Spinach and Sunflower Seeds, Part 5

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Lonie
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Date Joined Feb 2005
Total Posts : 6448
   Posted 11/28/2008 12:21 PM (GMT -6)   
Here's a new thread! Please post here....

And the link to the old thread:

http://www.healingwell.com/community/default.aspx?f=38&p=1&m=1270244
 


Carol

Remicade - will have my 25th infusion on November 26 
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Lonie
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Date Joined Feb 2005
Total Posts : 6448
   Posted 11/28/2008 10:44 PM (GMT -6)   
Bump
Carol

Remicade - will have my 25th infusion on November 26 
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Kiss520
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Date Joined Jun 2008
Total Posts : 742
   Posted 11/30/2008 12:18 PM (GMT -6)   

Cfromutah - Sorry for the delay in my response.  I will try bumping up my amount of sunflower butter and see if that does the trick.  I'm so close to total remission.  All I have is a little gurgling and sensitivity.

To those of you who are wondering what to eat aside from the spinach and sunflower, you should definitely refrain from eating any of the trigger foods you have identified in the past.  Wait until you're in total remission to try the trigger foods again.  I drank milk while still not completely recovered, and it set me back in my progress. 

By the way, I took my very last Asacol on Thanksgiving morning, and I'm feeling great!  No problems!!   I am no longer on meds for this stupid disease!  Just some supplements and a little Zoloft (which I plan to taper off of, too).

PS.  Ignore my signature.  For some reason, I can't update my meds.



Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Asacol 400 MG 2X daily, Iron 325 MG 2X daily, Zoloft 50 MG daily, Multivitamin.
Diet:  Spinach/sunflower and low-residue.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema.
Status:  Near total remission
 
 
 
 


Kiss520
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Date Joined Jun 2008
Total Posts : 742
   Posted 11/30/2008 3:52 PM (GMT -6)   
I've been taking high doses of iron, because I was very deficient in the hospital and nearly required a transfusion. I do plan to stop taking that soon, since I've been on them for a few months now and am probably back up to normal. I plan to stick with the multivitamin simply because my diet is not always the most nutritious (although I do try awfully hard). I think a multivitamin can make up for the little areas where some nutrients are lacking. Honestly, I don't think much of a vitamin is even absorbed, so the little bit that is can only help.
Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Iron 325 MG 2X daily, Zoloft 50 MG daily, Multivitamin.
Diet:  Spinach/sunflower and low-residue.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol.
Status:  Near total remission
 
 
 
 


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 12/2/2008 7:40 PM (GMT -6)   
I guess I should have known better than to say how great I was doing, because now I'm not doing so great. I never decreased the amount of sunbutter/spinach that I ate, but for some reason I'm having D again. :-( Yesterday and today I tried to increase the sunbutter per Cfromutah's advice, but I'm not seeing any improvement yet. I'm really bummed about this... I hope something changes soon...
Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Iron 325 MG 2X daily, Zoloft 50 MG daily, Multivitamin.
Diet:  Spinach/sunflower and low-residue.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol.
Status:  Near total remission
 
 
 
 


Cfromutah
Regular Member


Date Joined Mar 2007
Total Posts : 369
   Posted 12/2/2008 9:22 PM (GMT -6)   
Katie, I would like to communicate with you through email and try to help you. Will you email me your email address so I can write back to you?

mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 12/2/2008 9:52 PM (GMT -6)   
i am going to read back to the original post up to current...this is something i think i want to try...and stick to....to see if i get results....love spinach and sunflower seeds both so why not...

kiss520 - sorry you seem to be regressing. this has happened to me more than once....just about symptom free...able to travel and eat just about anything...then out of nowhere its back...for no reason....very frustrating. hopefully it wont last and you will be back to regular again soon!
33 yr old male. UC for 14 years. 5mg pred (tapering off), 12 pills Asacol per day, Dicyclomine (for cramps), 0.5 - 1mg Atavan per day (anxiety) when needed, Fish oil pills, Culturelle probiotics. Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (And I am still more afraid of my UC!!)  "I poop in the woods because I can"


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 12/3/2008 8:58 AM (GMT -6)   
Cfromutah said...
Katie, I would like to communicate with you through email and try to help you. Will you email me your email address so I can write back to you?
Will do!  Thanks.  :-)
 
For the benefit of others, I should mention that I think part of my problem is that the better I felt, the less inclined I was to continue eating low-residue foods.  I wasn't eating my big trigger foods, but I was less careful with my diet and I think that may be a contributing factor.
 
