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handball1
New Member


Date Joined Nov 2008
Total Posts : 5
   Posted 11/29/2008 6:14 AM (GMT -6)   
 I have read alot of posts and relate to a lot of them and some of the medications.
only some of them because I stopped all of them I went from asocal, pred all the the way to remicade then stopped.   I am only taking 4000mg fish oil a day and watching my diet semi bland and non ruffage, excersice, and determenation I refuse to let this get the best of me I will not sit home and curl up in a ball and say I cant leave the house.  I do work a stressful physical job thankfully there are bathrooms I can access wherever I am.  I still have to commute 70 miles one way so I do pack a emergency bag and there could be some mornings with one or two bathroom stops but those bathroom breaks I am calmly getting to them without a accident. I believe half of this problem is  definetly half mental my nerve from the brain to the digestive track but the more I do the better I am getting I actually started back with my coffee on my way to work though risky at times that is my determenation not to be beat by this. I just keep doing the the things I used to do repetative and soon there is not that fear and panic.   Any accidents I deal with at that moment and move on and forget about it.
being prepared with a bag of clothes and wipes and wearing disposable undwear help me get out there with much more confidence until I can wean off all that which I will. instead of weaning off all those drugs that did nothing for me and not sure of side effects in the long run.

Post Edited (handball1) : 11/29/2008 6:19:52 AM (GMT-7)


Gigi1227
Regular Member


Date Joined Aug 2008
Total Posts : 469
   Posted 11/29/2008 7:16 AM (GMT -6)   
That is wonderful handball! Your attitude is great and that has so much to do w/ not just our physical health but our emotional health as well. Good for you that your med free!

Gigi1227
Diagnosised 8/25/08 GRRR
Started flare mid-May/feeling better but still flaring
 
Canasa 2x a day
Asacol
Multi Enzyme
Mega Probiotic
Psyllium
Fiber Wafer
Nictotine Patch
Fish Oil Pill
Multi Vitamin
B12
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 11/29/2008 9:36 AM (GMT -6)   
Sounds like you have figured out how to manage it, yours is an encouraging story.
I also find it to be such a mental disease, as long as I know there is a bathroom available, I feel so much better! I can be in the car and feel desperate to go, then get to where I'm going and can go an hour or more before actually needing the bathroom. I read somewhere that women have dozens more of those kinds of mental triggers than men, no fair.
Anyway, doing whatever it takes to give yourself peace of mind is the key to so much of coping with this disease.
Although I can tell the drugs help me, too, and only pred gives me side effects, fortunately.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete probiotic first, then Forte pills. 
Achieved remission for the first time in many, many years!? Seemed so, but colonoscopy Oct. 6 proved not so, heavy inflammation in ascending colon & will be using Rowasa again. But I AM better.
 
 

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