To the regulars and newbies -- hello and Happy Thanksgiving.
It's been a hectic and crazy past 3 months. We did go to Aruba for 2 weeks and did quite well overall. A few ups and downs but nothing that compromised the vacation as the UC did the previous 2 years.
A trip up north for a wedding went well -- until the actual day of the wedding...........long story short thankfully immodium saved the day. And thankfully we bring the Depends just in case as a security blanket. By the time of the wedding things calmed way down and no emergencies. Happy it was an evening wedding.
Last week....Back to Mayo clinic for 4 days. He has improved "marginally" and the treatment is now a bit more aggressive. Forgot to update the signature line below......imuran is now 200 mg with monthly monitoring still and Rowasa nightly and cortifoam in the AM. Colonoscopy shows left sided still - the lower 12-14" quite rigid and the cause for the gas, pain and cramping. Dr wants him to reduce and wean off the morphine and the patch can stay for now.
It has only been about
4 days - the rowasa he is tolerating ok - retains it for 5 hrs at least before he has to go to the bathroom. He doesn't know if it is mind over matter but he feels a little "different" in that a little better and had one of the most normal movements last night.
(In late Sept he had 5 -- yes FIVE absolutely normal days and we were thinking oh boy maybe this is the long awaited remission but no it wasn't as he went back to the normal state. It was a great 5 days thouugh...lol)
Bottom line the Dr at Mayo is trying to get him in a much better place as down the road it could be the Remicaid infusions and ultimately surgery if that doesn't work. But that is wayyyyyyyyyyyyyy down the road and hopefully not necessary.
Me with my 50 questions.....the small intestine looks great - absolutely no signs of chrons and if it ever happened he needed surgery (or at least as we speak) he would be a likely candidate for j-pouch which I think is a good thing to know. Hubby doesn't want to know all that stuff but I think it is a good thing to kind of know the "what ifs".
Well gotta run as he has an appt with his local GI today to get her up to speed on the Mayo stuff.
Sorry I haven't been around.............just wanted to let all of you we are still among the living....Thank God!!
Again - everyone try and have a nice Thanksgiving.
61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07 Oct 07 feeling quite normal most days. 150mg Imuran
Zero mg prednisone 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs Morphine Sulf 15 mg twice daily)Cortifoam enema every other PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month