Mom extremely sick-just diagnosed a month ago

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SandyInNJ
New Member


Date Joined Nov 2008
Total Posts : 2
   Posted 11/28/2008 8:57 AM (GMT -6)   
Hi everyone, I'm posting about my mother who's now been hospitalized for a month with this devastating thing.  She's 70 years old and has had so many health issues, mainly heart related, throughout her life and now she has to deal with this.  I'm beside myself with sadness and worry.  I'm really not sure she's going to get through this, she's becoming weaker and thinner and sicker as time goes on.  If she has a slight improvement, it only lasts a day and then she's violently sick again.  The nausea and vomiting has been the most troublesome, and she's had absolutely no relief from the diarhea in an entire month..how does one survive like this??
 
In addition, her potassium levels keep dropping and she's constantly having to receive potassium either through IV, which is very painful because of the intense burning it causes, or by mouth, which ends up making her vomit more.  And for someone with heart issues (triple bypass, and a recent pacemaker), low potassium levels can be very dangerous.
 
She was released from the hospital 7 pm the night before Thanksgiving, and then had to be taken by ambulance back to the hospital the very next morning.  Needless to say, there was no turkey dinner at my house this year.  I had gotten the call from my stepfather just as I was preparing the turkey for the oven. 
 
If anyone can offer any advise for us, I'm listening.  All my brother does is complain about the hospital and doctors and think they don't know what they're doing.  He doesn't really understand that this is a chronic disease and they're doing everything they can. 
 
I honestly fear for her life right now and I'm very, very scared.
 
Hugs to you all,
Sandy

FitWithUC
Regular Member


Date Joined Nov 2008
Total Posts : 64
   Posted 11/28/2008 9:34 AM (GMT -6)   
I'm very sorry to hear that Sandy, have the doctors talked about surgery? Surgery is a lifesaver for most who can't get to remission and are very illl, specially when they are very weak, I almost had surgery during my first flare where I was 110 pounds and got to 89 pounds in about 60 days, only Remicade saved me. Considering your mother is 70, I would suggest she looks into surgery, perhaps when she gets better or right now if she keeps getting worse.
Peter, 21. Puerto Rico
DX: Ulcerative Colitis as of 06/05
Remissions: Remission: 01/06 till 10/08
Current Treament: Asacol 2400 MG 2X daily, Rowassa nightly, 1MG Folic Acid, 40 MG Prednisone, Remicade, New Chapter® Multivitamin, New Chapter® All-Flora Probiotics, Dolomite Calcium Supplement
Status: Flare!!!!!!!!


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 11/28/2008 11:18 AM (GMT -6)   
Welcome to the forum Sandy, and I'm so sorry you had to find us this way. Your Mom sounds like she is really ill; do you know if they have her on any meds? Right now they could be giving her a steroid IV or even considering Remicade to get things under control. Is she having diarrhea and blood? I'm sorry that you didn't get to have a Thanksgiving; that's rough but I know your Mom appreciated you being by her side. As for your brother, the only thing I can say is that sometimes people deal with things differently, and maybe by complaining about the docs is the way he is handling it his way. Take care, and keep in touch. This is a great resource for support and education....and of course a lot of great folks. Again, welcome!
Carol

Remicade - will have my 25th infusion on November 26 
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 11/28/2008 1:35 PM (GMT -6)   
     Sandy, where in NJ?  I am in NJ also...Bellmawr...and I have a wonderful GI doctor.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 11/28/2008 6:54 PM (GMT -6)   
I am so sorry about your mother - it's hard enough to watch our parents become elderly (my mom is 77 and dad is 81) but to have to watch them suffer is ten fold.  My prayers are with your mom as well as you and your family.  Love your brother - it's his way of dealing w/ everything.  Please keep us posted.
 
Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 


SandyInNJ
New Member


Date Joined Nov 2008
Total Posts : 2
   Posted 11/29/2008 7:58 AM (GMT -6)   
Thank you all for your feedback.
 
They have talked about surgery, but they're still hoping to avoid that, as is my mom, given her age and all.  As far as meds, I know they're giving her flagyl and, since they re-admitted her, they started giving her prednisone.  As far as what else she may be getting, I'm not real sure.  But the prednisone seems to be giving her an appetite, something she hasn't had at all in the last month.
 
They did tell her that the vomiting and constant nausea are not a symptoms of the UC (is that true?) and that they want to do a test (forgot the name of it) to look at whats going on in her stomach.  They're doing that on Monday.
 
