Just got told I have Ulcerative Colitis. I need advice and help.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

railmoose
New Member


Date Joined Nov 2008
Total Posts : 2
   Posted 11/30/2008 3:21 PM (GMT -6)   
 My doctor did not give me any type of diet or foods that would help so I am in such pain. I am asking for advice on diets and what to eat to keep me regular and as pain free as possible.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 11/30/2008 3:24 PM (GMT -6)   
     Did you see a GI doctor?  If not, I recommend seeing one as soon as possible.  Aren't you on any meds?  When I am in a flare, I eat a low residue diet.  You can find the diets on the web.  If you are lactose intolerant, you could try drinking SILK, it is a soy product.  Low residue is no roughage and very low fiber content.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


railmoose
New Member


Date Joined Nov 2008
Total Posts : 2
   Posted 11/30/2008 3:47 PM (GMT -6)   
Yes Ma'am. I had a c-scope done and that is where they found it. They have put me on Asacol 800mh three times a day. I have been out of work and am returning tomorrow, just I have had a few bad days. I need to learn things to help. I work as a railroad conductor and work the ground alot and sometimes I have no access to a bathroom for hours, so I am trying to get regular somehow.

doors12
Veteran Member


Date Joined Jul 2006
Total Posts : 723
   Posted 11/30/2008 6:14 PM (GMT -6)   
I know I was frustrated when first diagnosed and felt like i was given unclear advice about the effect of foods on the condition.  I was on a "Low Residue" diet in the hospital.  You can probably call a dietician at a hospital or maybe your doctor to get a description of this, or google it.  What I was led to believe is that in a flare a diet like low residue might be prudent, but that when not flaring (remission) the diet should not be very restrictive.  I myself stay away from milk  - or i should say i just drink lactaid.
 
I think the main thing that helped me was working with the GI and taking my medication religiously.  Drink plenty of water.
 
Hope you feel better
 
 
by the way, what part of the country do you operate in if you don't mind my asking?
Diagnosed with Ulcerative Colitis 6/2006 at age 26 after sudden E.R. visit
~Pancolitis (Mild to Moderate)
 ~I had Mono in 2000
On Colazal 3x3/day; Folic Acid 1mg; Calcium/Magnesium/Zinc combo
In remission about 2-3 months after E.R. but not back to normal!
 
~Interested in finding a cure/making sense out of U.C. and philosophical and psychological aspects of UC and "Stress" and Personal Development issues with Chronic Illnesses. 


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 11/30/2008 6:39 PM (GMT -6)   
My advice would be to take the prescribed medication, watch what you eat and how it may affect you, and carry some Imodium with you to take if a bad day happens. You are out away from a bathroom a lot, and as a safety measure a pop of Imodium if you feel shaky can help you pass a full day without emergencies.

21 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.
  •  Psyllium powder
  • Culturelle probiotic


sore_guts
Regular Member


Date Joined Jun 2007
Total Posts : 186
   Posted 11/30/2008 7:27 PM (GMT -6)   
I think many doctors dont talk about foods or diets because these things vary so much from person to person.  Every person with UC responds differently to various foods and diets.  So the best way to find out which foods are o.k. with you or single out foods that aren't is to keep a food diary, listing foods eaten with amount and time.  Also with it keep a log of symptoms so you can connect the 2.  I know this is a lot of work and can seem like a big task so to begin with and with going back to work you could start by eating bland, soft foods.  Ovoid fried or greasy and raw hard veges.  This way of eating should be easy on your digestive system until you get more familair with which foods work for you.
 sore_guts
 
Currently in Remission since June 2008!!
 
High magnesium/ beta carotene diet
36 year old female with left-sided UC
lialda 1 pill  3 times/day
multi-vitamin 1/day
Digestive Advantage Colitis formula 1/day
 
 


crazytrain411
Regular Member


Date Joined Nov 2008
Total Posts : 109
   Posted 11/30/2008 7:37 PM (GMT -6)   
I wish somebody would have told me this when my UC started

Try a daily high dose of a multi-strain Probiotic supplement. These are meant to put good bacteria back in your colon. Also there are things against good bacteria - anti-biotics, sugar and carbs.
Waiting to see if I'm cured - no symptoms since probiotics started

Probiotics 16 strains (vsl#3 + ultimate multi probiotic) - 475 billion per day. Pre-biotics 1x a day. No sugar.
L-glutamine, elm powder, vit b & folic acid


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 12/1/2008 9:28 AM (GMT -6)   
The most useful thing for me has been keeping a food journal. I track what I eat, when I eat it, and how it made me feel, both immediately, and long term (like 24 hours down the road). That helped me to identify more clearly what foods were and weren't helping me out. After a while, I was down to eating Rice Crispies w/ soy milk, and eggs with corn tortillas to add some flavor to life, and drinking lots of water. That lasted for a couple of weeks, and then I began to add things back into my diet, and kept track of how it went.

I tried to do this in my journal in my head for a while, but having it written down is a lot more helpful. There is nothing like seeing evidence of things on paper to help make it clearer. I also found it useful to track my meds and supplements, to find out how these were helping/affecting me.

In the short term, use immodium for sure to help through the work day, but don't use it too often. I tried it as a solution, and I ended up being extremely constipated and in agony for a couple of days until I was able to pass that rock out of my system. Again, keeping track of this in my journal really helped out. Another suggestion is to keep a change of clothes and some baby wipes close by in case of accidents, because they do happen, even to the most careful of us!

I hope this helps, and I hope your first day back at work went all right.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06
Meds & supplements: Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda, Colocort, Prednisone ( down to 7.5mg), flaxseed oil, L-glutamine, magnesium, and vit B-12.
 
Trying the spinach/sunflower diet.  If needed, my next experiment will be to try LDN.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 12/1/2008 9:58 AM (GMT -6)   
You might find the book "The New Eating Right for a Bad Gut" to be extremely helpful. Most GIs are not going to be very helpful with dietary recommendations.

http://www.amazon.com/New-Eating-Right-Bad-Gut/dp/0452279763/ref=pd_bbs_sr_1?ie=UTF8&s=books&qid=1228143480&sr=8-1


Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, September 19, 2018 7:14 PM (GMT -6)
There are a total of 3,004,879 posts in 329,179 threads.
View Active Threads


Who's Online
This forum has 161751 registered members. Please welcome our newest member, Roadranger82.
317 Guest(s), 12 Registered Member(s) are currently online.  Details
Darwayne, JNF, Bob in Elkridge, BBN!!, getting by, Tudpock18, Saipan Paradise, sierraDon, caia_120, FLBeachgal, CCinPA, halbert