just as good as normal pasta--Tinkyada is the best brand) steamed veggies (no raw), take it very easy on the dairy, veggie broth. After a few days of bland eating you should notice a little bit of ease. Legumes should be alright but I would eat them when you're home alone to see how gassy they make you and how long the gas lasts.

I'm a vegetarian too! Have been all my life as well. When I don't feel good steamed rice and veggies help. Plain tofu with soy sauce is okay for me, but not deep fried. I'd test the veggies to see if certain one make you gassy though. When I'm really sick I can't handle cauliflower. Same with the fruit--grapes bother me when I'm ill and so do Asian apple pears.

You can have mucus with IBS only/alone, it's the bleeding (unless it's from a hemherroid) that makes me lean towards IBD (either CD or UC).
 
Of course once saposs finally sees the doc and has the tests then more will hopefully be known.
 
:)
My bum is broken....there's a big crack down the middle of it! LOL :)


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 11/26/2008 10:46 AM (GMT -6)   
If you do choose to start the probiotic, start with a low dose and see how your body reacts.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


bulldozer
Regular Member


Date Joined Jul 2008
Total Posts : 37
   Posted 11/26/2008 11:30 AM (GMT -6)   
Dear Saposs,
You must keep your strength up and try and plan foods ahead , if possible. Do have a decent breakfast -- try porridge with soya and a little dried fruit. ( soak oats in boiling water night before and do in microwave next morning, very quick ) Then try boiled egg and ryvita or rice cake with honey. Use de-caff tea/ coffee. Also in evening can make a wholesome soup for the next day. Have this with a baked potato and some tinned salmon ( are a vegan ?) in which case you can mash the potato into the soup !! Drink plenty water ( flavoured I prefer ) Boil white rice, chill under cold water, store in fridge and make an egg/ fried rice + peas +beansprouts ( + prawns?? ) Yes do keep a diary -- write down what eaten and the time ( it normally takes 16 hours to pass through ? ) You may think that if you are running to the loo most of the morning that that's breakfast going -- but it isn't !! Do avoid broccoli and cabbage -- very good I found was spinach or beet leaves as they are a " kinder " to the digestive tract and not so harsh. Think of your system as being like an open wound and avoid abrasives !! I forgot about the 5- a-day routine whilst bad !!
Gosh it seems confusing, but once you are finally given a verdict on the condition you will feel better by the knowing. Once you are better you may be able to return to your usual diet/ routine.
If I can help in any other way just say. We all try and help each other. Bye for now.

saposs
Regular Member


Date Joined Nov 2008
Total Posts : 339
   Posted 11/30/2008 5:58 PM (GMT -6)   
thanks a lot!
i hv started with probiotic from today- taking only 1 billion a day! hope it works..just praying it doesn't give me more problems. have also changed my diet.
Guessing i have IBD, first doctor visit scheduled mid-December'08.
On no medication.

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