And I live in central Jersey, near the Trenton area.  My moms only complaint about the doctors is that she is seeing so many different GI doctors because they're all from the same group and that everyday she's seeing someone different.  I told her that's not necessarily a bad thing, because you have several doctors discussing your case and between them, can give different insights on what should be done.  Rather than just one doctors decisions.
 
We did get to have our holiday dinner on Friday, then after I went to the hospital to see her and she looked like a different woman from the day before - she was smiling and looked really well.  Only I know that it's probably only temporary as it's been for the past month.   I just want her to get her normal life back, I can't imagine what it's like to be so sick for so long.
 
Thanks again all - hope all of you are doing well.
I'll keep reading through the messages in the forum (I'm a big fan of message boards for support and information, as I'm a breast cancer suvivor myself and have found a world of information in boards like these).
 
Sandy

FitWithUC
Regular Member


Date Joined Nov 2008
Total Posts : 64
   Posted 11/29/2008 8:38 AM (GMT -6)   
Sandy, Flagyl can give nausea and vomiting, I know it because it gave me that while I was hospitalized, altough it was not constantly. It seems that you're mother is getting better, everyone has a different rate for that, mine was a bit long (almost 60 days in a hospital), but I got out of it, I'm pretty sure your mother will too. Happy Holidays!
Peter, 21. Puerto Rico
DX: Ulcerative Colitis as of 06/05
Remissions: Remission: 01/06 till 10/08
Current Treament: Asacol 2400 MG 2X daily, Rowassa nightly, 1MG Folic Acid, 40 MG Prednisone, Remicade, New Chapter® Multivitamin, New Chapter® All-Flora Probiotics, Dolomite Calcium Supplement
Status: Flare!!!!!!!!


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 11/29/2008 9:28 AM (GMT -6)   
So sorry to hear about your mother's suffering, I hope they figure out something for her soon. I would not think 70 is too old for surgery, and it is a cure...
My mother is in the hospital, too, she had a small brain tumor removed yesterday. It was actually not serious, it was right along the outside membranes and not cancerous. She is 78! But very strong, and a former nurse so she knew what to expect. The nausea from painkillers is the worst for her.
AND my dad is in another hospital, he has heart disease and became severely anemic and has been given about 4 pints of blood in the last few days. He was admitted two days before my mother's surgery was scheduled. Geez.
Just sharing a little, this has been a wild holiday weekend for me too! Didn't mean to hijack your post!

Anyway, your mother is not really that old, 70 is the new 50!! The nausea is a horrible feeling, I'm sure she is anxious to get on the road to recovery.
Keep in touch
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 


Pancake1
Regular Member


Date Joined Oct 2008
Total Posts : 28
   Posted 11/29/2008 11:35 AM (GMT -6)   
Sorry to hear about your mom.  I would find a good Gastro doctor.  There are alot of great websites on the internet to help out with diet.
 
When I was in the hospital, my gastro doctor told me that I need to get the book called Mount Sinai Hospital Crohns and Colitis, understanding and Managing IBD.
 
Great book.
 
 

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 11/29/2008 5:10 PM (GMT -6)   
Hi Sandy,
     I'm in south Jersey, near Philly, so you are quite far from me.  I am sure there are many good doctors in central Jersey.  I agree with you about having different doctors in the same practice.  My GI doctor was really pushing Remicade on me, although I love him dearly he can be a real pain.  His associate, who basically took care of me while I was hospitalized said I definitely was NOT a candidate for Remicade because I was exposed to the TB virus back in the 60's and Remicade can reactivate the virus in my system and it could actually kill me.  I know Remicade has helped many people but I feel it isn't for me.  I also saw a colorectal surgeon and he told me I was not a candidate for surgery...yet.  My UC is located in the rectum and classified as mild/moderate.  Well, when I was sick and hospitalized....I sure wondered what they considered severe UC...probably one foot in the pine box.
     Good luck to your mom and I sure hope prednisone does the trick for her.  I have taken prednisone quite often.  My GI doctor calls it the best/worse drug as it really plays havoc with your system.  But, hey, it works for me.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 11/30/2008 7:00 PM (GMT -6)   
I agree that surgery could be her best option - with so many other health issues - so long as the doctors feel she's up to it. I have an uncle that suffered with UC for years before finally having his colon removed in his 70s and has done well since then.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 

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