Mbx5 - Thanks for the sympathy and understanding.  I really appreciate it.  ;-)
Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Iron 325 MG 2X daily, Zoloft 50 MG daily, Multivitamin.
Diet:  Spinach/sunflower and low-residue.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol.
Status:  Near total remission
 
 
 
 


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 12/3/2008 12:49 PM (GMT -6)   
Well, I've been trying out the spinach/sunflower diet for about a month now. I 've been doing the recommended 1 can a day plus a few handfuls of sunflower/pumpkin seeds. The first couple of weeks, I saw no reduction in symptoms, but my poop was an interesting green color, and very leafy :) Looked like a plant in my toilet. During this time, I've continued to eat low-residue, started taking a magnesium supplement, and have been tapering off of prednisone. Throughout the time I've been doing the spinach/sunflower diet, I've had some unpredictable bouts of D and painful gas cramping, maybe once or twice a week. Aside from those events I was doing much better for a week, but as I continued my pred taper, my symptoms started returning. I will continue to eat spinach, sunflower and pumpkin seeds, but I believe that this experiment is destined to not be the godsend I was hoping for.

I would like to thank Cfromutah for putting his idea out there for everyone. From what I've read, the people it has helped are doing really well, and I am a little jealous that they have found something that helps them without needing meds. I will continue my search for the magic remission trigger for myself...
Brandon
 
36 y.o. male
Diagnosed w/ UC in May '06
Meds & supplements: Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort, Prednisone (2.5mg/day, back up to 7.5mg), flaxseed oil, L-glutamine, magnesium, and vit B-12.
 
Tried the spinach/sunflower diet.  Saw some relief in symptoms after 1 month, but symptoms returned with the taper off prednisone.
Next up - experimental and trial drugs.


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 12/3/2008 1:35 PM (GMT -6)   
Brandon, maybe you should stay on the Pred until you reach remission. If you do (reach remission), maybe you could try tapering at that point. Just a thought. Sorry to hear things aren't going as well as you'd hoped.
Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Iron 325 MG 2X daily, Zoloft 50 MG daily, Multivitamin.
Diet:  Spinach/sunflower and low-residue.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol.
Status:  Near total remission
 
 
 
 


Cfromutah
Regular Member


Date Joined Mar 2007
Total Posts : 369
   Posted 12/4/2008 8:09 AM (GMT -6)   
beartooth, I never recommended taking a magnesium supplement while trying this and a matter of fact I am against taking vitamin and mineral supplements because I have found they can make things worse with UC. The Idea here is to balance nutrients, mainly beta carotene and magnesium on a daily basis but not overload the body with any one nutrient. With the one can of spinach and the sunflower seeds and pumpkin seeds you are getting plenty of magnesium, more is not always better and too much magnesium has a laxative effect and then when that happens the foods you are eating to try to balance your nutrients will not be absorbed and too much magnesium can cause other problems. If you seen some improvement for a while you were on the right track but just need to adjust some things in your diet and such till you reach remission, reaching remission is the hard part but once you do that then it should be smooth sailing and you can reduce your magnesium and beta carotene intake a lot but just make sure you do get some continuously and you should stay in remission.

Cfromutah
Regular Member


Date Joined Mar 2007
Total Posts : 369
   Posted 12/4/2008 8:18 AM (GMT -6)   
Kiss520, I was going to email you and see if you wanted me to work with you to try to reach remission because I believe that I could get 90% or more of people with UC into remission if they would work with me and listen and do as I say concerning diet and such but first give the increased sunbutter a chance and adjust your diet a bit to what you were doing before when you were doing good and see if you can reach remission that way, Because you too were obviously on the right track. And if you cant reach remission I will be willing to work with you and help you try to get there if you want.

Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 12/4/2008 9:41 AM (GMT -6)   
Thanks for your offer to help. I'm seeing a bit of improvement already with the increased sunbutter and recommitment to eating low-residue food. I'll let you know how I progress from here... :-)
Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Iron 325 MG 2X daily, Zoloft 50 MG daily, Multivitamin.
Diet:  Spinach/sunflower and low-residue.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol.
Status:  Near total remission
 
 
 
 


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 12/4/2008 10:37 AM (GMT -6)   
I was on the road and didn't have access to spinach so I popped a 200mg Magnesium pill yesterday and today, got my first D in about one month... so no more Mg pills for me (and 200 mg is not high dose). I think there is something about Spinach that buffers the laxative effect of Mg. Anyway, I have been on this diet for going on a week and have not noticed any improvement, but the spinach was well tolerated. Not so sure about the sunflower butter which seems to trigger some urgency and is probably too high carb form my own gut's sensitivities. I may need to look at some supplements for whatever is unique to those seeds. But as for Mg, spinach is loaded with it.


