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New Member

Date Joined Nov 2008
Total Posts : 2
   Posted 11/30/2008 8:34 PM (GMT -6)   
just trying to edit to delete my post

Post Edited (K1982) : 10/28/2009 10:20:37 PM (GMT-6)

Regular Member

Date Joined Sep 2005
Total Posts : 210
   Posted 12/1/2008 8:12 AM (GMT -6)   
I am also on Remicade & methotrexate. I started out with the methotrexate shots but now I take a pill 3 times a week. I am not sure of my dosage of Remicade but my nurse did mention one time that I take double then what she is used to giving. I am in remission right now. I also take Lialda. I can't help you with the nausea. I don't experience any of that. I don't feel any side effects from any of the medicines I take. right now I can eat anything I want to except dairy products. I was wondering if there is any dairy products in the ensure that could be causing you problems.
Lialda 3 tablets  daily
Remicade every 8 weeks
Folid Acid daily
Methotrexate 3 times a week
Align Probiotic

Regular Member

Date Joined Nov 2008
Total Posts : 64
   Posted 12/1/2008 8:13 AM (GMT -6)   
Hello there and welcome to the forum. I'm on Remicade since 2005, normal dose 5mg/kg but I'm gonna get my first 10mg/kg infusion this December 11th (due to a flare). I haven't had any of those symptoms, I get really hungry with the Remicade infusion (don't know why since I was not in Pred while Remicade) and I don't experience nausea (maybe a bit when given Benadryl) I hope I could help you out with that... I'm also considering surgery for a nearby (let's say a 1, 2, 3 year + - or so) future, I'm not much of a medication lover and j-pouch is an option. There are bad moments and good moments, we just have to keep a happy face smilewinkgrin even during those nasty flare ups.
Peter, 21. Puerto Rico
DX: Ulcerative Colitis as of 06/05
Remissions: Remission: 01/06 till 10/08
Current Treament: Asacol 2400 MG 2X daily, Rowassa nightly, 1MG Folic Acid, 40 MG Prednisone, Remicade, New Chapter® Multivitamin, New Chapter® All-Flora Probiotics, Dolomite Calcium Supplement
Status: Flare!!!!!!!!

Veteran Member

Date Joined Feb 2005
Total Posts : 6447
   Posted 12/1/2008 8:29 AM (GMT -6)   
Hi K1982, and welcome to the forum. Gosh, I'm sorry you are feeling so ill. I too haven't had any side effects from the Remi, and that's the only thing I'm taking. I will tell you though, I had a lot of trouble with the Asacol, and was very glad when that stopped. I was nauseated and had a terrible fog with it. Have you had any problems with the Asacol since you started it? Are you taking any meds for depression? Just trying to narrow it down.

Remicade - will have my 25th infusion on November 26 
Vitamin B-12/Biotin, Probiotics
Co-Moderator for the UC Forum

Paul L
Veteran Member

Date Joined Dec 2005
Total Posts : 647
   Posted 12/1/2008 9:11 AM (GMT -6)   
K1982, I’m sorry you are having problems with nausea. When I was on Remicade I only had nausea after the first infusion. I had a total of 7 infusions but unfortunately it never worked for me. I was also on methotrexate at the same time. Methotrexate is not considered a treatment for UC but it is sometimes used for Crohn,s. The reason it is used for UC when on Remicade is that it helps prevent antibodies towards Remicade from forming. Once you have antibodies Remicade will never work for you again.
Diagnosed in 2000 at age 43 with UC. Colon removed October 20/08.
Bad reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Corticosteroid enema, Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
Abatacept trial - no effect
Visit our photo albums at: 

