I remember you :) (I think, could be another Cher, but probably not) I too came here alot when my daughter was first diagnosed...today is her 2nd jpouch anniversary <cheers from the crowd> and she's doing great digestively. I just wanted to wish you well and tell you that as a bystander, I really don't know what it's like to HAVE to take all those pills or suffer with the disease, but as her Mom, it's undescribable to watch...from the amount of pills to the number of times the bathroom door would open and close, open and close and just the suffering that I could see in her eyes...AWEFUL!. It was absolute torture watching her spiral downward into such an unhealthy state and almost lose her from hemorrhaging which is what eventually sent her to surgery.
But now, disgestively, she's doing so great and can eat anything and everything and takes no medications except for VSL #3 DS to maintain good intestinal flora. The effects of the prednisone though, will make life difficult for her as you can see from my signature, but I guess it's a tradeoff and could be much much worse. It's taken me a long time to get to this point of acceptance and not be angry at what Prednisone has done to her, but we're just thankful she's here, she's healthy, back at college and back to really enjoying life again.
All the best to you as you await your takedown! Kudos to you for taking control of your life and not letting the disease control you.
20 yo daughter w/ Pancolitis
Step 1 colectomy/jpouch creation 11/27/06
Step 2 takedown 2/9/07
VSL #3 DS
21 yo Daughter diagnosed with right shoulder, bilateral wrist,
bilateral elbow, bilateral knee, and bilateral ankle avascular necrosis
(aka Osteonecrosis) as a result of Prednisone use