Pancolitis 20 years ago, full med-free remission 10 years,
Flaring/simmering on and off ever since, allergic to all 5ASAs
10 20 17.5 15 12.5 10 mg 8 7.5 20 17.5 15 mg pred, 100 mg Imuran
TCM, Probiotics (PD, Cust.Probiot., Culturelle, etc), DMSO, TSO, hookworm
Turmeric/circuminboswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie
 
 
 

Post Edited (Probiotic) : 12/4/2008 12:00:09 PM (GMT-7)


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 12/4/2008 12:00 PM (GMT -6)   
Just a reminder....alternative methods are great and work wonders for some, but please remember to consult and discuss with your doc before discontinuing your meds or self medicating in any way.

Carol

Remicade - will have my 25th infusion on November 26 
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 12/4/2008 2:31 PM (GMT -6)   
Probiotic said...
I was on the road and didn't have access to spinach so I popped a 200mg Magnesium pill yesterday and today, got my first D in about one month... so no more Mg pills for me (and 200 mg is not high dose). I think there is something about Spinach that buffers the laxative effect of Mg. Anyway, I have been on this diet for going on a week and have not noticed any improvement, but the spinach was well tolerated. Not so sure about the sunflower butter which seems to trigger some urgency and is probably too high carb form my own gut's sensitivities. I may need to look at some supplements for whatever is unique to those seeds. But as for Mg, spinach is loaded with it.

FYI - I saw no improvement until my third week.  In fact, my D increased during the first two weeks.  Hang in there!
Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Iron 325 MG 2X daily, Zoloft 50 MG daily, Multivitamin.
Diet:  Spinach/sunflower and low-residue.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol.
Status:  Near total remission
 
 
 
 


Cfromutah
Regular Member


Date Joined Mar 2007
Total Posts : 369
   Posted 12/4/2008 8:38 PM (GMT -6)   
Probiotic, Pantothenic acid (vitamin b-5) is pretty unique to the seeds, I mean its in very small amounts in most foods but sunflower seeds are exceptionally high in it. Let us know if you try this suppliment and do well on it

Post Edited (Cfromutah) : 12/4/2008 6:47:20 PM (GMT-7)


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 12/4/2008 9:34 PM (GMT -6)   
I used to take that and it never did a thing for me... but it was in pure supplement form. I took both pantothenic acid and pantothine, from Pure Encapsulations (no fillers). I do love the taste of sunfolwer butter- very close in flavor to peanut butter really, and delicious. But whether I tolerate it is another matter, we shall see. Fighting a mini-flare right this second from one single magnesium (200 mg) capsule I had with dinner yesterday.
Pancolitis 20 years ago, full med-free remission 10 years,
Flaring/simmering on and off ever since, allergic to all 5ASAs
10 20 17.5 15 12.5 10 mg 8 7.5 20 17.5 15 mg pred, 100 mg Imuran
TCM, Probiotics (PD, Cust.Probiot., Culturelle, etc), DMSO, TSO, hookworm
Turmeric/circuminboswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie
 
 
 


bokscarracer
Regular Member


Date Joined Sep 2008
Total Posts : 152
   Posted 12/8/2008 8:37 AM (GMT -6)   
i'm almost at a month on this diet and just wanted to say that i've been having some big formed poos in the morning. i'm going probably twice a day at most. still having just a tiny bit of blood and a tiny bit of the mucus farts whenever i drop the kids off. i still feel like i'm getting a bit better each day. for everyone trying this please stick with it and let us know your progress so we can help each other out! -- rich
Proctosigmoiditis up to 25 cm
Colazal 3 caps 3 times a day
Hydrocortisone enemas AM and PM for next two weeks
Canasa suppository for lunch (for my butt)
Rowasa enemas nightly after hydrocort enema regimen is completed
Celexa 20mg daily
Fish oil, milk thistle, Ultimate Flora critical care probiotic, Alive multivitamin, lysine
Spinach and sunflower seed plan


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 12/8/2008 9:45 AM (GMT -6)   
Yea!!  Great news, Rich!  I hope you continue to see improvement.  I am doing better now that I increased the sunbutter and watched other parts of my diet more closely.  I don't know why this works, but I'm so happy to be off of meds, that's really all I care about

Katie, 30.   Chicago 'burbs.
DX:  Pancolitis as of 9/08 (Proctitis as of 1/08)
Current Treament:  Iron 325 MG 2X daily, Zoloft 50 MG daily, Multivitamin.
Diet:  Spinach/sunflower and low-residue.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol.
Status:  Near total remission
 
 
 
 


Crohny93
Regular Member


Date Joined Mar 2008
Total Posts : 118
   Posted 12/8/2008 1:55 PM (GMT -6)   

Hi everyone,

I have been trying this diet for a few weeks. First, some background. Have had ulcerative colitis for about 10 years. Have been on all kinds of meds, and nothing worked but prednisone. Am currently on Remicade for the past 6 months. Have been following a low-residue diet. So desperately trying to wean off pred (20mg), but when I get lower than 10 mg, start slipping into a flare. Am currently taking Forvia multi, glutamine, biotin, calcium , and folic acid. Started the spinach/sunflower diet. Tried the seeds, but that made the diarrhea worse, so I seem to be tolerating the sunbutter much better. Am also eating the frozen chopped spinach and frozen carrots every day. Perhaps I am not eating enough, I am not sure just how much we need to be eating....Eat about 2-3 tablespoons of sunbutter a day. Stools have become more formed. I have never been too much of a bleeder. Still passing mucus, and much urgency, going about 4-5 times a day...