Eva Lou
Veteran Member

Date Joined Sep 2006
Total Posts : 3440
   Posted 12/1/2008 11:16 AM (GMT -6)   
when you say "inability to eat solid food" , what exactly happens when you try to eat a piece of toast? To be %100 honest, it sounds entirely mental- I know you may not want to hear that. One tends to become so food averse during severe flares, you don't even realize how hard it is to start eting again. Living on liquid/soft foods for a months does make it harder to go back to a more "normal" diet. What do your doctors think about this? I've been on that double dose for a long time now & never had any symptoms like you describe. But, when I was severely flaring the enitre year of 2007, you bet I was unable to eat solid food! And when I finally started to come out of it, I was still unable to eat solid food, mostly due to fear of what would happen. Just make yourself do it, slowly. Start with thick soups & crackers, or toast.

diagnosed with UC '02
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Fiber supplement

Veteran Member

Date Joined Feb 2005
Total Posts : 6447
   Posted 12/2/2008 8:42 AM (GMT -6)   
I'm trying to think back of when I was flaring so badly and I do remember that all I wanted to eat was smooth peanut butter, applesauce, spinach; anything soft that I could just get down my throat. That nauseaus and fog feeling lasted until about 11:00 am, and then I felt a little better. After I started Remi, I would feel good until about the 6th or 7th week, and then I could tell I needed a treatment. I felt the flare feeling coming back, but never had blood or mucous or d....just like I hit the wall and I'd go home and sleep for hours. It took about six months before I finally came out of that and really started feeling good and making it the whole eight weeks without a blip.
Now I only get that feeling every once in a great while. Funny thing is my boss freaks out when it happens, and I try to tell him that I'm okay, I just need to go home and sleep! He always thinks I have the flu and that I'll be gone for days. My boyfriend has it figured out and is very sweet and just let's me be. Well, I hope this helps and that you are feeling better soon.

Remicade - will have my 25th infusion on November 26 
Vitamin B-12/Biotin, Probiotics
Co-Moderator for the UC Forum

Regular Member

Date Joined Oct 2008
Total Posts : 67
   Posted 12/3/2008 3:24 PM (GMT -6)   
Have to disagree with Eva Lou. I'm not on remicade, but had acid reflux, followed by the extreme nausea which then led to vomiting (which with simultaneous bloody diarrhoea is totally noxious). It's not a terribly uncommon symptom, especially, it seems, when there's a lot of bleeding involved.

The advice about soup and crackers (or dry toast) is great, though. As long as I ate very, very, slowly, I was able to keep the food down for some time. If you're tolerating liquids, then it's worth looking at some of the dietry supplements available. My doctor put me on omeprazole to help with the reflux and nausea - basically it is to reduce gastric acid, which can reduce nausea and help protect the colon as otherwise excess acid can further inflame the colon, may be worth speaking to your current GI about this. Unless you've a lactose intollerance, it might be worth trying some porridge oats with hot milk and honey as a sweetener. I've found apple juice (but not from concentrate nor with added sugars) to be quite "gentle" overall, too.

Wishing you well.
UC - diagnosed Sep 2008 - Not seen GI since then...
Omeprazole 2 x 20mg
Prednisolone 5mg
Calcium (Adcal-D3) 3000mg
Mesalazine 8 x 500mg
Mesalazine foam enema
Multivitamins x 2
Omega 3
Probiotic (acidophilus)
Ferrous Sulphate 3 x 200mg

Unable to tolerate Paracetamol

Foods for me to avoid:
Any types of green leaf - big time.

Post Edited (Limeycricketlover) : 12/3/2008 2:28:32 PM (GMT-7)

Regular Member

Date Joined Jan 2009
Total Posts : 39
   Posted 1/10/2009 12:14 PM (GMT -6)   

During a flare ups of UC I can eat only very small amounts and even then I get sick sometimes especially after solid or hot foods. After a few mouthfulls I feel really full like the food has lodged in my gullet and then I get a pain under my ribs (left side). I dont think it is the medication as the same happened before I started madication. I dont know if it is the pain or not being able to digest some foods that makes me sick but it can be very frustrating.

36, Female
Diagnosed in November 08 with UC (By surgeon)
Awaiting Appointment with GI to see what type
Flaring at the moment
Dipentum Olsaline Sodium (6X250mg daily)
20mg Prednesol (First time)

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