`CFROMUTAH, is there anyhting you can recommend for me? Maybe I am doing something wrong...

Thank you so much for everyone sharing their experiences.

dudewhrsmybike
Regular Member


Date Joined Dec 2007
Total Posts : 38
   Posted 12/8/2008 4:50 PM (GMT -6)   
Carrots screw me up.  It took me 2 weeks for this diet to kick in when I tried it this summer.  I was taking in about 8oz of sunflower seeds a day and thats all it took for me.  Unfortunately I slipped and fell back in my rut a month or so later. I've been eating eggs with spinach for breakfast for a week or so and doing the sunflower seeds.  Sometimes I feel like I am getting closer to getting better but when I slack off on the seeds I think it puts me back in my healing process, further delaying it.  I'm just trying to stick with it!  I know I can do it!!  I just want to feel normal again!! I had a whole nother take on life when I was feeling normal this summer, I miss it and want it back!!

Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 12/8/2008 5:16 PM (GMT -6)   
I am around a week and half into this diet. I have flared in the past 24 h I believe due to the sunflower butter- I was having mostly formed stools but now it is D again, and substantially increased gut pain. I was using a very pure butter with nothing but sunflower seeds as ingredients, but it is just too carby for my guts tolerance, evidently- or perhaps I do have an undiagnosed fungus issue that excaerbates my UC and which something like the nutbutters feed. The reason I am fairly sure it is the sunflower seed butter, is because last evening I could actually feel a hot, throbbing feeling in the gut when it arrived there. I know that sunflower seeds, raw, are not an option, so if I am to keep trying this diet I will have to substitute some sort of supplements for what is missing by not eating sunflower seeds. Anyway, I will keep doing the spinach for now.


Pancolitis ~20 years, once had a full med-free 10 year remission,
but flaring/simmering on and off for years, allergic to all 5ASAs
10 20 17.5 15 12.5 10 mg 8 7.5 20 17.5 15 mg pred, 100 mg Imuran
TCM, Probiotics (PD, Cust.Probiot., Culturelle, VSL3, etc), DMSO, TSO, hookworm
Turmeric/circuminboswellia, fish oil, many vits/minerals
Lower-carb version of Specific Carb Diet (SCD), Remicade newbie
 
 
 


bokscarracer
Regular Member


Date Joined Sep 2008
Total Posts : 152
   Posted 12/8/2008 9:21 PM (GMT -6)   
dudewhrsmybike said...
Carrots screw me up.  It took me 2 weeks for this diet to kick in when I tried it this summer.  I was taking in about 8oz of sunflower seeds a day and thats all it took for me.  Unfortunately I slipped and fell back in my rut a month or so later. I've been eating eggs with spinach for breakfast for a week or so and doing the sunflower seeds.  Sometimes I feel like I am getting closer to getting better but when I slack off on the seeds I think it puts me back in my healing process, further delaying it.  I'm just trying to stick with it!  I know I can do it!!  I just want to feel normal again!! I had a whole nother take on life when I was feeling normal this summer, I miss it and want it back!!
geez 8 oz of seeds? that's a lot isn't it? i have probably 2 to 3 tbsp of sunbutter a day (although on some days i eat that stuff like it's sweet crack) and maybe 2 to 3 oz of seeds. i guess maybe the sunbutter is kinda concentrated though.
Proctosigmoiditis up to 25 cm
Colazal 3 caps 3 times a day
Canasa suppository for lunch (for my butt)
Rowasa enemas nightly
Celexa 20mg daily
Fish oil, milk thistle, Nature's Way Primadophilus Reuteri, Alive multivitamin, lysine, bee propolis
Spinach and sunflower seed diet


dudewhrsmybike
Regular Member


Date Joined Dec 2007
Total Posts : 38
   Posted 12/9/2008 2:12 PM (GMT -6)   
bokscarracer said...
geez 8 oz of seeds? that's a lot isn't it? i have probably 2 to 3 tbsp of sunbutter a day (although on some days i eat that stuff like it's sweet crack) and maybe 2 to 3 oz of seeds. i guess maybe the sunbutter is kinda concentrated though.

Call me crazy but thats what worked for me this summer.  2 weeks, I kid you not.  I felt so alive.  Now I figured a way to get spinach in my diet, EGGS.

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